It’s a good news kinda morning

Elliott made his return to school this morning. He's been sick for the last few days and has been home as a result. Lizze and I were planning on having to work with him in order to get him to go today but he went without a word. We're very proud of him because situations like can be stressful and produce anxiety. I took the boys to McDonald's on the way because they did awesome this morning and I wanted to reward that. ☺ On the way home, I stopped and got my walking done. I've gone everyday this month, rain or shine. I'm already pushing 40 miles since the first of September. I'm doing really awesome so far and I'm hoping to beat last month's 52 miles. I'm feeling…

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What do you do when not everyone in the class is invited?

Emmett came home from school today in a really good mood. This was a pleasant surprise because he had to go to school without Elliott and doesn't always do okay with that. When Emmett climbed into the car after existing the school, he said Dad, I need you to interpret something for me. Emmett will sometimes do this when he doesn't understand an interaction he's had with someone. Social cues aren't always his thing, much the same as many others on the Autism spectrum. Turns out the issue was pretty simple. Someone in his class is having a birthday party and Emmett got an invitation. He was clearly excited but also troubled at the same time. Emmett says he doesn't think everyone in the class was invited. He overheard his…

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Another long and trying day

It's been a long, trying day here in The Autism Dad household. With three of us sick, things have been more challenging than normal. Poor Elliott is still running a fever as of midnight tonight and will not be in school once again. Truthfully, he'll probably miss the rest of the week. Emmett seems to be doing better and should be returning to school in the morning. Unfortunately, Emmett has a very difficult time going to school without Elliott. It's been a longstanding issue that we've never really been able to work through. We can usually get Emmett to school but not without a great deal of work, endless patience and a bit of luck. As long as he's feeling better, we should be able to get him to school.…

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Once upon a time when he could remember

As time goes by, it becomes more and more apparent that Gavin's entire state of being is in decline. One of the most impactful for him, at least from my perspective, is his memory loss. Memory loss is probably not the right word choice because it's more like unable to remember than it is losing memories he already has. The latest example of this is from a few minutes ago. Gavin is continuing to lose weight and his gastro put him on Ensure. He's supposed to drink one with every meal, totalling three a day. We've talked about it many times and he's specifically asked about when he was going to get the Ensure, so he can have one with each meal. There was a delay with his shipment of…

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What’s more challenging than a child with #Autism?

One of the few things more challenging than raising kids with Autism is raising kids with Autism while they're sick. Last night Elliott spiked a fever of almost 104 °F and Emmett began coughing and hacking. Elliott's home from school for the second day and Emmett's now home as well. Both are quite miserable. Miserable kids can be challenging enough but add in Autism/sensory issues and things get way more challenging. Kids with Autism tend to feel and experience things so much more intensely, especially when sensory issues are involved. Things like runny noses, stuffy heads, sneezing, coughing and headaches can be tough for anyone but forany kids with Autism, these are absolute nightmares. I'm still sick as well and life in general pretty much sucks right now. I've got…

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This is just 1 example of why being an #Autism parent is so exhausting

Today's been a nightmare. I didn't sleep last night and that certainly doesn't help things at all. Gavin had a doctor's appointment this morning, right after the kids needed to be at school. Unfortunately, Emmett woke up with a tummy ache, which usually is the result of some underlying stress. It's nearly impossible to weed through everything with him and figure out what's going on beneath the surface because he struggles with self-awareness. What I mean by that and perhaps I used the wrong term, is that he's not able to tell you what's upsetting him, how he's feeling or what he needs, especially when he's upset. It's very challenging because Emmett is can be very insightful when it comes to other people and their feelings but he's often unable…

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One less thing to worry about

Right after getting the boys to school this morning, Lizze and I will be taking Gavin to his psychiatrist. This should be just a follow up and the fact it's so close to his hematology appointment is purely coincidence. On the plus side, we'll be able to talk about what we learned while it's still fresh on my mind. This should put to rest our current concerns over the Clozapine, at least for now. With a medication like Clozapine, you can't let your guard down and you must remain vigilant with things like bloodwork. We basically learned that the side effects of Clozapine, specifically in regards his ANC dropping, isn't as big of concern as we originally thought. This takes a little pressure off because at this point in time,…

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