Read more about the article What his stomach looks like after an IVIG infusion 
My thoughts

What his stomach looks like after an IVIG infusion 

I wanted to take a minute and share a bit of insight into what Gavin experiences in regards to his IVIG Infusions. Gavin receives these medically necessary procedures twice a week and will do so for the rest of his life.  These infusions provide him with the immune system his body naturally lacks. Without these infusions, his body would not be able to fight off infections.  While these treatments are a blessing, they aren't  always pleasant.  The pictures below show what the infusion sites look like and it's incredibly unpleasant for him. Gavin has almost no body fat and so all the swelling is from the infusion 

0 Comments
January 14, 2017
Read more about the article When IVIG Infusions go wrong
Gavin / IVIG Infusion

When IVIG Infusions go wrong

Gavin's IVIG infusion has been a disaster so far. First of all, the supply company shorted us the needles needed to draw up his meds. I had to find a pharmacy that carried theses and was willing to sell me some without a script. Honestly, who would be buying these things without some a script? I guess I get it. Luckily, the Walgreen's down the street was willing to because they are familiar with Gavin and his infusion needs. Unfortunately, after I arrived home and struggled for about 20 minutes to draw up his medication, I realized that they sold me fricking filtered needles. Let me just say that trying to draw up his meds with these needles was like trying to suck a watermelon through a stir straw. Thankfully, I was…

0 Comments
January 13, 2017
Read more about the article Quick Update 
General Update / My thoughts

Quick Update 

We had to get both Gavin and Lizze's bloodwork done this morning. Everyone cooperated pretty well and I'm grateful for that. We also had to stop by the UPS Store on the way home. Elliott and Emmett were distracted by Pokémon Go during the hour or so we were gone. They actually had fun, which made everything much easier. Everyone is in a good mood this morning, at least for the most part. I'm hoping that good mood will continue when we get home because I have some small projects I'd like to work on today.

0 Comments
January 13, 2017
Read more about the article Are #Autism Parents Overprotective? 
Inspirational Posts / My thoughts

Are #Autism Parents Overprotective? 

Being a parent period, is a difficult but rewarding task. When you're an Autism or Special Needs parent, that difficulty level is increased to the nth degree as is the reward factor. Raising a child with a developmental disorder like Autism, is extremely difficult because of the very nature of the disorder. Autism is a very dynamic condition and often presents in a very fluid manner. This means that everything involving the parenting of a child with Autism can more often than not be a moving target. In my personal experience with my three boys on the Autism Spectrum, something that works today, may never work again. Likewise, something that's never worked before, could actually work today. Every single day that I wake up, I honestly have no idea what…

13 Comments
January 12, 2017
Read more about the article Why #Autism Parents sleep when they can
My thoughts

Why #Autism Parents sleep when they can

I slept for a couple of hours after dropping the boys off at school and feel so much better now. There were a million things I needed to get done this morning, but none of that was going to happen without at least some sleep. This morning's nap puts me at a total of only four hours of sleep but sometimes I get must less and so I'm grateful for what I can get when I can get it. Gavin and Lizze are both sleeping right now, and that gives me some time to myself to get some writing done. Writing helps me to clear my head, deal with my depression and also provide a better life for my family. In other words, it's very important to me. One of the…

5 Comments
January 12, 2017
Read more about the article 2 hours of sleep
My thoughts

2 hours of sleep

This morning was particularly rough for me personally. Elliott was up until almost 4 am and shortly after falling asleep, he woke up screaming because he must have bitten his the inside of his cheek. He was really upset and in pain but I couldn't figure out what was going on until we were up for the day. Elliott wasn't able to tell me what had happened because he wasn't fully awake. He did go back to sleep but when the alarm went off to get the day started, we had only had about 2 hours of sleep. The boys did get off to school without much issue but I'm going to have to take a nap..

14 Comments
January 12, 2017