IVIG Infusion Archives - Page 69 of 181

We take #vaccines VERY seriously but had to play catch-up today with our youngest and here’s why

I'm going to focus on the positive tonight. There was plenty of things that didn't go right, but the ones that did, matter more in this very moment. I mentioned earlier that Emmett had an appointment with his pediatrician today. It was a combination med check; well check and physical. We needed to touch base in regards to his ADHD and Depression medications before his care transfers to the behavioral health clinic at the main Akron Children's Hospital campus. He also needed his 11-year check-up and physical. Part of that included discussing vaccines. Emmett is the only one of our three kids who's technically behind on his vaccines. Emmett has a rare fever disorder and has had it since he was about a year old. His symptoms have evolved over…

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August 2, 2019

Akron Children's Hospital / Emmett John / My thoughts / Pediatrics

Emmett and I are flying solo this afternoon

We're heading out in a few minutes because Emmett has an appointment with his pediatrician. It's the last med check before his behavioral health care switches over to the main behavioral health center at Akron Children's Hospital next month. This is also going to double as a well check. Emmett recently had a birthday and is due for a well check. Emmett and I are flying solo today because Lizze is not feeling well and it's always better to not take all the kids with us. No bog deal. Emmett and I can totally handle this...even if there will be shots, and there might be shots.

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August 1, 2019

My thoughts / Today's Victory

How we salvaged the day by surprising our kids

I didn't sleep well last night because my restless leg was keeping me awake. I was unable to go walking because of HOF week. To say I was in a bad place yesterday morning would be an understatement. The boys were fighting, and we needed a reset. Hiking was out of the question due to the threat of severe storms. We didn't want to be out in the middle of the woods when it hit. Anyway, we opted to fulfill our promise to the kids in regards to taking them to see Spider-Man Far From Home. It was very impromptu, which we usually wouldn't spring on the kids but I wanted to disrupt the current path we were on, so we could reroute our course for the day before nose…

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July 31, 2019

My thoughts

My least favorite time of year

The next week or so is going to be very frustrating because it's Pro Football Hall of Fame week. I hate this time of year because it's incredibly disruptive. People flood into Canton, Ohio from all over the world to participate in the HOF festivities. It's the one time of year where Canton cares about how it looks. The street cleaners are out in full force, and the parade route is getting a fresh coat of paint. One of the big issues for me personally is that they close off the park to the public. Parking is impossible to find, and people literally park anywhere they can. Walking becomes much harder because I have to find a new location and that isn't always possible because of everything I have going…

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July 31, 2019

My thoughts / Today's Victory

Frustrating moments but I feel like progress was made

We had therapy tonight, and some interesting things happened. First of, for the most part, everyone got along well. That's always something worth celebrating. While it wasn't perfect and Gavin lost his cool, he also worked through it pretty quickly. The issue with Gavin today happened as a result of Gavin struggling to understand some basic concepts. The kids were playing monkey in the middle with one of those soft, indoor frisbees. There is limited space to play, and in order to keep things, boundaries needed to be established. The person in the middle had to stay inside of the established lines, and the people not in the middle had to stay outside the established lines. It's a very basic and fundamentally simple concept that everyone agreed on prior to…

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July 31, 2019

Autism Parenting Struggles / Gavin / My thoughts

This scares the sh!t out of me

Gavin is driving me nuts. He's talking nonstop and it seems like even single step instructions are needed to be repeated multiple times. Absolutely none of this is his fault. He's not trying to drive me crazy, and I do my best to keep that in mind, but that doesn't make it any easier to deal with. It's pretty overwhelming to face this day in and day out. The only silver lining is that Gavin is very happy and still being maintained in the home. I don't know how long that will last but all options are limited. We essentially have two options. Firstly, we could find a way to make things work at home. We would have to do that in such a way that doesn't negatively impact the…

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July 30, 2019

My thoughts

Are you interested in sharing your story on my #podcast?

I've been thinking about it lately and I wanted to share my plan for season 2 of The Autism Dad podcast. Season 1 consisted of 11 episodes and was my first solo venture into podcasting. It was far from perfect but was received well. I'm going to begin recording season 2 by the end of August, as soon as the kids are back in school. That's the best chance I have at a semi-quiet environment for recording. My goal is to record during the school year and then end the season when school lets out. As far as topics are concerned, this season I was to spend time giving parents a platform and a voice. I used to do this on the blog all the time but I'd love interview…

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July 30, 2019

Autism Parenting Confessions / My thoughts

The kids discovered our shameful, dirty little secret

You may recall that I had to get Lizze to the Cleveland Clinic very early today, and because of that, the kids spent the night with their grandparents. I also previously mentioned that Lizze and I were going to have an official date night last night, something we rarely get to do. We sometimes grab takeout and watch movies at home but we almost never go on official dates and that sucks. For us, an official date is something like going to dinner and a movie. It just doesn't happen very often. In fact, I think last night was the first time this entire year that we were able to do something like this. While we were debating what movie to see, it came down between The Lion King and…

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July 30, 2019