IVIG Infusion Archives - Page 89 of 181

My #Autistic son did the most amazing thing today

Gavin was able to get his blood work done without any problems. In fact, I wanted to share something cool that Gavin did while he was there. It's no secret that Gavin is a creature of habit. He thrives on routine, especially for things that are scary for him like blood work. Today there was a new tech that Gavin had never met before, and instead of freaking out because of the change, he explained how he likes it done and let her draw his blood. Gavin likes the techs to count to three before sticking him and then warn him before taking the needle out. When he's done, he likes his arm wrapped in cling so he doesn't see the area the needle went into his arm. It's pretty…

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May 16, 2019

Autism Parenting Insight / Gavin / My thoughts

One of the most independent things my #Autistic 19 year old does

I didn't sleep well last night, and my amazing wife was kind enough to take the kids to school so I could go back to sleep. ☺ 💙 When I did drag myself out of bed, I was able to get Gavin for his weekly blood work, and that's where I'm residing at the moment. Hopefully, he doesn't have a long wait. This weekly trip is one of the most independent things he does. I drop him off at the lab and wait in the car. We've been coming here for most of his life, and everyone adores him. He's able to sign himself in and answer some routine questions about traveling outside the country. When it's his turn, he goes back, gets his blood draw, and collects three suckers.…

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May 15, 2019

My thoughts / Reviews

Review: The Dodow helps me naturally fall asleep faster (@MyDodow)

Sleep is so incredibly important, especially in the case of Autism or Special Needs parents. Quality sleep is a huge part of self-care and something I've struggled with for a long time.

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May 14, 2019

My thoughts

Each day we have left with her is a gift

Aside from some issues with Gavin this morning, I feel like we've had a pretty good day. After all the drama at the beginning of Gavin's IVIG infusion, it finished up without a single issue. Shortly after, we received a call from the school because Elliott had another nosebleed. He's been getting those recently, and I'm not sure what's going on, but we should probably call his doctor. Emmett was going through something similar this year, but it turned out to be his allergy medication. Once he stopped that, the nosebleeds stopped. Elliott's on the same medication, so perhaps that's the issue. These aren't uncontrollable nosebleeds, but they are happening a couple of times a week. He had one last Friday, and I ended up having to bring him home…

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May 13, 2019

Autism Parenting Struggles / Gavin / My thoughts

How the f**k was I supposed to know that?

It's been a really long weekend, and it wasn't always pleasant. Mother's Day was a mixed bag for several reasons, but ultimately, it ended on a high note. Lizze was missing her Grandmother, and it weighed heavy in her. 😔 That said, we had a nice dinner and even went to bed super early. The boys got off to school this morning without much trouble, and I went for my morning walk with Ruby. It rained the entire time, but we survived. ☺ Gavin's infusion went off without much of a hitch, at least the infusion itself. He struggled a bit this morning because he was very nervous about this infusion for some reason. Keep in mind, Gavin is one of the bravest human beings I've ever known. This kid…

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May 13, 2019

Autism Parenting Struggles / Gavin / My thoughts

As an #Autism parent, my son’s violent and aggressive behaviors are very concerning to me

The boys have been home about an hour or so, and I feel like we've already spent the sanity this break has allowed us to regenerate. Admittedly, it's still not much, but we were a bit saner before they arrived home. 😜 Drama ensued fairly quickly upon their return. The boys reported that Gavin had dropped what they referred to as an f-bomb. In other words, he said fuck. When we asked Gavin about this, he completely freaked out. He stomped down the steps, pointing at his brothers and screaming. It was a very aggressive and threatening reaction. I know Gavin wasn't going to hurt anyone, but that's beside the point. If Gavin reacts that way in public or when he's around people who don't know him, he would be…

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May 12, 2019

Autism Parenting Insight / My thoughts / Self-Care

I try to never take breaks for granted

It was a pretty quiet evening. The kids were at their grandparents, and I'm writing this after sleeping in till 10:30 AM. That felt really good, and I'm incredibly grateful for the opportunity. Lizze and I went for a short walk last night before picking up dinner and settling into watching Wandering Earth on Netflix. I can't stress enough how important self-care is. We don't really have any plans for today, but I would like to get some things done around the house. I know rest is important, but I also want the kids to come home to a house that's in a little better shape. I'm going to work on some organizational type things and then maybe go walking this evening. I'm really thankful for the break, and I…

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May 11, 2019

Autism Parenting Insight / My thoughts

I love my kids, but dammit I need a break

I didn't sleep well last night, and that led to us oversleeping this morning. How we start the day has a direct impact on how the day goes, and getting off to a late start isn't a good thing. Having to rush around puts the kids on edge and creates a stressful environment for everyone. We try to avoid mornings like this but sometimes our Google Hub hiccups, and the alarm doesn't go off. An interesting fact about the Google Hub, if your wifi drops, it's completely useless, even as an alarm clock. Always, set a backup. 😉 The kids made it to school, and I took Ruby walking with me in the rain. She lives for these walks each morning, and it's become our thing. While she won't go…

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May 11, 2019