Ehlers Danlos Archives - Page 19 of 101

Emmett John / My thoughts / New Beginnings

He’s permanently moved himself into my room

For about a month and a half, Emmett has been crashing in my room at night. He won't sleep in his own bed or stay in his room since his mom moved out. I sorta expected this because it's what happened the last time as well. He's struggling more than he's saying or maybe is aware of, but the constant nightmares, the strangling me at night, tummy aches, headaches and moodiness have me concerned. Emmett has informed me that he's permanently moving into my room. He's moved most of his things, including his clothes, into the recently vacated dresser in my room. I've spoken to him about how this is a temporary arrangement because it's important that he sleep in his own bed. I'm happy to do this if it…

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September 18, 2019

Elliott / Emmett John / My thoughts / New Beginnings / School

I wish he could just be a kid

Gavin and I waited outside the school as we do every single day. Gavin was lost in his game and I was anxiously awaiting the doors to open so I could see how the boys did today. They've both been struggling at school as a result of all the recent changes that have been forced upon them. The good news is that both of them made it through the day. Emmett was in pretty good shape and that's awesome. Elliott on the other hand, had a pretty rough day and it absolutely breaks my heart. When he went to school this morning, he was so stressed out that he'd broken out in hives. Before school, I gave him his new antihistamine that doubles as a mild anti-anxiety medication, hoping that…

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September 18, 2019

Elliott / Emmett John / My thoughts / New Beginnings / School

Even baby steps are steps forward

It was a rough night. Emmett had nightmares throughout the entire night and kept waking up. I'm exhausted and we ended up oversleeping as a result. To make things worse, I was so overwhelmed last night that I forgot to bake a new batch of pepperoni rolls for their lunches. Thankfully, Elliott and Emmett both decided to have leftover pizza in their lunch instead. I'm pretty sure they took pitty on me and while I appreciate that, I'm hoping they actually eat their lunch today. We got out the door a few minutes early because I needed to talk to the school and clarify how we were going to handle the boys when they were distressed while at school. I made sure the boys were present so everyone was on…

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September 18, 2019

Clozapine / Gavin / My thoughts

A super quick but important Clozapine update

A quick follow up on the status of Gavin's Clozapine prescription. I had mentioned last week that we were trying to get his Clozapine script approved for a 14 day supply at a time. Gavin's numbers have been stable for the last 6 months and he's eligible to move to the new script. We just needed to make sure the powers that be approved it. His refill arrived late last week and to my dismay, it was only a 7 day supply. It took a few calls to get through to the pharmacy and when I did, I questioned them about the script. Turns out, they simply filled the wrong on and going forward, they will try to fill for the 14 day supply. This of course assumes that it…

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September 18, 2019

Elliott / Emmett John / My thoughts

School DID NOT go so well today

Unfortunately, I could tell by the expression on Elliott's face as he walked out of the school building, that it wasn't a good day. What really caught me off guard is how upset Emmett was when he climbed into the car. I hadn't even had a chance to ask Elliott what was going on before Emmett went off. Turns out he was upset because he felt Elliott had been failed by the school today. Apparently, Elliott wasn't feeling well at lunchtime and wanted to go home. He was told that he couldn't leave the building and to go sit down. I understand there was also time earlier in the day where Emmett had witnessed Elliott not doing well and wanting to come home and he was denied his request. Towards…

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September 17, 2019

My thoughts

Well shit, that didn’t go as planned

Well, therapy didn't happen this afternoon. While I was in the waiting room, I received a text that said, just a reminder, I'm out this week. It's not a huge deal but I most definitely didn't know about this ahead of time. While it was unfortunate, it did afford me the time I needed to make some changes to my bank accounts that needed to be done. It's not a total loss. I may be able to move forward with car shopping now. Fingers crossed because if not, I'm going to be really, really frustrated. I finished that up just in time for Gavin and I to wait for the kids to be dismissed after a full day at school. Hopefully, when they emerge from the school, they're in good…

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September 17, 2019

Emmett John / My thoughts

It was like being choked in my sleep

OMG... It was a rough night. Everyone went to bed without an issue and even fell asleep as well. To the best of my knowledge, Elliott slept through the night and that's good cause I really worry about him. Emmett on the other hand, had nightmares all night long. He doesn't remember what they were about, or just doesn't want to talk about them. Either way, I understand but I wish I could help him with the. They were so bad last night that when he did sleep, he had his arms around my neck, choking me. He wasn't trying to hurt me but when whatever was happening in his nightmares got really bad, it seemed like he was trying to snuff me out in my sleep. I didn't sleep…

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September 17, 2019

Elliott / Emmett John / My thoughts / New Beginnings / School Related Issues

It’s not perfect but the kids made it through the school day

Neither one of the boys came home from school early yesterday. Around lunchtime, I called because I wanted to make sure everything was okay. The office said that boys seem to be doing well and that made me feel so good. When I did pick up the kids, Emmett was in a great mood and Elliott wasn't too far off. He made it through the day but was not feeling well for most of it. I hate that he's so distressed it makes him physically ill but I'm incredibly proud of him for sticking it out. It feel like there's hope that we can work through this and get our lives back on track. This whole divorce thing has turned our lives inside out and upside down. There's no question…

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September 17, 2019