GAMMAGARD Archives - Page 14 of 94

His IVIG infusion had him in tears tonight

We officially put Christmas behind us this evening and began the sorted journey of getting back to our normal routines. In Gavin's case, that meant he had to do his IVIG infusion, which he does every Monday and Friday. Unfortunately for Gavin, his IVIG infusion didn't go so well. He started the process about 6 PM and immediately hit a few bumps in the road. The first infusion site needed to be replaced because it wasn't working and the second infusion site was leaking. Both of these scenarios are nightmare scenarios for Gavin because it involves more needles and more pain. To make things even worse for him, the procedure ended up taking almost 6 hours. This put Gavin several hours passed his self proclaimed bedtime and that had him…

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December 26, 2017

Feeling Blessed / My thoughts

A better Christmas

We had a pretty amazing Christmas this year. Lizze and I got to bed at a somewhat decent hour of 2 AM, right before Emmett woke up. He ended up sleeping between Lizze and I because it was the only way he was able to fall back asleep. Our morning went smoothly and the boys all had an amazing Christmas. Everyone is happy and we spent time with both sides of our family. If I'm being completely honest, I don't think I could have imagined a better Christmas. We're all exhausted and will likely spend most of the week recovering from the busy weekend. The next few days will probably be a bit on the rougher side of things as the kids begin to decompress from all the festivities. I'm…

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December 25, 2017

My thoughts

I’m doing okay today

I'm having a pretty good day. I was sick for a little while but I'm up and moving now. I don't want anything to do with food but that's okay. We're currently at my in-laws and having a nice visit. The idea is to keep things brief because the kids are already on edge and we need them to sleep tonight.

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December 24, 2017

Autism Parenting Insight / Meltdowns / My thoughts

Holy Shit! Can you say overstimulation?

Lizze and the boys came home well after bedtime and my God were the boys wound up. Elliott and Emmett were bouncing off of everything, while Gavin was like a walking zombie, desperately wanting to go to bed. Elliott was somewhat manageable but Emmett went from hyper to raging. It was painfully obvious that while they had an amazing time, they were also completely overstimulated. Poor Emmett ended up having a massive meltdown a little bit after 10 PM and it was a doozy. I don't think he even understood why he was so upset. Mr. Elliott will usually try to help cheer him up, only to make things infinitely worse. Thankfully, Elliott stayed out of it for the most part and I give him credit for that. Emmett was…

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December 24, 2017

Gavin / My thoughts / Schizophrenia

Is this a new hallucination or just a dream?

Gavin's been doing okay as far as his Schizophrenia is concerned. We see the obvious symptoms every single day because they've never been completely controlled. Thankfully, Gavin's hallucinations are not as dark as they used to be and they used to be really dark. I never know what to think when he tells me about a dream because it could very easily be a hallucination and he simply wouldn't know the difference. Today he informed me that he'd just saved Christmas from the clutches of evil. He didn't go into any further details, so I'm not sure if it was a dream or a mission. Color me intrigued because it's different than I normally hear from him and I'd actually be interested in hearing the rest.

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December 24, 2017

My thoughts

I had the house to myself

The family is at their Christmas party for the evening. I was really pushing myself to go because I knew we how important it was to Lizze. I'd mapped out directions and dragged myself out of bed. I had layed down because I felt like I was gonna puke but after a few hours, I was feeling better and thought I'd be okay to go. Unfortunately, after about an hour or so of moving around, I wasn't feeling good again. I was stilling willing to push through it and at least make an appearance but Lizze insisted that I stay home and rest. Apparently, I looked about as good as I felt. Anyway, I'm not sure when everyone will be back but I haven't had the house to myself in…

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December 23, 2017

My thoughts

The two youngest never feel asleep

It was a fun night and by fun I mean awful. Neither Elliott or Emmett ever fell asleep last night. Emmett was in a really weird place and I'm not sure what's going on with him. All of a sudden, he's terrifed of the closet in his room but can't explain why. Unfortunately, there doesn't appear to be anything we can do to comfort him. He's asked us to remove the closet door and hang drywall over the opening so it's just a wall when we're done. That's simply not an option. Even if we played along and made the closet disappear behind a wall, he'd still know it was there. He's just in a weird place right now and I'm hoping we can help him work through this. As…

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December 23, 2017

My thoughts

Unfortunately, I might miss most of #Christmas

Our plans have had to be adjusted for this weekend because I'm not doing so well. As of now, I will be staying behind while the boys and Lizze head to the family Christmas party. The boys will be heading to Lizze's parents to spend the day and when it's time for the party, they will pick Lizze up on the way. I feel terrible not going but honestly, I feel even more terrible simply existing at the moment. My hope is that I'll feel well enough to spend Christmas Eve with my in-laws and if I'm really lucky, I'll be okay to see my side of the family on Christmas day. If nothing else, perhaps we can have a quiet, at home Christmas this year.

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December 23, 2017