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I've had a very busy afternoon of scheduling doctors appointments for Gavin. I bounced back and forth between Akron Children's Hospital and The Cleveland Clinic for what seemed like an eternity. After all the calls, I only ended up with one appointment so far. On September 4th, Gavin will return to his neurology specialist at The Cleveland Clinic. Normally Gavin goes there for his autonomic disorder and epilepsy but this time around is different. Gavin has been telling us that his legs aren't working right. We haven't been able to get more reliable information out of him but it sounds like his legs are giving out. We haven't seen him fall but it seems like he's having issues with his legs supporting his weight. That's a problem. We don't know…
It's been a rough morning for Gavin. I didn't see too much of him until after I got home from taking the boys to school and getting my morning walk done on the way home. When I arrived home, Lizze was watching him get his IVIG infusion ready. I could see from the moment I walked in that he was not in a good place. Sure he was pleasant and polite as always but I could see he was struggling to stay on the road. He got his infusion going and returned to his bedroom sanctuary to wait the process out. Before long, he was back downstairs because one of the infusion sites was leaking a tiny bit. Gavin has historically not done well with problems arising during one of…
Emmett came home from his grandparents freaking out about a Pokémon card he got at the dollar store. I guess it's a really good one and it's totally changed his life or something to that affect. Bottomline, he was incredibly happy and very excited. He then decided to sit down and do a freehand sketch of the Pokémon on the card. Please don't ask me who it is because I have no idea. All I know is that's he's happy and that makes me happy. ☺ I think he did a pretty amazing job. I truly love when my kids embrace their inner artist.. ☺
Life is hard sometimes. I think most humans would agree with that. We all have limitations and life likes to test those. As an Autism parent, life and sometimes feel impossible. Between the therapies, appointments, meltdowns, sleep deprivation and countless other things, it's easy to become so overwhelmed that quiting can begin to make sense. It's so hard to find the time, energy, desire or motivation to care for one's self when you're already so busy taking care of everyone else. I'm making a serious effort to take better care of myself and walking everyday is one of the ways in which I'm doing that. The last thing in the world I felt like doing this morning was walking. The kids were gone and I could sleep in but I…
I had a rough night. Sleep was intermittent at best and that's probably because the burrito I ate for dinner wasn't sitting well. Since I've been losing weight, I don't eat nearly as much as I used to. In the past, I could eat a giant burrito and not think about it. I don't eat them very often but in the couple times I have in the last few months, I've been unable to finish it. I suppose that's a good thing.. ☺ Anyway, I'm definitely looking to walk today and burn off some of yesterday's bad choices. I have zero desire to do so but that's not a good enough reason to avoid it. I'm not sure when the boys will be back but it's probably best if I…
I already mentioned that the boys were spending the night at their grandparents tonight. I also talked about how Lizze was in a lot of pain and I wasn't sure we were going to actually do anything while the boys were away. I remembered that Lizze has been wanting to wander around downtown Canton and take pictures of all the artwork that's popping up all over downtown. She was a bit hesitant at first because simply existing hurt and walking around would likely make it worse, but she decided to give it a shot anyway. Below are the pictures I took while we were out. [foogallery id="82184"] This was a great way to spend some quality time together. We don't get much time to ourselves and that can take a…
The boys have left to spend the night with their grandparent's. That's a pretty awesome thing because Lizze and I are feeling burnt-out. I was thinking that we would go do something but Lizze is in too much pain to really go anywhere. Even if she could, I'm not sure what we would do. Nothing really sounds super exciting and I'm not feeling up to walking today. There is a Chipotle gift card burning a hole in my pocket. Maybe we'll grab some dinner and shut ourselves in for the night. The bottomline is that we have time to ourselves. That doesn't happen very often and I want to make the most out of it cause we need to recharge our batteries while they're gone.