IVIG Infusion Archives - Page 180 of 181

I’m so fricking stressed out this morning

The boys are supposed to be in a run this afternoon and I'm not sure what we're doing at this point. It's currently 40°F and it's been raining all night. The roads are drying up at this point but it's still very cold out. Everything was free so it's not like we're losing any money. I'm worried for a couple reasons. Emmett doesn't like getting his feet wet Emmett will only wear crocs and no socks It's cold, cloudy and raining on and off Elliott cannot find his wind pants If Emmett's feet get wet, it's going to get ugly There are a few people coming with us and I don't want to cancel at the last minute because we're holding out hope for something that's not practical At the…

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April 28, 2018

Autism Parenting Confessions / Gavin / Inspirational Posts / My thoughts

I’m a Special Needs Dad, guilty of losing hope

I haven't written a truly heartfelt piece in a very long time. Writing has been such an intrical part of my life for so long now but I feel like I've lost my voice. Writing has lost its meaning and I've lost my passion for it. I'm working to rebuild that part of my life and it's not easy. There are roadblocks I've yet to overcome and others that cause me to veer off course, at least temporarily. That being said, and reasons I can't explain, I feel compelled to talk about hope. I'm not writing about it in a way that's meant to be inspiring to others, at least I don't think it is. I'm writing about how I've lost hope. I'm writing about something very personal and painful…

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April 26, 2018

Inspirational Posts / My thoughts

I will NOT be swallowed up by the negative in my life and here’s why

I'm so stressed out that I'm feeling sick to my stomach. Truthfully, I'd be sick to my stomach anyways cause of this stupid Paxil withdrawal but stress makes it so much worse. Rather than continually being swallowed up by the negative, I'm working to focus more on the blessings and here are a few examples of what I mean. It's all about perspective and the following are things weighing very heavily on me but there are hidden blessing in each situation. ☺ Our house sucks and the neighborhood is dangerous, but we have a roof over our heads. There are people out there who don't even have that. The car is literally rusting through, falling apart, no longer worth fixing and is too small to fit everyone without causing problems.…

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April 3, 2018

Autism Parenting Heartbreak / Inspirational Posts

#Autism breaks my heart in more ways than I can explain

Autism is one of those human conditions that impacts every person touched by it in a different way. Sometimes those differences are not so big and other times those differences can be so profound, that you may wonder how they can all fit underneath the umbrella known as Autism.. Each of our three kids is impacted in different ways by Autism. Gavin is easily the most profoundly impacted though. Gavin has an extremely rare form of Autism called Childhood Disintegrative Disorder. There's almost no research or support for this blacksheep of the Autism Spectrum family. Most people haven't even heard of Childhood Disintegrative Disorder or CDD. Unfortunately, CDD is absolutely devastating and based on what little is known about this disintegrative disorder, there is never a good outcome. The reason…

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April 2, 2018

Gavin / IVIG Infusion / My thoughts

It was a disastrous morning for Gavin

It's been a really rough morning. I've been fighting off a stomach bug for most of the week and it's not been pleasant. I've actually not been eating much, so might be a great time to weigh myself.. Lol Anyway, Gavin did not have a good morning. His IVIG Infusion pushed him over the edge, down the street and around the corner. He was completely freaking out and there was very little consoling him. He setup his own infusion again and did a great job. He picked new locations to stick the needles but unfortunately, both infusion sites leaked and required re-sticking, which he's not a fan of, like at all. It sucks having to do this once but twice is double the amount of pain and anxiety for him.…

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March 9, 2018

Gavin / My thoughts

Gavin’s NOT having a good day and it’s taking a toll on all of us

Holy shit! Gavin is not having a good day by any stretch of the imagination. He's been on overload all morning long. It's crystal clear that he's extremely stressed out right now and actually in distress. Maybe it's from a long day with his grandparents and not because they've done anything wrong. Gavin had a great time but it still takes a toll. It would be the same thing if he'd been at my parents. This is just the nature of who Gavin is. He's been getting ahead of himself all morning because he's acting before he really thinks about what he's doing. I suppose you could also call this being a bit impulsive. This morning's festivities began when he went to do the dishes. I've always had him throw…

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March 3, 2018

Gavin / My thoughts

Gavin’s not having a good day

Gavin's having a rough morning. For starters, his routine is thrown off because he's not getting his bloodwork done today. The new day for that is Wednesday's. His IVIG infusion is leaking from the left needle and that always freaks him out. It's pretty easy to fix but it's not without additional pain. It's good that he's working through it but it's not very graceful.. Lastly, and this one is driving me crazy. He has been nonstop complaining about a hang nail on his right index finger. All of the crazy things he's endured or is currently enduring, and the kid is freaking out over a hang nail. He's always been this way and they tell me it's sensory related. Back when he suffering from very serious behavioral problems, he…

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February 12, 2018

My thoughts / Reviews / Unboxing / YouTube Video

Review: Bit Charge Stereo earbuds (@RowkinInc)

This post is sponsored by Rowkin. They were generous enough to send over a Bit Charge Stereo to unbox, review and help generate some Autism Awareness. The opinions in my review are my own and were no way influenced by anyone or anything other than my experience with the product. The Unboxing https://youtu.be/w239BMxQl7A The Full Review A couple weeks ago, Rowkin, maker of the world's smallest, truly wireless earbuds, sent me over a Bit Charge Stereo to unbox. Having unboxed some really expensive truly wireless earbuds already, I would be lying if I told you I wasn't skeptical of the Rowkin Bit Charge Stereo. After all, they're in many cases, less than half the price of more well-known brands and I've always been of the opinion that you get what…

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November 28, 2017