Elliott was kind enough to allow me to take a picture of his latest drawing. This is what he remembered a Sugar Skull looking like. He didn't have one to refer to so he relied solely in his memory. Lizze loves Sugar Skulls and that's why Elliott decided to bust this one out this morning.
I haven't spoken much about this since I originally shared it but Ohio has a new school attendance policy. It's aimed at reeling in the chronically truant, but ends up overreaching because it's a blanket policy, regardless of circumstance. We received a warning letter last week because according to the new policy, Emmett can only miss one more day of school for the rest of the year, excused or otherwise. That's my understanding anyway. Both boys missed 8 days while we were in Florida on Gavin's Wish Trip and those counted against them. Emmett missed 4 or 5 days before that when he had a respiratory infection, giving him a total of 13 missed days. The State of Ohio isn't taking into account that kids with special needs are going…
After a nice power nap, I'm feeling so much better. The boys are still getting along and Gavin seems to be doing okay. He's still off but as far as major problems go, we aren't seeing anything significant. I still want to try and get the kids to the park but I'm not sure anyone really wants to go but I'm hoping we can at least go to the garden center for a little while. In all honesty, my weightloss journey has been off track since our trip and I'm really trying to come tiny moving forward. I'm getting back into strength training but rather than free weights, I'm using TRX. I'll share more about that in a bit. The whole point is that I'm trying to get things back…
I had a rough night trying to sleep. There wasn't anything particularly wrong, aside from I went to bed with a headache and kept waking up because of it. Both Elliott and Emmett were up super early and were the cause of any awake time after 5 AM. In the image below, you can see my sleep as monitored by BioStrap. This health band tracks all kinds of things: Heart rate Heart rate variability SPO2 (Oxygen Saturation) Respiration Sleep Steps Workouts Anyway, I thought I would share the results of last night's sleep. It's pretty interesting to look at and it helps to put into context, sleep issues one might have. I really like the Biostrap and it's one of my main tools in my selfcare arsenal.
You all know about our recent trip to Florida. Gavin had a wish granted and we ended up five States away from home for about ten days. The trip was amazing and you can see all the pictures here. One of the biggest concerns the boys had about leaving was our fur covered family members. Maggie was being boarded and our cat pretty much takes care of himself. The kids were very worried about our foursome of ferrets. The ferrets are very special and the boys have never really been away from them for more than a day. https://youtu.be/EOmo0LyGbQQ While my Mom was dropping by to take care of them, I decided to use one of our Ping Cameras to monitor the ferrets 24/7. The Ping Camera is part of…
The boys had a pretty decent day. They spent some time playing in our family Minecraft Realm. I can play on the Xbox while they join in from their tablets. It's a lot of fun and we can all work together. We didn't go anywhere because Lizze wasn't feeling well and the boys wanted to stick close to home. I think we're going to go Pokémon hunting tomorrow though. It'll get everyone some exercise and the boys will have some fun. I'm hoping Gavin will be going okay, so he can enjoy himself if we make it to the park. Gavin had a decent day today but clearly struggled. With any luck, Sunday will be a good day. ☺
It's way too early for Christmas lights, isn't it? Christmas lights and decorations are already being put up at the Canton Garden Center. It seems like it's a bit too early for that. Christmas is coming soon enough. Let's not rush it...
I'm looking at this as a blessing but it's also kinda interesting at the same time. With all the challenges Gavin faces on a daily basis, including memory loss, cognitive decline and a bunch more, he's still doing well in some areas. This morning Gavin had his IVIG infusion and was able to put it all together, without any noticeable problems. It's not really that complex but the fact that he was still able to put all the pieces together, and draw up his medication, is a good thing. I find this interesting because there are very simple things that Gavin is unable to do anymore. Putting his IVIG infusion together is more challenging and he can still do it. Good job Gavin.... ☺