Read more about the article I’ve officially applied to Make A Wish for my son
Autism Parenting Insight / Gavin / My thoughts

I’ve officially applied to Make A Wish for my son

At 2 am this morning, I was unable to sleep. I've got many things on my mind and I couldn't shutdown. One of those things weighing heavy was this whole Make-A-Wish thing for Gavin. I began the process after Gavin's immunologist suggested we apply last year. The process halted for a variety of reasons, but two reasons created the most friction. The first of which was Gavin didn't want to do anything. If he was unwilling to participate, there's no point in continuing. The second reason was more emotional on my part. Knowing your child qualifies for Make-A-Wish is a doubled edged sword. On the one hand, it's such an amazing opportunity for Gavin. On the other hand, he qualified in the first place. To qualify, things have to be serious about…

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June 24, 2017
Read more about the article Gavin’s having health issues tonight
Common Variable Immunodeficiency / Gavin / Immunology / IVIG Infusion / My thoughts

Gavin’s having health issues tonight

You may recall that Gavin sorta refused his IVIG infusion this morning, because he had a mission to go on first (see Why I'm worried about Gavin today). We were simply going to do his infusion tonight, because it wasn't a huge deal. It was the fact he wanted to put it off, and the reasons why he wanted to put it off, that concerned me.  After dinner, he was getting ready to get his supplies together, and he got hit with some major reflux. It put him down for an hour or so because he wasn't feeling well.  I decided that we would put his infusion off until the morning, because he's already struggling and the infusion is pretty rough on his body.  Once the reflux subsided, he was hit…

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May 23, 2017
Read more about the article Why I’m worried about Gavin today
Gavin / IVIG Infusion / My thoughts / Schizophrenia

Why I’m worried about Gavin today

It started out like a typical Monday morning. It wasn't anything amazingly awesome, or horrifically terrible. The boys were tough to get moving but we got to school on time.  After dropping the boys off at school, I told Gavin to get his infusion supplies together. Every Monday and Friday morning, Gavin receives his IVIG infusion to treat his severely compromised immune system.  Typically, Gavin's very anxious to get this done because he he feels better once it's done.  Today however, Gavin essentially refused his IVIG infusion because he had a mission to go on, and he didn't want to go into battle with needles in his stomach. I can understand that, but he's never done that before.  I haven't yet learned the details of this particular mission or how…

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May 22, 2017
Read more about the article It’s been a stressful #Autism Parenting day
Autism Parenting Woes / My thoughts

It’s been a stressful #Autism Parenting day

Very little has gone right today, at least that's how it feels as I'm ending the day. The boys have each had their struggles, but Elliott had a great day at school and did his homework right away when he got home. ☺ Emmett on the other hand, was a handful for most of the day, at least until he went to bed. I lost count of the meltdowns throughout the day and my ears are still ringing from all the screaming. I know he's in a flare, but my goodness was he difficult today. Even though I understand that most of this is beyond his control, it still has the same impact on me as if he were doing it on purpose. He was miserable today and I'm praying…

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April 11, 2017