IVIG Infusion Archives - Page 167 of 181

My youngest just hit double digits

Our day was fairly nonstop and I didn't get a chance to post this eariler. Better late than never. Emmett turned 10 years old today and he had a great birthday. We try to plan far enough in advance that we can pull things off. Anyway, Emmett is obsessed with Nerf Guns and he got what he calls the ultimate Nerf Gun today. Apparently, we did good. We had a busy but mostly low key day. We decided to celebrate his birthday in the early afternoon. It was pretty simple but it made him happy and that always feels good. We had ice cream cake before he opened his birthday presents. There were a few appointments this afternoon but we were done about dinner time. I cooked a couple pizzas…

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June 27, 2018

Autism Parenting Insight / My thoughts

The countless reasons why my life as an #Autism Dad is so hard

As Autism parents, we all live in different worlds because Autism impacts our lives in very different ways. Some people have it pretty good and life is manageable, while others literally struggle to make it through each day. Many others fall somewhere in the middle. I fall into the category of struggling to make it through each day. I can't remember a day where I would sit back and say to myself, it was a really easy day today. In my life, easy days don't exist. I have an eighteen-year-old with the capacity of a five or six year old and that's anything but easy. Life isn't meant to be easy for anyone. If things are too easy, we can become complacent, and perhaps take things for granted. When things…

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June 26, 2018

My thoughts

We keep trying and that has to count for something, right?

So far, this is summer break has been pretty decent. We've been trying to spend as much time outside of the house as possible and because we can't spend that time in our yard, we have to find places to go. Money's tight but we're finding things to do that are either super cheap or even free. Last Friday, we took the kids to see Jurassic World: Fallen Kingdom as a surprise for Emmett's birthday, which is actually tomorrow (6/26/2008). It was a really awesome time and everyone had fun, especially Emmett. Lizze and I were so happy to be able to do this for both him and his brothers. ☺ We've spent a lot of time out at our local parks and we're trying to go walking every evening.…

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June 25, 2018

My thoughts

I’m super excited about this

It's not too often that I can pull off an actual surprise. Between the financial hardship and my inability to keep a secret from my family, it's not easy. I've managed to somehow keep a secret from the boys and aside from Lizze, they don't know a thing. In the morning, we're taking the kids to see the new Jurassic World movie as an early surprise for Emmett's birthday on Tuesday. He's been wanting to see this since it was announced.. I'm super excited to surprise him and his brothers in the morning.

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June 21, 2018

Autism Parenting Advice / Inspirational Posts / My thoughts

The #1 most important thing we need to balance as #Autism parents and it’s not what you think

One of the more difficult things an Autism family can deal with is going out in public. This has nothing to do with shame or being embarrassed. It has to do with not expecting more from a child then they are capable of. Kids and adults with Autism can often struggle from things like Sensory Processing Disorder and anxiety. These can make going anywhere, very difficult for them. As parents, we don't want to put our kids through anymore then we have to and so many times, we avoid going places. While that tends to make life easier in some ways, it makes it harder in others. I've said this a million times but when you're an Autism parent, problem solving is often very complicated. It's not easy to find…

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June 21, 2018

Gavin / My thoughts

3 extremely important updates you missed

I've been slacking off in the writing department lately and I apologize for that. In order to get everyone caught up on the last couple of days, there are 2 important updates to share. I'll begin with yesterday's emergency appointment with psychiatry. Gavin has been extremely lethargic for the last couple of weeks. We were pretty sure it was tied to his Clozapine (the antipsychotic used to treat his Schizophrenia) but since nothing has changed in over a year, it also didn't make sense. We met with his psychiatrist yesterday afternoon. After they heard what was going on, they got us in right away. Unfortunately, they were also about 2 hours behind and that sucked but on the bright side, we ran into one of Gavin's old friends and his…

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June 20, 2018

Autism Parenting Woes / Gavin

When your child has no filter

One of the toughest lessons I've failed to teach Gavin is that you don't need to say out loud, everything that pops into your head. This has been an ongoing struggle for most of his life and no matter how many times I've talked to him about it, nothing ever changes. This isn't necessarily unique to Gavin. I've heard from countless Autism parents over the years, who face the same struggles. I'm not in Gavin's head and while I can somewhat predict what he's going to say, I can't say that I understand why he says it. At best, the thoughts he says outloud are mildly inappropriate and said in the privacy of our home. At worst, the thoughts he says are horribly inappropriate and said in a very public…

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June 20, 2018

Gavin / My thoughts

The single biggest reason I’m worried about our emergency psych appointment today

Lizze and I reached out to Gavin's psychiatrist's office because we're growing increasingly worried about his worsening level of lethargy. I mentioned eariler that they were our first stop because if this is medication related, it's probably the Clozapine. Since they manage the Clozapine, it makes sense to begin there. My email was returned within minutes and we got an appointment right away. I'm not sure if that's just convenient or both convenient and scary. It's impossible to get into Gavin's doctor and we literally received an appointment for the same day, scheduled for about an hour after I sent the email. I don't think there's anything medically significant to worry about there is still one reason to be very concerned. We could end up having to either cut back…

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June 19, 2018