Ehlers Danlos Archives - Page 4 of 101

There’s no way to prepare for your child being in crisis

Emmett didn't go to school today and I took him with me walking this morning. I'm really struggling with this but I still need to take care of myself. It's not a perfect solution but in the absence of any workable options, I'm doing the best I can. All I will say is that what Emmett is going through emotionally is serious enough to limit my options and absolutely must be taken seriously. I should hear back from the school tomorrow about our options. Until then, I'm struggling to keep him above water and moving forward. He's in therapy and getting all the help he needs but nothing is going to fix this. It's a process that he must go through and we need to provide him whatever tools or…

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January 13, 2020

Emmett John / My thoughts

I may have to pull my youngest out of school and I don’t know what to do

I've spent part of the evening messaging back and forth with the principal at the boys school. We're trying to figure out a solution for Emmett while he's in the state he's in. Being in the classroom is clearly not working out for him right now and so we're looking at a few options. I spoke with Emmett's mom and we feel like school is simply too much for him at the moment. I'm not a fan of pulling him out because I think that it's a bandaid fix and unless we address the underlying issues, this is only going to get worse.. Emmett is still struggling with more shit than he can cope with and it's got him in a darker place right now. I'm the first person he's…

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January 12, 2020

My thoughts

Trying to set a good example for my kids

One of my resolutions this year is to increase my veggie intake. I'm not a big fan of just eating most vegetables, so I get around that by putting them into smoothies. I recently began adding additional vegetables to my smoothie and it takes a few times to get used to the taste. This morning, I bumped things up a bit. I added cauliflower and sweet potato to the spinach, kale and broccoli I already include. As it stands, this is what's my smoothie: SpinachKale Broccoli CauliflowerSweet Potato Chard Chia Seeds BlueberriesBanana Strawberries Raw HoneyPlain Greek YogurtAlmond MilkOatmealDark Chocolate I make 64oz and drink it throughout the day. My new blender let's me vaccum seal it so it stays fresh all day. It honestly tastes pretty good and I'm getting…

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January 12, 2020

My thoughts

I’m feeling pretty good about today

I'm feeling pretty good about my day. I got my podcast episode done and two new ads recorded. If you haven't listened yet, now is a great time to do so. I'm very focused on educating people about vaccines and vaccine preventable diseases. I'm talking to experts that cut through the conspiracy and lay out the facts. Listen to Dr. Tara Smith break down the facts surrounding Measles and other VPD’s. Click here. The boys had a fantastic time at their aunts house and when I picked them up this afternoon, they had just finished spending the morning at the bowling alley. The boys hanging out with my sister and her boyfriend. ☺ ♥ After we got home everyone did a pretty good job of putting their stuff away and…

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January 11, 2020

My thoughts

I literally don’t have a life outside of my kids

So I'm getting a break tonight because the kids are going to my sister's for the night and part of tomorrow. They're pretty excited and they really need this kind of thing, especially right now. I have zero plans because I literally don't have a life outside of my kids and yes, I know that's sad. It's fine though because I have work I need to get done and at least two new ads to record for the podcast. It's doable when the kids are home but much easier when they're not. I am thinking about starting a new show on Netflix. It's hard to do even do that with the kids home because most of this stuff isn't appropriate for them and they're always with me. Anyway, I'm going…

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January 10, 2020

Emmett John / My thoughts

Surviving

It was decided by all involved to keep Emmett home from school yesterday and today. We have documentation and the school is aware of everything that's going on. They've been very supportive and I can't say how appreciative of that I am. Emmett is not in a good place emotionally and his meds were updated Wednesday, which is part of the reason for staying home. He's still doing his class work and the goal is to return on Monday, with a new support plan in place at school. Again, they've been so supportive throughout this whole thing. It was a really rough night because Emmett had nightmares all night long. He didn't sleep well and I was up with him on and off all night long. It took some doing…

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January 10, 2020

My thoughts / New Beginnings

Navigating #divorce with #Autistic kids can be very, very challenging but not impossible

We had a very, very emotional Wednesday night therapy session. It was emotional for a number of reasons but it ended in a positive way and the kids are better for it. I was a less than ideal situation but it was the lesser of two evils and kids needed to have some questions answered by their mom. It's not anything that I'm going to get into here but it was not a conversation either of us wanted to have but it had become clear that the kids were going down hill quickly because of how certain things were handled and the only way to help them past it was to give them more insight into what had happened to cause the split. It wasn't my story to tell and…

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January 9, 2020

My thoughts

When your kid is in crisis, focusing on anything else is impossible

I know the overall theme of things lately is kinda depressing. The truth is, our lives are very difficult and this passed year has been especially challenging for a number of reasons. I could lie to you all and make it seem like things are better than what they are but after 11 years of writing, I know that people come here because I speak the truth about whatever I'm experiencing, so we can all learn something from it. You won't be surprised to learn that today has been one of the hardest days I've had in awhile and that's saying something. We had to be out the door before 7 AM and make the drive to Akron Children's Hospital for an 8 AM appointment in Behavioral Health. I left…

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January 9, 2020