GAMMAGARD Archives - Page 23 of 94

Today’s MASSIVELY AWESOME Victory

Today marked the third time in a row that Gavin has done his own IVIG Infusion, start to finish. I can't tell you how proud of him I am. When I look back 5 or 6 years, I remember how much he struggled with needles. It would literally take half a dozen people to draw his blood. The experience was awful for all of us but especially for Gavin. Now he goes in and has his bloodwork done on his own while I wait in the car. The last major obstacle he needed to overcome was starting his own IVIG Infusion and that required placing the needles into his belly. He's wanted nothing to do with that until recently. For the third time in a row, Gavin has done it…

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December 1, 2017

Autism Parenting Insight / My thoughts

Here’s what’s stressing me out today

No one's life is perfect and I'm certainly claiming mine is worse than yours. I'm simply sharing what is causing me a great deal of stress. Being an Autism parent is stressful enough on the best of days and unfortunately, there aren't too many the best of days. Between lack of sleep and the demands of three special needs children, life can feel unfairly challenging. Ironically though, what tends to stress me out the most are the things that could be considered everyday problems. Things like dealing with my mortgage company selling the mortgage to another mortgage company how is a nightmare to work with. I've been trying to make a payment for two months now and they keep screwing it up. I've authorized payment 4 different times in November…

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December 1, 2017

My thoughts

A great start

It was one of those mornings where Lizze and I slept in a little later than we should have. Once we got moving, the boys did well and off to school we went. Thank God the lunch plans I made for the boys last night worked out because I was worried about what they were going to eat for lunch today. I'm feeling really positive about the way we started the day. Hopefully, this trend will continue through the rest of the day. 😀

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December 1, 2017

Elliott / Emmett John / Feeding Problems / Sensory / Today's Victory

Today’s Victory: They tried new food tonight but did they like it

I picked the boys up from school this afternoon and both had a good day. I didn't hear any complaints about anything and I'm happy with that. ☺ On the way home, we stopped at Little Ceasars to pick up stuff for their lunches tomorrow but when we arrived, they were closed for remodeling. I don't know if something happened or if it was just a remodeling but either way, I wasn't able to get the kids the only things they'll eat in their lunches. Emmett has only been eating Little Ceasars Crazy Bread and Elliott is still only eating their pizza in their school lunches. The car still needs fixed and I didn't want to drive much farther because of it. I ended up ordering East of Chicago and…

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November 30, 2017

Autism Parenting Advice / Gavin / My thoughts

Big news and why I’m feeling blessed

There's no denying that we are facing many challenges in the Gorski household. We're facing some heartbreaking physical and emotional health issues as well. In the last post I shared about how Gavin was regressing and what we were seeing right now that truly broke our hearts. In this line of work, we learn to take the good with the bad. We celebrate the good and dig down deep to keep moving forward with the bad. I received a piece of amazing news that I haven't had a chance to share but it's important that I do because it shows what can happen when you fight for your kids. A few weeks ago, Gavin was scheduled for NeuroPsych testing at the Cleveland Clinic. This was extremely important because he is…

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November 30, 2017

Gavin / Heartbreak / My thoughts

That doesn’t make it any less heartbreaking

Unfortunately, I have some bad news to share. It's in regards to Gavin and the progression of his cognitive decline. Sometimes it's tough to discern when and where Gavin regresses. There are times when it's painfully obvious that there's been a change and other times it's more subtle. This is one of those times where it's painfully obvious that there's been a change. It might seem like a weird thing to notice but it's something that can impact him multiple times a day. Gavin can no longer remember the four digit code to unlock the front door. He's known it for years and it's not changed. He will get to the door and just stand there because he no longer knows what to do. This has been going on for…

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November 30, 2017

Elliott / My thoughts

He has to learn that actions have consequences

We're having some problems with Elliott at school. It's not so much a major problem yet but it is being problematic and what happened yesterday is a perfect example. I'm not going into detail on this because the specifics don't matter and are way too tedious to recount anyway. Essentially, the problem is that Elliott is coming home from school reporting problems and when I speak to his teachers about it, their story is very different than Elliott's. Someone's got to be lying right? Not necessarily. What we're seeing is that Elliott latches onto one or two words he hears and filters out everything else. That everything else is the context surrounding the words he's latched onto. He also focuses on what happened to him and filters out all the…

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November 29, 2017

My thoughts

Our plans have changed for this week

We're having to adjust our plans for this week because of unforeseen car trouble. I mentioned the other day that the car needs at least new brake pads on the front end and bearings on the front driver side. This will all get fixed next Monday and hopefully, we don't need new rotars as well. As a result, we aren't traveling very far right now. To and from school, as well as Dr. Pattie's and back. Both are very close and can reached via back roads. ☺ The car is safe to drive but the pads have started grinding into the rotars and really don't want to have to replace those as well. Plus the sound is horrible and it feels like I'm killing the car every time I use…

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November 28, 2017