Reflecting on this past weekend has taught me 3 things

The four day weekend is almost over and we have lived to tell the tail. :-) All joking aside, it seemed like a longer weekend than it actually was. The boys were the boys and that's not a bad thing. They were all challenging at times but I have great memories with each of them over the past four days. Challenging doesn't always mean bad.  What challenging typically means for me is exhausting. This weekend was exhausting even though we didn't go anywhere. It was exhausting listening to Gavin and constantly trying to stay at least a few steps in front of him. It was exhausting trying to get the two youngest to eat what we bought at Aldi's. I would say that in most cases, we were unsuccessful in making Aldi's…

0 Comments

I don’t even know what day it is

The boys have had a pretty good day so far. They were so quiet that I was able to grab a short nap while they were playing Xbox together. We're on the final day of our four day weekend, and it feels more like a Sunday than a Monday. I have to eventually run out and grab a few things the boys will need for school this week, but aside from that, it's just a lazy day. The week is going to be thrown off because it does feel like a Sunday and that will keep me a day behind throughout the week. It's weird how that works but this kind of weekend always throws off my internal clock. I'm hoping to have a peaceful afternoon and evening. We need to…

1 Comment

I’m being interviewed today

Fun fact, I'm getting interviewed this morning by Susan Wheeler-Hall BSW, NGH. Susan is an Author, Coach, Educator, Speaker and Radio Host.  She'll be interviewing me around 11 am this morning. I'm not sure what we'll be talking about but it should be fun. The boys are home from school today and I'm hoping they will cooperate.. ☺

6 Comments

2 behavioral oddities reminded me that I’m only human

Unfortunately, Gavin's had a rough day. I feel I need to stress that this wasn't behavioral, at least in the way it would have been a few years back. The first issue is in regards to Gavin's bladder problems returning today for the first time in a long-ish time.  This is par for the course with Gavin because these things pop up now and again. The first thing we will do to address this is work with the Miralax again. We had backed off a bit because everything was going well. That's all we can do at this point. As for the second issue or challenge, I think that was probably harder for me than it was for him. The problem was that Gavin required a great deal of patience…

4 Comments

One of my kids just arrived home with new shoes

Mr. Emmett spent a large part of this morning with his grandparents. They wanted to undertake the difficult task of finding Emmett shoes he will wear. Emmett just arrived home a few minutes ago and with him, is a pair of shoes he's pretty excited about. I'm super grateful for the help and I'm glad Emmett feels good about these shoes. That being said, I'm not going to hold my breath because I've been around this block a few too many times. I'm certainly not trying to rain on anyone's parade but I will remain cautiously optimistic.

12 Comments

Aside from that I have no complaints 

After a night without sleep because Emmett kept having nightmares, I began my day way earlier than an human being should. When Lizze woke up about 8 am, I was sent to bed and slept about four hours. While I feel better, I'm still exhausted overall. Thankfully, there are no plans today that will require me to drive because I'm too tired to do that. I will say that I'm in a really good mood. Sure, I'm tired but aside from that, I have no complaints. ☺

0 Comments

#Autism Parenting Exhaustion 

I've been dragging a little bit lately. Honestly, I feel completely spent, like all the life has been drained from my body. My diet and exercise journey has suffered as a result. The problem is probably more complicated than this, but I'm very sleep deprived. Even when the boys are gone for the night, my sleep patterns are still messed up. Almost every single night, one or both of the boys have a problem in the sleep department that requires me to either wake up or not go to sleep yet. Some may read this post and hear only excuses for my lack of discipline. Others who live a life similar to mine will better understand where I'm coming from. It's difficult to function when you didn't sleep well the…

0 Comments

Bad News news to share about Gavin

I've been putting off a really important update recently because I'm still processing some of it, at least I'm trying to. During our last meeting (this past Tuesday) with Dr. Pattie, Gavin did another mission debriefing. This debriefing was a little different because we learned something new about the status of his current psychosis. After talking about all the adventures he had gone on since the last debriefing, I began asking him questions about what he was saying, in an attempt gain a bit more insight. These questions led to a much better understanding of where he currently resides, psychologically and emotionally. It turns out that Gavin's hallucinations are actually getting worse. There used to be a portal he had to walk through in order to be transferred from his…

14 Comments