Read more about the article Should I worry about this, because I don’t know
Gavin / My thoughts / Schizophrenia

Should I worry about this, because I don’t know

Gavin and I went to get the damages to the car looked at today. Incidentally, there was over $1,500.00 in damages because some asshole felt the need to fuck with our car. That's really frustrating but at the end of the day, the car is a thing and what I'm about to share with you is so much more important. While we were on the way to have the car looked at, Gavin unloaded everything that had recently happened on me. You've heard of people having a dream inside of a dream right? I don't know how common that it but I've had dreams inside of a dream before, as have many others. The reason I ask is because understanding that will help you to better wrap your brain around…

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October 16, 2017
Read more about the article Confessions: So this happened today
Confessions / My thoughts

Confessions: So this happened today

This is one of those really honest posts and I only share it to put our lives in better context, as well as showing others that they aren't alone. This morning started off on a great foot, but has gone down him rapidly since. For the first time in a long time, we have had our gas shutoff. My account is really screwed up at the moment. Some of if is my fault and some of it is billing on their end. When I paid on my bill about a month ago, and accidentally paid $865.00 instead of $86.50, my bank eventually reclaimed the funds for me. The gas company see that as I paid $865.00 and the check was returned. While technically that's true, I accidentally paid the incorrect…

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October 16, 2017
Read more about the article Dare I say it?
My thoughts

Dare I say it?

Dare I say it? It seems like we're starting the week off in the right foot. Everyone is relatively cooperative and in a halfway decent mood. The only thing on the agenda for today is taking the car in and getting an estimate on the cost of repairs from the bizarre damage that was inflicted while it was parked in front of our house. Hopefully that will go smoothly. On a side note. I scoured through 240 hours of security video to see if I could figure out what happened to the car. Unfortunately their was a glitch in the camera and I lost most of last weeks footage. Either way, we should hopefully have a check cut today in order to cover repairs, minus our deductible of course....

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October 16, 2017
Read more about the article We all get a break from each other today
My thoughts

We all get a break from each other today

The boys are going to spend some time with Lizze's parents today. This is good for the boys and good for us. It's good for all parties involved. ☺ Over the last few weeks, we've not had a break from the kids and they've not had a break from us. A little distance will be a positive thing. I don't think Lizze and I have any plans because she's still sick and feeling like poo. Sleep is most likely what's on the agenda for us. I had nightmares all night for some reason and feel like I didn't get any sleep. I'm also thinking that we need to get Lizze in to the doctors in order to make sure she's okay. I'm getting worried at this point.

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October 15, 2017
Read more about the article I feel so helpless
Gavin / My thoughts

I feel so helpless

I'm really getting worried about Gavin. He's definitely slipping in several key areas of his life, despite how hard I know he's trying. 🙁 It breaks my heart to see him struggle the way he does. Saturday was a ton of repetitive talking and question asking because he couldn't remember a great of what was going on. I'm not sure how else to explain it. He would ask a question, to which he'd already been told the answer (often several times), and when I answered him again, it was like the first time he was hearing it. I feel so helpless because there's nothing we can do to prevent, slow down or put a stop to this downward spiral of cognitive ability.

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October 15, 2017
Read more about the article Maybe it’s a #Depression thing
My thoughts

Maybe it’s a #Depression thing

My major accomplishment today is doing Gavin's IVIG infusion. I'm gonna be honest and say that the bar is set pretty low at the moment. I'm feeling rundown and sorta just blah.. Maybe it's a depression thing or maybe it's because everyone's been stick and it's taking a toll. Either way, I'm going to push myself to get some things done around the house today.. ☺

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October 14, 2017
Read more about the article Now his mattress is uncomfortable
Emmett John / My thoughts / Sensory

Now his mattress is uncomfortable

It was a rough night because Emmett isn't comfortable for him anymore. He says it hurts his ribs. I'm not sure what that means or how that's possible, but it seems to be a real problem. I'm thinking it's sensory related, that much is obvious but what I don't know is why now? It could be as simple as too much change in a short amount of time. If you think about it, he slept in four different beds while we were on vacation. Maybe that messed him up just a bit?

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October 14, 2017