The doctors office called this morning with Gavin's lab results and they were correct the first time. All his numbers are down and it's not looking good. Please keep Gavin in your thoughts and prayers. Maybe keep Lizze and I in there as well because we have some very difficult decisions to make this afternoon. Trying to stay positive.
It's been the longest day ever. I've been waiting for the phone call to deliver the news about Gavin's lab results but that call never came. Unfortunately, this isn't one of those no news is good kinda things. This is one of those the lab didn't fax the results or the doctor just didn't call kinda things. We'll know this afternoon for sure but the wait is killing me. I need to know what's going on with Gavin and not knowing is killing me.
I'm waiting to hear back from the doctor in regards to Gavin's lab results. The only way I can explain how excruciating this wait is for would be to relate it to a young child on Christmas Eve. Maybe that's a bad example. It's not the excitement but rather the extreme anxiety of knowing it's coming but having to wait. I swear to God I age five years each time something like this happens. 🙁 I'm trying to remain positive because it could very well be temporary good news. I just have this sick feeling in the pit of my stomach and I can't seem to shake it.
One of the things I hate most in life is waiting. We all have to wait for things but waiting for medical test results, especially when it's serious and in regards to your child. I've said this a million times over the years but all we can do now is hurry up and wait. Gavin's labs should be done this afternoon and we'll likely hear from the doctor mid-afternoon. All I want to hear is that his numbers are climbing back up and everything is going to be okay. Unfortunately, even if that's the case, we still don't know why this keeps happening. I'm exhausted, stressed out, worried beyond belief and overwhelmed by everything. It's truly awful when all you can do is hurry up wait.
Gavin's going to have his labs drawn again this morning, in hopes that the previous results were in error. You may remember that I received a call yesterday, delivering the bad news that Gavin's labs came back and the numbers were not good. I'm really nervous about what the results are going to be. The only thing that has changed since yesterday is that the doctor called back and scheduled Gavin for an emergency appointment on Thursday. The plan for this morning is a bit chaotic. I have to get Emmett to school, drop Lizze at the doctors, take Gavin for his bloodwork and pick Lizze back up. Somewhere in there I'll have to stop gas. I'm praying that Lizze doesn't have walking Pneumonia and that Gavin's labs are better.…
I implore you to please take a moment, grab your kids and watch this brief video about anti-bullying. It's truly amazing and you won't believe who it's from.. https://youtu.be/mnKPEsbTo9s
I received a phone call this morning from Dr. Reynolds office. I assumed they were calling to move our appointment again but I was wrong. Apparently, Gavin's labs from yesterday came in and his numbers are dropping again. Right before we left for Florida, he had labs drawn. His Absolute Neutrophil was 3 and his White Cell count was 5 at the time. Unfortunately, his labs from yesterday show a sharp drop. His Absolute Neutrophil is 2 and his White Cell count is 3. This means one of four things: The Clozapine has nothing to do with this. The Clozapine is causing this and he's going to have to completely detoxed from it to know for sure. The Clozapine may had caused permanent damage. This is part of CVID and…
I didn't sleep worth a damn last night. I managed to fall asleep shortly before the alarm went off. Lizze sent me back to bed because she's amazing. Next thing I know, I'm being drafted into a massive battle with Emmett, who's refusing to go to school again. This was the worst morning he's had in a very long time. It was his crocs that were the problem today. He simply couldn't get comfortable and longer this went on, the worse it got. Between several calls to the school and the principal getting on the phone to try and talk Emmett through this, we finally got him in the car. Unfortunately, by that time, we were almost an hour late. I'm more exhausted now than I was before, only I…