dad Archives - Page 204 of 457

My major back injury

I'm not doing so well today. You may recall that I suffered a serious back injury when I was working as paramedic. I never had the surgery to fix it but I've been doing pretty good the past few years. It flares up every once in awhile and lasts for a few days before I'm okay again. My back went out a few days ago but I don't remember doing anything that triggered it. I've been walking for the last few days because that's the only thing that has ever helped. It's been recommended that I see a chiropractor to help with my back. Walking has helped the muscle pain from all the compensation they've been doing to take the stress off my spine. That's a positive thing because I…

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February 28, 2018

Depression Confessions / My thoughts

Living with #Depression is a war, not just a battle

I wanted to take a few minutes and share what I consider to be a major milestone in how I'm managing my Depression. Depression has been a part of my life since my early teens and will likely be an indefinite part of my life. While Depression is a consistent part of my mental and emotional health, how I choose to manage it can change from time to time. The three most important parts of managing Depression involves therapy, medication (if needed) and exercise. Everyone is different but generally speaking, the three pronged approach tends to be the best fit for most people. I'm not like most people and things like talk therapy, have never really been that effective for me personally. My weapon of choice has been medication and…

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February 28, 2018

Fit4Autism / My thoughts

The main way I’m coping with the stress of being an #Autism parent

One of the things I'm pushing myself to do right now is manage my stress in more natural ways. My life is so full of stress, there's times it hard to find room to breathe. What I'm trying to do is make the room for me to breathe and in doing so, give myself a better chance to cope with the things going in in my life. I always have things to worry about. Gavin's declining and thinking about where that is going to take us, scared the shit out of me. Emmett is dealing with this fever disorder, nightmares and whatever is causing these tummy aches. Elliott is an emotional train wreck right now. Autism, extreme anxiety and puberty are not being kind to him. Lizze is miserable most…

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February 27, 2018

Emmett John / My thoughts

Hopefully he’ll feeling better as the day moves forward

Emmett woke up about 4 AM with a tummy ache. He climbed into bed with us and snuggled me. I don't think he ever fell back asleep. It was pretty clear that he was miserable. There's a stomach bug going around the school but to be completely honest, this could also just be an Emmett thing. At the moment, Emmett is laying down in our bed resting. He's watching Netflix while he's buried in blankets and surrounded by pillows. He's not eating anything and that's another sign that somethings not right. Hopefully, he will feel better as the day moves forward.

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February 27, 2018

My thoughts

A quick update about the school safety meeting

I wanted to just push out a quick update in regards to about how our meeting at the school went tonight. The meeting went well. Unfortunately, only five or six sets of parents showed up but whatever. We learned more about the safety steps they are implementing in order to keep our kids safe. We also talked about setting up a PTA type group. The principal and I will be working on some fundraising projects. There are a few other parents who are join us as well and that's really awesome. It was a positive meeting and I'm glad we made the time to go..

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February 27, 2018

Common Variable Immunodeficiency / Gavin / Immunology / IVIG Infusion / Vivint Gives Back

Gavin’s IVIG infusion is NOT going well

Gavin's IVIG infusion is not going well this morning. For some reason, we can't get any flow and I'm having to force the solution through the tubing manually. It works but it's very difficult and quite painful for a Gavin. I don't know what's wrong for sure, but it could be scar tissue. All I can do is continue to force it through or re-stick the needles in his belly. Gavin wants to avoid being re-stuck and I don't blame him. Hopefully, this will finish up sometime this afternoon and he will be okay. I'm just going to keep an eye on him through the Ping camera from Vivint Home. I've found so many uses for this system but the best have involved using the cameras to monitor my kids…

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February 26, 2018

My thoughts / School Related Issues

A significant increase in security at my kids school today

The boys did awesome this morning. They got ready for school and out the door with very little effort, at least compared to what it's been like recently. I took them to school and when I dropped them off, I noticed a major change at the door. Every child is scanned for metal objects prior to entering. This is totally new and I was sorta taken a back by this at first but then I was forced to remember the reasons behind this. I'm angry that something like this is necessary but I'm grateful that the proper precautions are being taken in order to help insure the safety and we'll being of our kids. So far, there have been several changes within the school to address possible safety concerns. I…

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February 26, 2018

Childhood Disintegrative Disorder / Gavin / My thoughts

Childhood Disintegrative Disorder is stealing our son from us

This post was started on Friday and has taken me this long to finish. It's been a long weekend and I apologize for my absence. I was largely absent here today because I'm struggling a bit right now. I'm having a hard time coping with certain things at the moment, Gavin being one of those things. I'll be the first to admit how terrible that sounds. I can assure you, it feels worse for me to say that. Gavin is driving me crazy and it's taking a toll. As time moves forward and his overall condition worsens, it becomes harder and harder for him to think. He has a much more difficult time trying to think his way through even the most one dimensional situations. These are things like figuring…

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February 26, 2018