We’ve arrived at @AkronChildrens Hospital for pre-testing

It's not even 7AM and we're sitting in the lobby of the surgery wing on the 4th floor of Akron Children's Hospital. This is an appointment that we're a bit nervous about because we aren't sure how Gavin's going to react. The whole point is to go over the details of his upcoming scopes, make sure we understand everything and discuss any concerns. It should be pretty simple. We go over everything in great detail, have a basic health screening and gain a better understanding of what to expect on June 5th. We're a bit nervous because Gavin tends to frighten easily and let's face it, who actually likes the idea of getting an endoscopy or colonoscopy? We also aren't sure how this will go as Gavin is 18 years…

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I totally need to sleep tonight

I'm going to bed early because we're starting our day at 5AM. It's going to be a long morning and I'm not sure how it's going to go. I haven't been sleeping well and I'm hoping to get enough to make battling traffic something I can handle. lol The boys are at my parents house tonight and we'll pick them up on the way home. Hopefully, everything will go well and we can move on with the rest of the week.

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Gavin’s had an Upper GI at @AkronChildrens Hospital this morning

Gavin's appointment went really well. I mean, we don't know the results but Gavin physically did pretty good. He could follow directions and it took a little bit because they had to make more stuff for him to drink. I can't say enough positive things about how nice everyone was. They were very patient and not that I need to explain to anyone because it's painfully obvious, but they recognized his cognitive impairments and handled him very well. We don't know the results but we'll get them at his next follow-up. If there's a major issue, they'll call us first.. Thank you Akron Children's Hospital, you've never let us down and always treated us with respect. [foogallery id="80856"]

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Wish us luck

We're getting ready to leave for Akron Children's Hospital after a night of little sleep. Lizze and I have both been dealing with insomnia recently and it's making life even harder than it already is. I'm not sure what's causing our sleep disturbances but I bet you a shiny buffalo nickle that it has to do with stress. We are both extended about as far as we physically and emotionally can be. In fact, we're significantly over extended. Lizze can fall asleep but won't stay asleep and I can't fall asleep but will stay asleep, if that makes any sense. Anyway, we're both exhausted and exceptionally grateful that her parents volunteered to keep Elliott and Emmett overnight so we can get Gavin's testing done without having to worry about the…

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We have to be at @AkronChildrens Hospital this morning for more testing

One of the things I mentioned that had come to light during Gavin's visit to the Gastroenterologist last month was that Gavin is having a hard time swallowing. Why we were only just hearing about that is just one of the many frustrating things about trying to manage Gavin's health. He simply didn't think it was worth telling us about. WTF?? This kid tells me every bizarre thought that pops into his head and it drives me fricking crazy but when it's something this important, he says nothing. Aghhhh Anyway, in a few hours, we will be heading to Akron Children's Hospital because Gavin is having a swallow study done. This is where he'll be drinking a liquid laced with something that makes it show up on x-ray and they…

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How I’m celebrating Memorial Day

The fam and I are heading to the in-laws house for a nice, quiet Memorial Day cookout. Today's an important day and we've been talking to the boys about how Memorial Day is not just a day for cookouts. Today we remember all those who've fought and died for our right to be free. Lizze and I have both had friends and family who've fought and died for our freedom. It's important to us that we never forget them dishonor their memories. We will make sure our kids know the sacrifices these amazing, selfless and courageous human beings have made in order to ensure we have the freedom we now enjoy. Please remember all who have come before us and made the ultimate sacrifice to defend our country. I'm going…

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My Insomnia is back and it’s horrible

I'm currently battling insomnia and it sucks. It's about 7 AM and I've still not been able to fall asleep. I don't know if it's just stress or even depression. All I know is that I'm running on empty and I have way too much going on this week. Part of my problem is that I get really stuffy in my room.. The carpet on the second floor, including our room is really, really old. The padding is breaking down and there's just a lot of dust. No amount of vacuuming can address it. We've thought about ripping it out but the flooring underneath would require a great deal of work. I'm so tired and we have to be at a cookout around 1 PM. That's not a bad thing…

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At least his arm isn’t broken

One of the joys of Autism Parenting is trying to figure out when something is wrong with your kid on the Spectrum. Communication issues abound and it can make things more challenging. I had to take Emmett into urgent care for x-rays this evening. About a week ago, Emmett fell at school and scraped his knees. We knew about that but he never told us he hurt his right arm as well. I only learned about his arm a couple of days ago. Emmett has major Sensory Processing challenges and it impacts many areas of his life, his interpretation of pain happens to be one of them. He's been in pain for over a week now but never told us or even showed any signs of being in pain. When…

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