We have arrived at @AkronChildrens for Gavin’s surgery

We've made it and made it early, thrifty minutes early to be exact. We had anticipated construction but it didn't occur to me that we would be driving through before the workers started for the day. Anyway, we're here, checked in and waiting for a room. I appreciate all the thoughts and prayers that have been coming in all night. This should be fairly quick and painless. Let me tell you how much I don't want to be awake right now. 😉 Zzzzzzz

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Please keep Gavin in your thoughts and prayers

Everything is a go and I'm off to bed cause we have to be up and moving around 4 AM. I'm not looking forward to that at all but I'm grateful it's actually happening that early because Gavin won't have to go without eating any longer than he has to. In theory, and barring any problems, we should be on our way home by lunch time. I don't know if we're picking the kids up on the way home or if we're going to be able to sleep for a bit first. I know that all Gavin cares about is getting a burger on the way home. ☺ Speaking of Gavin, he's very nervous about the procedures. That's a bit unexpected because he was fine the last time. He was…

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Gavin’s scheduled for surgery tomorrow but did we get everything worked out?

I need to get you all caught up on Gavin's status and whether or not his scheduled surgery is a go for tomorrow. I couldn't really share anything until this afternoon because I didn't get the final word until a few hours ago. There are three things that needed to be addressed before we could move forward with his surgery. So we're on the same page, Gavin is scheduled for a colonoscopy and endoscopy. The doctors refer to it as surgery, I assume that's because of the biopsies but regardless, I'm keeping consistent with what terms his doctors and the hospital are using. I should mention that part of the complication with this whole thing is Gavin's overall health. As a result, he can't have the procedures done the way…

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Trying to explain how I feel isn’t easy

I thought I would take a few minutes and talk about where I'm at right now. I don't mean where I'm physically at, but instead where I'm at emotionally. I haven't really spoken about my mental health for a little while and because it's a huge part of my life, it's important to talk about. There are so many pieces and parts that make up the person I am but my mental health has an overwhelming impact on all of them. I would never represent myself as the picture of mental health because that couldn't be further from the truth. I struggle at times. In fact, there are times I struggle a great deal. Those struggles aren't always associated with my ongoing, lifelong war with Depression either, which you can…

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It’s a special day today

Today's a special day in our house because it's Lizze's birthday. I won't mention her age, aside from saying that she's younger than me.. ☺ Lizze is difficult to plan a birthday for so we're gonna wing it. We did the movie yesterday and we'll probably do something small at home. We don't make big deals out of our birthdays, as we reserve our resources for the kids. Maybe we'll do take out for dinner and have a movie night with one or more of her favorite movies. She's a huge fan of the Now You See Me series and the new Jumanji. Those movies never get old for her. While we don't go overboard for our birthdays, we also don't take them for granted either. When Lizze and I…

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It’s so unbelievably frustrating but it’s also not his fault

We got back from our trip to the movies and it was an adventure but not always in a good way. First of all, the general consensus is that the movie was mostly terrible. It made us wonder why they didn't stop at two.. Anyway, for the most part, everyone behaved quite well. The behaviors that were problematic were basically owned by Mr. Gavin. Just so we're clear, most of Gavin's behavioral issues are not his fault and are instead, the result of his overall decline. While it's challenging for Lizze and I, we try very hard to maintain perspective but it's not always easy. The main issue we had with Gavin this afternoon revolved around movie snacks. Gavin has a very difficult time with self-regulation, especially when it comes…

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We’re planning special trip today but taking 3 kids with Autism is challenging

Lizze will be celebrating a birthday tomorrow and we're starting a bit early. One of her favorite movies is Hotel Transylvania. We're going to see Hotel Transylvania 3 this morning and everyone is pretty excited. Between our Cinemark Movie Club membership and a special they're running today, it's only $20 for all five tickets. That's a really good deal... ☺ Anyway, we're going to be leaving shortly and I've got to get moving. I wanted to share a little bit of what I think is good news or at least something positive. That being said, taking three kids with Autism to the movie theater can prove challenging and we have no idea how it's going to go, until it does. I'm feeling optimistic about this little adventure and I'll let…

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I received the absolute best news today and I just had to share

It's been a really long day but I wanted to share a bit of really good news. I mentioned the other day that I had my labs drawn. It's a cholesterol check before my next follow up at the end of the month. I figured I would find out the results at said appointment. Well, after lunch today, I received an unexpected phone call from my Doctor's office. I knew it had to be about my results and the rule of thumb is that they only call with bad news. This time however, they were calling to give me some good news. I never get phone calls from people telling me good news, especially when it directly impacts me. Turns our my lab work caught their attention and did so…

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