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It all happens at noon today

It's already been a hectic morning but I did receive the call I've been waiting on from Emmett's pediatrician. The long and short of things is that Emmett will be seen at noon today. Lizze and I dropping Gavin off with my Mom on the way. We can't risk exposing Gavin to whatever bugs are floating around the pediatrician's office. Hopefully, we'll learn some ways of helping him to feel better. I can see us getting a referral to Gastroenterology, which wouldn't be a bad idea. I don't know how excited Emmett's going to be about going to the doctors but there's no choice st this point. He's missing way too much school and besides that, he's absolutely miserable. I'm looking forward to this appointment because I really worry about…

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March 20, 2018

Read more about the article Received these the other day from @sashkaco just in time for #Autism Awareness month

Received these the other day from @sashka_co, just in time for Awareness month. Some of these will be donated to the my kids school to help raise funds for the students. This is a school for kids with Autism.. Thank you @sashka_co

My thoughts / Photography

Received these the other day from @sashkaco just in time for #Autism Awareness month

Received these the other day from Sashkaco, just in time for Awareness month. Some of these will be donated to the my kids school to help raise funds for the students. This is a school for kids with Autism and the funds raised at the next family night will go to a special event for the kids at the end of the year. These kids work so hard and they deserve to just be kids for a little while. These are amazingly handcrafted and by skilled artisans in the Kathmandu Valley of Nepal. Each purchase helps to empower these women to rise above poverty through fair trade. The bracelets are absolutely gorgeous and I have absolutely no idea how they build these because I can't find a single seam. They…

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March 19, 2018

Emmett John / My thoughts

Hopefully this is a step in the right direction

Emmett didn't make it to school today again, because he's not feeling well. I've been running around this morning but I've got a minute to publish an update before I go walking. Elliott got to school on time and without issue. Gavin's bloodwork was drawn and we are waiting for his numbers to come back. I'm unsure of where we stand in regards to his numbers right now, so I'm a bit nervous for those results. Gavin's becoming increasingly frustrating to work with on his IVIG infusions because he wants things done a certain way but unfortunately, it doesn't work like that. There's some flexibility within the IVIG infusion process but there are fundamental parts that include zero amounts of wiggles room. That being said, once his infusion was started,…

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March 19, 2018

Emmett John / My thoughts

I don’t know what to do anymore

This post was meant to publish last night but I ended up falling asleep. At this point I'm unsure of what we will be doing with Emmett today. I'm hoping to get him into the doctors if he's still not feeling well when he wakes up. The poor kid was up until almost 1 AM. What I do know for sure, is that our morning is busy already. Gavin will need his IVIG infusion first thing in the morning. He will also need his bloodwork done immediately after dropping the boys off at school. I'm really, really hoping that Emmett is feeling better and that he makes it to school. He's been keeping up with his makeup work and that's helps to keep him current. Regardless of how he's feeling…

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March 19, 2018

Emmett John / My thoughts

I’m really getting worried about Emmett

Lizze and I have been working with Emmett to help him fall asleep tonight. He's not feeling good again and hasn't been able to fall asleep. I'm getting worried about Emmett because he's really struggling with these tummy aches. His pediatrician has checked him out on many occasions but found nothing. I think it's time to return to his Gastroenterologist. He hasn't had to go back since his food allergies cleared up but I think it's a good direction to go in. Emmett wants to go to school today but he's clearly struggling. I think I'm going to get him back into see his pediatrician ASAP. I tried calling last night but I can't schedule something until the morning. I wish I knew how to help him but I don't.…

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March 19, 2018

Autism Parenting Struggles / Emmett John / Homework / My thoughts / School Related Issues

Have I mentioned how much I literally hate homework? Can anyone relate to this story?

Emmett missed most of last week because he wasn't feeling well. I had work sent home for him to work on so he wasn't so overwhelmed when he hopefully returns on Monday. Emmett is crazy smart and way ahead of everyone else in his class, so homework is something that should come relatively easy for him. Sometimes it is and other times it's a fricking nightmare. One of the things that Autism has contributed to this mess, is a very literal interpretation of everything. Emmett interprets things in a very literal, incredibly ridged way. There's almost no way to help him work through anything, when he's literally interpretating things. An example that we are struggling with this morning is this. The instructions for a math problem he's stuck on went…

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March 18, 2018

Family Time / My thoughts

I surprised the kids today

The boys have had a rough week and I wanted to do something nice with them. Lizze wasn't feeling well, so she stayed behind to get some rest. The boys and I ran a few errands before I decided to surprise them with Cici's Pizza for dinner. Cici's Pizza is pretty affordable, especially on limited funds. I just thought that they were a huge help today and really helped after I went grocery shopping. They brought in the groceries and helped me put them away. We ended up at Cici's Pizza and the boys loved it. We had a full Cici's punch card so it was insanely cheap. While we all missed Lizze, she needed her rest. The boys did well while we were their and I'm really prod of…

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March 18, 2018

Autism Parenting Confessions / Depression Confessions / My thoughts

A MASSIVE and IMPORTANT Update for the last couple of days

Hey folks. It's been a couple days since I've written anything other than an update on my tumultuous relationship with Paxil and there's a good reason for that. That good reason is, I'm fucking miserable. I'm anxious, stressed, emotional, not sleeping, nauseated and freaking out. None of this is really new information because it's the same side effects I've been struggling with since I took my last dose of Paxil, exactly one week ago today. Rather than focus on my current disparity, I want to catch everyone up on some of the things I've been meaning to write about but haven't, because of the stuff in the previous two paragraphs. School Related It was a shorter school week because of teacher in-service and end of the quarter stuff. The kids…

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March 17, 2018