Family Archives - Page 539 of 553

The boys are off to dinner and I’m on my own

Yesterday took a great deal out of me and I'm dragging today. It's been a relatively quiet day here and for that I'm grateful. Skipping ahead until now, the boys have just left to have dinner with their Mom and Grandma. Emmett was a little bit upset because he wasn't sure if he would like where they were going but we told him that he wouldn't go hungry and that Mommy/Grandma will figure it out for him. Outside of that, it went off without a hitch and that makes me feel really good. 😀 I won't really have down time tonight because I have to go to the grocery store and run a few errands before the boys get home. I do get to go without them so I suppose that…

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August 26, 2015

Here’s what happened at the Cleveland Clinic

I'm going to do my best to explain what happens yesterday at the Cleveland Clinic and I'm going to try and make this shirt and sweet. For starters, Gavin's okay. The eye exam part of his appointment showed no issues in structure but functionality would require further testing. That would only take place if the genetic testing comes back positive. They took detailed picture of his teeth and eyes to further document where he is currently so changes would be easier to track. Right now we just have to wait for the results of his DNA breakdown. I should also add that this is all done free of charge because Gavin is now part of the a research project trying to learn more about this extremely rare disorder called…

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August 26, 2015

My Crazy Life / My thoughts

I woke up to screams for help

I know I'm a bit behind on updates for yesterday but I'll catch up later today. This has been the longest day ever or at least in recent history. There were things that went very wrong and things that quite frankly, were absolute blessings. More on that stuff later though. I've been working on rebuilding the Guardian Locate website from scratch. It's a process that's can be quite tedious and frustrating but needs to be done. Anyway, I went to bed about 1:30am and I feel like I was out before my head hit the pillow. Next thing I know, I hear screams for help coming from Elliott and Emmett's bedroom. This was the kind of scream that made me think someone had come into the house and was…

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August 26, 2015

Cleveland Clinic / Gavin / Jalili Syndrome

God grant me patience because I’m gonna need it today

We finally made it. We arrived at 10:30 am for a 10:00 am appointment. It should take about an hour to get to the Cole Eye Institute and I gave myself an hour and a half to avoid being late but the drive took 2 hours. Between potty breaks, getting pulled over, road construction, getting off in the wrong exit and more construction, it took an extra hour. I'm not in a really good place at the moment and my stress level is approaching stroke levels. Happy thoughts. I'm going to think happy thoughts and pretend we aren't late and everything went perfectly. That's all I have left to do at the moment.

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August 25, 2015

Cleveland Clinic / Thoughts and Prayers

POSITIVE THOUGHTS PLEASE: We are on our way

The kids have been dropped off and we are on our way to battle insane traffic (for Ohio anyway) on our way to The Cleveland Clinic. Thoughts and prayers would be appreciated.

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August 25, 2015

Cleveland Clinic / Gavin / Thoughts and Prayers

I really need thoughts and prayers today folks

It's going to be a really, really busy day. The boys will be with my Mom for the day, while Gavin and I make our way to the Cleveland Clinic. This appointment is the first of its kind for Gavin and so I'm really nervous. We will be at The Cole Eye Institute for most of the day. We will be with a genetic counselor for awhile before Gavin undergoes some new tests to help determine the cause of some of his health issues. What they believe he has is something called Jalili syndrome and of course it goes without saying, that this is extremely rare. Gavin never does anything halfway. lol/sigh We will likely arrive home just in time for the long overdue family therapy session at Dr.…

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August 25, 2015

My thoughts

Today’s been pretty damn good

The boys and I are going to my parents for dinner tonight. It's sort of a birthday thing for me. I'm actually pretty okay with that. 😀 I have a shit ton of things on my mind and I'm still stressed out but I'm in a really decent place today. I'm feeling like things are going to be okay, at least in the short term. The kids have been great and any of the problems that did arise, were easily dealt with. So yeah, my birthday hasn't been the emotional black hole ai was afraid it was going to be. 😀

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August 24, 2015

My thoughts

The very first day of my 37th year

Today's been pretty okay so far. The boys have way too much energy but everyone is getting along just fine. That's a largely positive thing. We have zero plans for today and I'm okay with that because frankly, I'm pretty tired. I slept kinda strange last night and woke up feeling like I hadn't really slept at all. It's fair to say that I have a lot on my mind and I'm preoccupied with Gavin's trip to the Cleveland Clinic in the morning. Either way, I'm going to make the best of today. I want to start the first day of my 37th year on the right foot. 😀

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August 24, 2015