Insomnia Archives - Page 153 of 353

3 reasons I’m feeling incredibly blessed today

It's no secret that my life is hard. It just is. It's no secret that I struggle at times. I just do. It's no secret that if it weren't for bad luck sometimes, we wouldnt have any luck at all. It's how I feel. Having said that, there are times where I feel extremely lucky or even blessed and today is one of those times. There are currently three reasons why I'm feeling so blessed right now..and here they are. Work Money's really tight since some recent changes to my income occurred. When I mean tight, I mean I can have less than $10 to my name at times. I'm not proud of that but it is what it is and I know I'm doing the best I can. I…

6 Comments

August 30, 2018

My thoughts

. @GaiaWearables is looking to prevent #Meltdowns and they need your vote

Hi everyone! We need YOUR help getting selected to host a panel on how technology can empower the autism community at the South By Southwest Conference 2019. Our team, GAIA Wearables, intends to create wearable technology that can prevent meltdowns amongst children with autism. At the moment, the only wearables intended for the ASD community are reactionary, prevention is the next step. The hope of this panel is to not only explain and expand upon the effectiveness of preventative technology, but identify how such technology could launch the entire community into a future of unprecedented, personalized treatments. This panel is really important for us to continue leading provoking conversations within the autism tech world. In order to be selected host a panel and participate in this conference, we need be…

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August 28, 2018

Inspirational Posts / Mental Illness / My thoughts

Getting help for #mentalillness is NOT weakness

I've been very open about my struggles with mental illness and I'll continue to be that way. There's absolutely no shame is struggling with mental illness. Getting help for mental illness is also not a sign of weakness. It's 2018 for God's sake, you'd think this would be more easily understood but sadly it's not. Unfortunately, there's still a great deal of judgmental and ignorant people out there. They are critical of what they don't understand and nothing you or I could say will change that. I think we've made progress in mainstreaming the discussion of mental illness but we have a ways to go. If you're struggling with a mental illness, please don't be afraid to get help. Admitting you need help is NOT a weakness. The only weakness…

2 Comments

August 28, 2018

Fit4Autism / My thoughts / Self-Care

I remain totally committed

It's a really hot say here in the Hall of Fame City. There was loose talk yesterday of canceling school because there's no a/c and the school essentially transforms into a giant kiln. Apparently, they opted not to cancel class and we sent the kids with extra water. I wasn't able to go walking until about 10:30 AM because Lizze has a standing appointment every Tuesday morning. It was definitely hot when I got to the park but not as bad as I had thought it would be. The humidity was only 50% and so it was more of a dry heat. I did just fine and finished up in time for lunch. ☺ I'm really finding myself committed to walking each day and I feel better since I've been…

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August 28, 2018

Akron Children's Hospital / Cleveland Clinic / Gavin / My thoughts

Gavin’s health isn’t doing so well

I've had a very busy afternoon of scheduling doctors appointments for Gavin. I bounced back and forth between Akron Children's Hospital and The Cleveland Clinic for what seemed like an eternity. After all the calls, I only ended up with one appointment so far. On September 4th, Gavin will return to his neurology specialist at The Cleveland Clinic. Normally Gavin goes there for his autonomic disorder and epilepsy but this time around is different. Gavin has been telling us that his legs aren't working right. We haven't been able to get more reliable information out of him but it sounds like his legs are giving out. We haven't seen him fall but it seems like he's having issues with his legs supporting his weight. That's a problem. We don't know…

5 Comments

August 27, 2018

Common Variable Immunodeficiency / Gavin / Immunology / IVIG Infusion / My thoughts

It’s been a rough morning for Gavin but he totally surprised me

It's been a rough morning for Gavin. I didn't see too much of him until after I got home from taking the boys to school and getting my morning walk done on the way home. When I arrived home, Lizze was watching him get his IVIG infusion ready. I could see from the moment I walked in that he was not in a good place. Sure he was pleasant and polite as always but I could see he was struggling to stay on the road. He got his infusion going and returned to his bedroom sanctuary to wait the process out. Before long, he was back downstairs because one of the infusion sites was leaking a tiny bit. Gavin has historically not done well with problems arising during one of…

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August 27, 2018

Artwork / Emmett John / My thoughts

I love when my kids with #Autism embrace their inner artist

Emmett came home from his grandparents freaking out about a Pokémon card he got at the dollar store. I guess it's a really good one and it's totally changed his life or something to that affect. Bottomline, he was incredibly happy and very excited. He then decided to sit down and do a freehand sketch of the Pokémon on the card. Please don't ask me who it is because I have no idea. All I know is that's he's happy and that makes me happy. ☺ I think he did a pretty amazing job. I truly love when my kids embrace their inner artist.. ☺

4 Comments

August 27, 2018

Inspirational Posts / My thoughts

There are times I feel like quiting but this is why I don’t

Life is hard sometimes. I think most humans would agree with that. We all have limitations and life likes to test those. As an Autism parent, life and sometimes feel impossible. Between the therapies, appointments, meltdowns, sleep deprivation and countless other things, it's easy to become so overwhelmed that quiting can begin to make sense. It's so hard to find the time, energy, desire or motivation to care for one's self when you're already so busy taking care of everyone else. I'm making a serious effort to take better care of myself and walking everyday is one of the ways in which I'm doing that. The last thing in the world I felt like doing this morning was walking. The kids were gone and I could sleep in but I…

2 Comments

August 27, 2018