Should Special Needs parents be worried?

There are a few things I have going on over the next week but in light of the government shutdown, I'm not sure if they're still going to happen. On Friday, Gavin has a meeting with SSI. He's due for an update and we have to figure out the whole guardianship thing. I don't know if the Federal Building will even be open this week. I know they said SSI checks would still go out as scheduled but they didn't say anything about the local offices. On the following Monday, I have an appointment with HEAP/PIPP. We have to update our income and recertify for continued access to the program. I don't know if this will be impacted by the shutdown either. With any luck, our ridiculous government leaders will…

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It all started 18 years ago, at 10:52 AM

There are days that arrive and bring with them a profound sense of consternation. For me personally, today was one of those rare days in my life. There are many reasons why today has so much meaning but I want to focus on the single, most important one. On January 18, 2000 at 10:52 AM, Gavin was born into this world. While I wasn't present at that point in time, Gavin wouldn't enter my life for another year or so. Gavin has faced so many obstacles in his young life. Some of these obstacles were familial in nature while others were physical and emotional in nature. This young man has been through more in his short life, than most people would in two lifetimes. As a family, we've been through…

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Gavin’s Wish is being GRANTED :-)

It's been a crazy day so far, but a truly amazing one as well. I'm able to officially share that Gavin will be having his wish granted. The timing is up in the air at the moment but it will be as soon as Gavin is able to make the trip. We will be spending seven days in Florida at Give Kids The World Village. Weare getting tickets to all the parks there, including Disney, Universal, Kennedy Space Center, Lego Land, etc. All of this is made possible by Wishes Can Happen. The boys and I spent some time this morning at their 10th annual Wish-A-Thon. It's sponsored by 94.1 and WHBC, a local radio station. Gavin and I were interviewed on the radio. We shared Gavin's story and he did great.…

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