Here’s some really good news
Today's Victory is pretty awesome. Check it out.
Today's Victory is pretty awesome. Check it out.
It always feels good to accomplish a goal. Here's what happened. .
I'm spent. Stick a fork in me because I'm done. This is how crazy my life is at this point. Why am I feeling depressed...
As a parent, you have to be able to recognize your limits. I've hit my limit today like a speeding car into a brick wall. I've put myself in timeout and here's why.....
We finally made it home from the Cleveland Clinic
It seems like the world is conspiring to make us late to Gavin's pediatric neurology appointment at the Cleveland Clinic. Here's what's happened..
Today was another heartbreaking plea to stay home from school. I don't know what to do but here's what happened
I mentioned earlier that we were all excited because Gavin got new tubing for his IVIG Infusions that have historically reduced the infusion times significantly.. Unfortunately, that didn't prove to be the case today. In fact, his infusion took almost 3 hours to complete and that's pretty close to the record for longest infusions I can remember. It was also really uncomfortable for him as well. He did manage to hold up really well but this sorta killed the excitement of the new tubing. It's possible it was just a bad placement of the needles and we'll see how things go on Fridays morning.