As an #Autism parent, why don’t you get a break?
We've established that #Autism Parents aren't getting the breaks they need. The next question is why. Why don't you get the breaks you need?
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January 15, 2018
Doing right by Gavin for his 18th birthday isn’t as easy as it sounds
Gavin will turn eighteen in a few days. To be honest, that's a pretty big deal for a number of reasons. The most obvious is that he's physically made it to eighteen and I say that because of his fragile health. He's had some close calls over the years and there were times we weren't sure we would ever see this day. Instinctively, we want to make a huge deal out of this day. We want Gavin to have the best birthday of his life thus far. There are so many things that Gavin will never be able to celebrate. Things like high school graduation, getting his driver's license, going to college and truly living on his own. As much as we want to through a huge party for him…
January 14, 2018
Ruby fell asleep on my lap
So I've found a new subject for my amateur photography hobby. Right now I'm loving taking pictures of Ruby. For one thing, she's adorable and the other is she's super cooperative. ☺ The ferrets are impossible to photograph clearly because they never stay still. I need a way better camera to capture them. Perhaps someday... ☺ Anyway, I took this one of Ruby while she was napping on my lap this afternoon.
January 14, 2018
When your child with #Autism turns 18 and you need to obtain legal guardianship
Gavin will be turning eighteen years of age on January 18th. Unfortunately, he's unable to survive on his own and is also unable to make his own decisions, at least not without major help. His cognitive ability is continually declining and we have no choice but to seek permanent guardianship over him. We've never been through this process before but have acquired the paperwork and have the appointment with his psychiatrist to fill it out. I hate the idea of having to do this but it's unquestionably in Gavin's best interest. My goal is to share this new journey and help provide insight into this process. It's important to understand that not all kids with Autism will need something like this when they turn eighteen. Gavin is severely cognitively impaired…
January 14, 2018
It’s worth swallowing my pride
I weighed myself today and I'm down two pounds. It's important to understand that whole this is a good thing, I actually gained over the holidays. I actually hit 333 lbs over Christmas. I'm not entirely sure what happened but part of that was poor choices and the minor surgery I had in my back right before the holidays. Anyway, I've been watching what I eat, when I eat it and I'm trying to be more active. As a result, I'm once again moving in the right direction and I feel good. I'm fucking sore from working out but I feel good. The one thing I'm really trying to focus on has to do with eating late at night. It's usually stress related and hard to resist but I'm really…
January 13, 2018
3 pictures of moments that made me smile
We all have our good days and our bad days. Yesterday was a blend of both good and bad but there were also some bright spots as well. I wanted to highlight a couple of these bright spots because they made me smile. First up is courtesy of Mr. Gavin. His new IVIG infusion pump finally showed up and he was able to use it for the first time tonight. He was excited and it was a pretty good infusion.. ☺ Gavin killed me with his super serious face but whatever... He's happy and that makes me happy. ☺ The final bright spot took place much later and was signed, sealed and delivered by Mr. Emmett. I mentioned in the previous post that Emmett wasn't feeling well last night. He…
January 13, 2018
It’s so easy to forget he struggles to express himself
There's something that is often overlooked when it comes to Emmett. He's incredibly intelligent and I mean scary smart. Academically he's way ahead of where he should be and just keeps going. This is something we feel blessed to be able to witness but there is a downside. Emmett is so smart and so articulate that it's incredibly easy to forget that he has a very, very difficult time with expressive language. Majority of the time, he's unable to tell us anything about how he's feeling or what's upsetting him. Tonight is a perfect example of this. Lizze and I are catching up on some shows we recorded and out of nowhere, Emmett appears. We can see he's in distress but the only thing he can say is I don't…
January 13, 2018
It feels good to hurt like this again
I'm working in getting my fitness goals back on track. The holidays were rough and so were the first couple of weeks of withdrawaling from Paxil. As I'm feeling better, I'm trying to make a consistent effort to get things back on track. There are a few key areas I need to focus on: Improved sleep (both duration and quality) Increasing my activity level Further fine tuning a more healthy diet Strength training As far as sleep is concerned, there's only so much I can do at this point in time. Most Autism parents struggle with sleep as well and there isn't always anything that can be done. Having said that, I want to make the best out of the hours I do get and make them as beneficial as…
January 12, 2018
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