Did I do well enough today? 

Folks, I'm burned out. It's been about twenty-four hours since I've written anything. It's important to understand that while I'm physically and emotionally exhausted, I'm not giving up on anything.  One of the things I've learned on my Autism Parenting journey is, that I have no idea what tomorrow has in store.  No matter how bad today has been, as long as I live to see tomorrow, there's always hope. It's so easy to get lost on this treacherous, exhausting, overwhelming, and all consuming journey. I've found myself lost many times along the way. In fact, that's where the title of my first blog came from.  I felt lost and tired, especially in the beginning. I can totally relate to what many of you are going through.  Sometimes, the only…

1 Comment

This shit isn’t easy

I've had a longer day than normal today. I already shared that I was up with Emmett last night because his nose was really stuffy. You might be saying to yourself, everyone's nose gets stuffy, why is that a big deal? To put it simply, it's a sensory thing.  Emmett has never done well with a stuffy nose.  I don't know what he experiences when his nose is stuffy, but if it's in line with the way his brain perceives many other stimuli, it's a nightmare for him.  Last night, he finally fell asleep while snuggling on the couch. He had found a position he was comfortable enough in to fall asleep. Unfortunately for me, that position was partly on the couch and partly across my chest.  I was pinned…

0 Comments

It’s been well over a month 

I feel so much better after a nap. I need a night where I can manage a solid eight hours. It's been awhile since I've had one of those.  I'm getting ready to go pick up Emmett from school and take him to occupational therapy. It's been a long time since he's been there. Between fever cycles and the OT having a family emergency, it's been well over a month since his last appointment.  Emmett is so excited about going back... 

0 Comments

Midnight and morning meltdowns 

Last night was a nightmare. Mr. Emmett didn't go to sleep until well after midnight. It was one meltdown after another until he fell asleep. All of this because of a stuffy nose.  To recap, a stuffy nose turned our lives upside down, until well after midnight last night. Emmett and I ended up falling asleep in the living room because I didn't want to him to wake the other boys up.  Lizze had to be up super early, in order to go to class, so I was nominated to manage this situation last night. I'm so tired today and I'm going to have to close my eyes for a little while.  If I wasn't already tired enough, I would be after trying to get Emmett ready for school. It…

0 Comments

2 shits and a flying fuck

I've been in an awesome mood all day, but I have one pubecent pre-teen who's been copping a major attitude lately. I haven't talked about this much because..... Truthfully, I don't know why I haven't talked about this.  For all the Autism related challenges I face on a daily basis, sometimes life sprinkles some more typical problems in as well, just for fun.  Puberty is apparently one of those things.  Lizze and I have been dealing with horrible attitude and lots of mood swings. This is part of the reason that we are watching for signs of Bipolar disorder. The mood swings are especially difficult, but the attitude is a close second.  Just to be clear, no one's labeling him with anything other than annoying pre-teen behavior however, there is…

0 Comments

We had some impromptu fun this afternoon

Lizze is hanging out with her Mom for a bit, while the boys and I go from the school to the Garden Center. We of course, made a brief stop home to pick up Pokémon Go equipment before heading off to hunt. Some of these Pokémon are hard to find. It would be really interesting to go overlanding or off roading and see what we can find. Lizze and I used to do that when we first met. Obviously, Pokémon go wasn't around then but the off roading part was so much fun. Anyway........ I'm really happy that Lizze got a chance to spend some time with her Mom. Lizze doesn't leave the house all the often because of social anxiety. She's not spent time with her Mom like this…

0 Comments

This was a big step forward

Gavin had his IVIG infusion this morning/afternoon. Everything finished up fine, but it took a really long time. What was different about this particular infusion was that Gavin wanted to hangout in his room during the procedure.  This is highly unusual because when he's undergoing this procedure, he hates to physically move. He's afraid that the needles will move.  This morning however, he said he wanted to move upstairs and watch a movie on his tablet.  We were happy to hear this because he needs to be able to walk around while receiving his IVIG. He doesn't have to move around, but it's a good thing that he's able to get up, and move around without being afraid.  This was a big step forward. ☺ 

0 Comments

You might not believe this

In what can only be called a miraculous turn of events, both boys are in school today. 😁  There was some struggle in regards to lunches, but we did finally get out the door. We even got to school a bit early, and I was able to speak with the principal, as well as Emmett's teachers.  We addressed the whole breaking pencils thing, and was comforted by hearing from several of the staff members that his non-uniform shirt was okay.  After dropping the boys off and dealing with each of their problems/concerns, Gavin and I went walking.  I'm feeling pretty amazing today and really enjoyed walking. 

8 Comments