We've made it to the Cleveland Clinic this morning, and that's despite the Universe's best efforts to delay us with horrible standstill traffic. I'm hoping that we won't be here all-day. All that said, we made it safe, sound, and on time. That's what matters the most.
I was really excited about getting out with Lizze tonight. The kids are gone cause we have a very early appointment at the Cleveland Clinic in the morning and her parents were kind enough to keep them overnight. 😉 ❤️ Anyway, Lizze and I went to the movies and had planned on going out to dinner afterward, but unfortunately, Lizze wasn't feeling well, and we returned home as soon as the movie was over. We still had fun, but it was cut way short. It sucks because she's miserable and frankly, I really feel like we needed to focus on us. Lizze and I are good, but that doesn't mean we don't have to work at it. We must take the time to focus on our marriage, especially considering all…
I can't even remember the last time Lizze and I have gone on an actual date. We've been known to grab some takeout and watch Netflix but anything beyond that is quite rare. It's rare for a couple of reasons. Firstly, the kids are always here and on occasion when they aren't, Lizze usually isn't feel well or we don't have the money. The kids are gone today and tonight because Lizze has to be at the Cleveland Clinic super early in the morning. A huge thanks goes out to her parents for watching them for us. I know first hand how challenging all three of the can be and we're grateful for the help. Lizze and I are going to see a movie and probably go to dinner. If…
Today's been incredibly challenging for a number of reasons, and I'm pretty stressed out as a result. Truthfully, I'd be stressed out anyway but whatever. Mr. Gavin is struggling a bit right now. Who am I kidding? He's struggling a great deal right now, and it's taking a toll. Is there a nice way to say he's driving me fucking crazy? One of the more recent issues is that Gavin has been cursing rather openly. I get that he's almost 20 years old, but the reality is that he's maybe 5 or 6 years old on the inside. It's like having a kindergartener dropping f-bombs and other words that he shouldn't be saying. I think in most cases he's parroting stuff from YouTube and we've tried to address this but…
Elliott and Emmett are really struggling with not having enough personal space. I think we've reached a point where they really need their own rooms. Unfortunately, there's not much I can do to make that a reality at the moment. A large part of the problem lies in the fact that their needs are very different. As an example. Elliott needs the room dark, while Emmett needs it brightly lit. Elliott likes it quieter and Emmett is the loudest human being on the face of the planet. The list goes on and on. Because they're Autistic, they tend to experience things more intensely and become frustrated more easily. Everything is much more complicated due to their unique and often conflicting needs. This of course leads to meltdowns and shitloads of…
Today had its moments but overall, I feel really good. There are a few things I'd like to celebrate tonight before I hit the sack and start this whole thing over again in the morning. First of all, in a pretty major win for Mr. Gavin, he performed is own IVIG Infusion today and it didn't leak. He did the entire thing, start to finish, and didn't have a single issue. A little tough love was required to get him there, but he was really proud of himself when it was all said and done. ☺ I was able to get my walk in before dinner time. I was up all night last night because my leg was driving me fucking crazy. Once I did fall asleep, I opted to…
Emmett's in a great deal of pain today and will be for at least the next few days. Yesterday he broke out with mouth sores again and they're pretty bad. His antivirals are keeping things from being any worse than what they currently are but they aren't stopping them altogether. We began doubling up on his antivirals, as we're supposed to when he's in a flare-up and hopefully they will disappear over the next few days. The sores are related to a very rare fever disorder called PFAPA. He's had this all of his life and while it's evolved over the years, it's very, very disruptive. Emmett used to run fevers of 105°F for about ten days, but not actually be sick. He would then be fine for roughly two…
As I chill on the couch tonight, unable to sleep again because of my fricking leg, I thought I would get my super positive post from yesterday caught up. I will, however, make this quick because I'm really trying to get some sleep. Long story very short, I opted to go help my parents by cutting their grass last night. My dad is working a great deal and his knee is bad. My mom just had her knee replaced and better not even be thinking about cutting the grass. I'm watching you mom. 😉 Anyway, we all went over and everyone played a role in helping. Lizze spent the time with my Mom. Elliott and Emmett took Ruby and Cleo (my parents dog) for a walk. I got to use…