It’s been an incredibly long and heartbreaking day

I'm going to keep this super quick because I'm exhausted and if I can get the kids to fall asleep, I'm going straight to bed. It's been a really long day, full of tears and heartache. Yesterday I shared about a very difficult decision we might be having to make in regards to Zane, one of the boys service ferrets. You can check this link for the background. We took Zane back to the vet this morning and our worst fears were realized. Zane's back legs were now almost completely paralyzed and it was progressing quickly. He was much worse off this morning, then he was the night before. The vet explained that there were three possibilities. Unfortunately, all three possibilities involved tumors and none of them resulted in a…

3 Comments

My wife and I have a very difficult #Autism parenting decision to make

Lizze and I may have a difficult decision to make in the morning. As you know, our ferret Zane has been very sick. Over the last week or so, he seemed to doing better and we were all quite relieved by that. Unfortunately, we're noticing that his back legs now seem to be partially paralyzed, which indicates possible neurological problems. I spoke with the vet last night and he's going to see Zane at 10am. We will try and figure out what we need to do but any of the tests that would need to be done would likely be in the hundreds of dollars and there's just no feasible way for us to pull that off. Anyway, the vet is going to advise us if it's either something that…

5 Comments

Some things are just more important

I was supposed to go walking this afternoon, before picking the kids up from school. I stopped by the hospital to check on my grandpa and spend maybe 15 minutes before heading out. I was just there last night and I knew I didn't have a lot of but wanted to stop in and see how he was doing. Two and a half hours went by really fast. Rather than walking, I sat and listened to stories from his time in the service. He needed my time more than the track did. I did manage to sneak out after dropping the kids off at home but even if I hadn't been able to, it was still time well spent. ☺

0 Comments

Thoughts and prayers would be greatly appreciated today

Today is going to be a very big day for us as we're finally getting Elliott into the psychiatrist at Akron Children's Hospital. You may recall that the appointment was the first week of November but they moved it up due to a cancelation and Elliott's need. I haven't talked about Elliott's struggles too much because I'm trying to navigate invisible boundaries. The truth is, Elliott's miserable. As time goes on, it's getting worse instead of better. Elliott is struggling with depression and quite possibly bipolar disorder as well. We're going to get a better idea of what's going on and figure out how we can best go about finding him relief. We have some last minute paper work we need to collect from the school before going. We will…

3 Comments

It’s been a largely positive morning

Elliott and Emmett got off to a really good start this morning. They even helped with giving Zane his antibiotics. Lizze holds Zane, Elliott bribes Zane with fur-vita and Emmett squirts the meds in the back of his throat so he can't spit it out. The rest of the time, Lizze holds Zane and I give the medication. It's working pretty well and Zane seems to be getting better. ☺ We took the boys to school this morning and stopped by the park to walk. Lizze was able to do about 3/4 of a mile and we headed home. I'm going back out later to do my walk. Lizze is working through a tremendous amount of pain and walking or any physical movement doesn't come easy. I'm so proud of…

0 Comments

I have good news and bad news

It's Monday and while Monday's are no one's favorite day of the week, it's a fresh new start for me after a rough weekend. ☺ I want to begin the week with some good news. It's actually a good news/bad news kinda thing. Gavin has been struggling with weight gain for most of his life. At 18 years of age, he has been down to 117 lbs within the last few months. It's obviously concerning and no one really has any idea why he's not able to gain weight. His gastroenterologist prescribed Boost Shakes. He drinks one with every meal, meaning 3 times a day. He's been drinking them for the last 3 weeks and when he weighed himself this morning, he was up to 129.2 lbs. That up from…

4 Comments

It was more than I could cope with and I knew it would be that way going into it

Let me tell you something. Today has been one of the most stressful days I can remember. I spent the last few hours talking/venting to Lizze about everything weighing me down. It was my Dad's surprise 65th birthday. My Mom arranged for a family dinner at PF Changs. This is a pretty nice restaurant and it's about a 35 minute drive from our house. Not a huge deal. Lizze was not well today, so I flew solo with the boys and that proved to be a little much for me personally. Elliott was struggling with impulsivity, a lack of a brain/mouth filter and the long wait to eat. While it drove me bonkers, he wasn't really doing anything wrong. I was just not coping very well. Gavin did pretty well…

4 Comments

It’s crushing to hear your child say they feel dead inside

We had a pretty rough evening with Elliott. I don't talk about this a great deal but he's seriously struggling and it's absolutely breaking my heart. He has very little control over his emotions and seems to cycle through the full gamut in a very short period of time. I think at the very least, we're looking at serious depression. He's on antidepressants but they don't seem to be helping much. He's in individual therapy as well and he finally gets into Akron Children's behavioral health clinic in a few days. I want so desperately to help him and in order to do that, we need to get help. During tonight's episode, he told us that he feels dead inside. He's also told that he doesn't feel loved or taken…

6 Comments