Today's appointments have me completely and utterly exhausted. Everything is okay with the kids and it does appear that Elliott is dealing with a fever disorder, pending some extensive labs. I'll fill you in on the details but while everything turned out okay, but the there were some problems. For now, here are some pictures from our day.. [foogallery id="67370"]
Gavin's appointment with Dr. Reynolds went as good as it really could have. He's doing about the same and so there aren't any changes at this point. We're going to monitor his labs once a week from this point forward and try and keep everything the same until we get into Hematology. I don't know. Perhaps this is part of what's eating me alive? I'm so worried about Gavin and it's exhausting. I need to cope a little better because things aren't likely to get better, The reality is that things will only get worse as time goes by. I have to be able to deal with this in a healthier way. For right now, I'm focusing on the fact that Gavin is doing okay. I'm grateful for that and…
I'm so fucking stressed out today and I'm not sure why. We didn't get off to a good start this morning but there are plenty of mornings like that and I don't feel like this. I'm completely frazzled and don't even want anyone talking to me. It feels like everyone around me is going in slow motion and I'm in a big hurry. This is all on me but I don't know what triggered this. I've only had a few actually anxiety attacks in my life and perhaps this is one of those. Absolutely everything feels insurmountable and there's this overwhelming sense of impending doom or that I forgot something extremely important. I feel like I'm going crazy and my body is shaky. The reality is that I'm depressed, exhausted,…
The boys had a horrible morning. There are some days that as a parent, Autism kicks my ass up one side of the street and down the other. Today is one of those days. Elliott sorta worked through his struggle but Emmett was another story all together. Poor Emmett wouldn't wear a shirt and it took until after 8:30 AM to get him in the car. By that time, they both missed breakfast at school and that only compounded the issue. I think a large part this mornings nightmare was the result of anxiety related to getting his flu short this afternoon. I know that was the case for Elliott as well. Emmett spent all his resources trying to cope with his anxiety surrounding his pending flu short, that he…
It's such a fine balance when it comes to telling a child with Autism something that's' going to cause any type of anxiety. It doesn't matter if the anxiety is waiting for a package to show up in the mail or knowing they are getting a flu shot. Speaking to my personal experience, my wife and I try very hard to limit situations like this whenever possible. There are times in which it isn't possible or we make the mistake to saying something a head of time with the goal of preparing them for an upcoming event, either good or bad. We are currently dealing with two kids who are terrified of getting their flu shots. most kids don't like shots but they are a very important part of maintaining…
The boys have been playing Knack II this weekend. Emmett decided to do something nice for Elliott by drawing him a picture of Knack. This was so sweet of him and I love seeing the kids doing kind things for each other. ☺ 💙
It's going to be a crazy chaotic kinda day. The boys go to school in the morning, and I immediately take Gavin for his blood work. From there we head straight to Dr. Reynolds office to follow up on Gavin's labs and decide if we are going to pull the Clozapine. Shortly after we finish up there, we have to pull the boys from school and head to Cleveland for an appointment with their immunologist. Emmett's appointment is a follow-up, as is Gavin and Lizze's. Elliott's is a follow-up as well but with the added issue of his near constant fevers. I'm not sure how that's going to go. After that, all four of them will likely get their flu shots. As I'm not a patient there, I'll be going…
I'm getting frustrated because my two sensory sensitive kiddos are not eating anything we have in the house, aside from Goldfish crackers. This is so frustrating because we have a decent amount of food in the house and they won't eat any of it. Last week I spent $200 at the grocery store and for whatever reason, none of it is palatable to them. I should stress that they aren't being difficult for the sake of being difficult. This is the result of sensory processing disorder and I'm not mad at them for this because it isn't their fault. At the same time however, I'm still frustrated and if I had any hair left, I'd be pulling it out. Knowing it's not their fault doesn't necessarily make it any easier…