It’s been nonstop today

It's been a busy day already. I took the boys to school and afterwards went to get the water jugs filled. Unfortunately, they weren't open yet so I returned home and finished getting ready for a service guy that was coming out. I even had a business call as well. It's about noon and I finally have a little bit of time before my next thing I have to do, so I figured I'd try and write a few things and then move on with my day. So far so good.  Elliott and Emmett did great this morning, as did Gavin. I have still been thinking that today is Monday but I've put an it's Tuesday wallpaper on my phone and tablet, as a reminder. ☺ All in all, it's…

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Reflecting on this past weekend has taught me 3 things

The four day weekend is almost over and we have lived to tell the tail. :-) All joking aside, it seemed like a longer weekend than it actually was. The boys were the boys and that's not a bad thing. They were all challenging at times but I have great memories with each of them over the past four days. Challenging doesn't always mean bad.  What challenging typically means for me is exhausting. This weekend was exhausting even though we didn't go anywhere. It was exhausting listening to Gavin and constantly trying to stay at least a few steps in front of him. It was exhausting trying to get the two youngest to eat what we bought at Aldi's. I would say that in most cases, we were unsuccessful in making Aldi's…

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I don’t even know what day it is

The boys have had a pretty good day so far. They were so quiet that I was able to grab a short nap while they were playing Xbox together. We're on the final day of our four day weekend, and it feels more like a Sunday than a Monday. I have to eventually run out and grab a few things the boys will need for school this week, but aside from that, it's just a lazy day. The week is going to be thrown off because it does feel like a Sunday and that will keep me a day behind throughout the week. It's weird how that works but this kind of weekend always throws off my internal clock. I'm hoping to have a peaceful afternoon and evening. We need to…

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I’m being interviewed today

Fun fact, I'm getting interviewed this morning by Susan Wheeler-Hall BSW, NGH. Susan is an Author, Coach, Educator, Speaker and Radio Host.  She'll be interviewing me around 11 am this morning. I'm not sure what we'll be talking about but it should be fun. The boys are home from school today and I'm hoping they will cooperate.. ☺

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2 behavioral oddities reminded me that I’m only human

Unfortunately, Gavin's had a rough day. I feel I need to stress that this wasn't behavioral, at least in the way it would have been a few years back. The first issue is in regards to Gavin's bladder problems returning today for the first time in a long-ish time.  This is par for the course with Gavin because these things pop up now and again. The first thing we will do to address this is work with the Miralax again. We had backed off a bit because everything was going well. That's all we can do at this point. As for the second issue or challenge, I think that was probably harder for me than it was for him. The problem was that Gavin required a great deal of patience…

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What his stomach looks like after an IVIG infusion 

I wanted to take a minute and share a bit of insight into what Gavin experiences in regards to his IVIG Infusions. Gavin receives these medically necessary procedures twice a week and will do so for the rest of his life.  These infusions provide him with the immune system his body naturally lacks. Without these infusions, his body would not be able to fight off infections.  While these treatments are a blessing, they aren't  always pleasant.  The pictures below show what the infusion sites look like and it's incredibly unpleasant for him. Gavin has almost no body fat and so all the swelling is from the infusion 

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Quick Update 

We had to get both Gavin and Lizze's bloodwork done this morning. Everyone cooperated pretty well and I'm grateful for that. We also had to stop by the UPS Store on the way home. Elliott and Emmett were distracted by Pokémon Go during the hour or so we were gone. They actually had fun, which made everything much easier. Everyone is in a good mood this morning, at least for the most part. I'm hoping that good mood will continue when we get home because I have some small projects I'd like to work on today.

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When my kids have a great day at school

The boys had a great day at school today. That's not a huge surprise, but I never assume anything. I appreciate this ending to the week because we are heading into four day weekend and it's always a good thing to start those out on the right foot. Apparently, tomorrow is a teacher in-service day and then, of course; Monday is MLK Day. I'm super proud of the boys for giving the week their all and walking away with a smile. We don't have any plans for this weekend, but the boys are going to spend the night with their grandparents tomorrow night. That means we get a break. :-)

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