This is going to be a stressful week

We've got another week of quarantine ahead of us and I'm super excited about that. I'm definitely not excited. We actually have until a vaccine and established herd immunity left of quarantine. The reason I say one week is because I'm taking it one week at a time. Baby steps or I'll end up losing my mind. I've got a couple of interviews this week and that will round out the 40 episodes I planned for season 3. I will have five episodes in post and will release those over the next five weeks before closing off the season 3. This is a really bad camera angle. It makes Emmett's head look enormous. He was extra snugly today for some reason but I'm not complaining. ☺ The boys have a…

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It’s not been a terrible day

It's not a secret that I struggle with sleep. Most autism and special needs parents struggle with sleep. I'm simply following that same unwritten rule that we must constantly function while chronically sleep deprived. Anyway, I had the best night of sleep last night. My sleep score was in the 80's and I woke up feeling pretty goddam amazing. Emmett slept in his room all night long and I'm sure that helped. I'm also sleeping on a new Purple mattress and OMG, it's amazing. My back is a little sore because I have to get used to a completely different type of mattress but it's amazing. I've been waking up in the same position I feel asleep in and that's unusual for me. I'll have more on that later. Anyway,…

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My kids are disappointed but it’s out of my control

The boys don't have school today because their is a Halloween event instead. I don't necessarily agree with hosting an event in person whilst Ohio is logging nearly 4,000 new COVID cases a day. I do, however, appreciate what they are trying to do for the kids. They're exercising caution and following guidelines but I still wouldn't take the chance. It doesn't really matter for us because the car is still in the bodyshop. I'm not sure how much longer she's gonna be there but it's already been a few weeks. It will probably be another week or so. The kids are disappointed but it's out of my control. While I would have likely chosen not to participate, I didn't have to make that decision. Also, while Lizze and her…

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What does sleep look like for #autism parents?

Parents often struggle with sleep, especially when their kids are younger. Parents of special needs kids struggle with sleep all the time. I'm one of those parents. If I had it my way, I'd be in bed at 10pm every night and sleep straight through until 7am. Unfortunately, my kids don't cooperate with that. They each struggle with sleep disturbances, that we haven't been able to work through. For the most part, Gavin's doing really well with sleep. The issue is with Elliott and Emmett. Elliott claims to be a night owl and needs to be awake at night. His doctor and I call bullshit on that. The issue is sleep hygiene and poor sleep habits. In other words, he needs a better bedtime routine and a reset to his…

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Exhausting efforts and interventions

It's been a really frustrating day. Gavin's been struggling behaviorally and I honestly don't have the patience to deal with the outbursts. In fairness, Gavin is doing so much better overall and he's come such a long way. I'm incredibly proud of him. At the same time, there are things we need to work on. Gavin has a really short fuse and it doesn't take a whole lot to set him off. Today I was watching Bob's Burgers, and Gavin sat down to eat lunch. He's got this weird thing with shows like this and I'm not sure I understand where he's coming from. Usually, he will get up and leave the room if something he doesn't like comes on. Today he was eating lunch, so he didn't really have…

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Update: It’s been 234 days of #COVID lockdown so far

Life is getting a bit more challenging. For those who don't know, COVID is significantly worsening in Ohio. As of writing, we're a stone's throw away from 3,000 cases a day. There's a nursing home about a mile or so from my house with over 80 confirmed cases. It's really getting scary. My cars still in the shop and will be for a couple of weeks. That's a bit stressful because we truly are trapped at home. It's not like we would be going anywhere, especially since COVID is so bad locally, but looking out the window and seeing the car missing is an emotional blow. Maybe that doesn't make sense.. I've been insanely busy with work related things lately.  I'm trying to get season 3 of the podcast finished…

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I’m trying to give my kids a better me and it’s not easy

It's been somewhat of a stressful day for me personally. I'm feeling very isolated, which is by design at the moment and that's important. The point is, I feel very much alone. It is what it is and I'm doing what is necessary to protect my kids, especially Gavin. I'll continue to do the same as long as is needed, but it's not easy and the longer this drags on, the harder it gets. I'm trying to find a better balance in my life because my kids deserve a better me. I've been working out with some regularity and back to using Myfitnesspal. It feels good to move in the right direction once again. I've not gained any of the weight back that I'd already lost and that's a good…

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It’s been a heartbreaking day

Remote learning is like a fucking emotional roller-coaster for everyone involved, but especially for our kiddos on the autism spectrum. We have had our ups and downs but today was a particularly challenging. I stopped working today, which is hugely problematic, in order to help Emmett navigate his schoolwork. For some reason, he was completely overwhelmed by the tasks on the screen before him. There's a million reasons he's overwhelmed but I don't know what pushed him over the edge today. How many of you out there have seen similar with your own kids lately? It's currently 3pm and I've been trying to help him work through his anxiety, frustration and whatever else he's feeling that I can't see on the surface, all day now. Remote learning is a necessary…

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