Common Variable Immunodeficiency Archives - Page 90 of 260

It’s been an unusual day

The day has gone by quickly for some reason. Lizze had an appointment this morning, and I had an interview with someone from the UK. I got my walking done and picked the kids up from school. Gavin has been mostly unseen today. He's dealing with a crisis in his world that has taken up most of his time today. Lizze and I are a bit concerned because Gavin is exhibiting signs of paranoia. He's talking about people in his worlds being out to get him, and he's also becoming very preoccupied with his health but in a weird way. I'll explain more about that later. Anyway, we've got one day left in the school week, and we're about three weeks out from the end of the school year. I'm…

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May 2, 2019

It feels awful to know I’m failing my wife and kids

We had Elliott to Akron Children's Hospital yesterday. It was a routine follow up in behavioral health. We discussed any concerns we had. We talwdat things are going well and what needs work. We also follow up on medications and make sure we're still on the right track with that as well. I personally feel like Elliott is making a serious effort in many areas, and I made sure to bring that up. I'm incredibly proud of him because I know that life in our house isn't easy. That said, there are still things that he needs to work on as well. That's not anything against him at all. He's a newly minted teenager, and that's never easy, especially when Autism factors in. One of the things that Elliott is…

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May 2, 2019

My thoughts

Another day

It's another day, and that means a clean slate. The boys are heading off to school, and I'm going walking. We don't have any plans for today, and I'm okay with that. Well, Gavin has therapy tonight, but that's about it. I'm hoping to get some writing done and maybe, a bit of housework as well. I haven't seen Gavin yet this morning, so I've no idea what we're dealing with in that regard today. Time will tell.

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May 1, 2019

Autism Parenting Struggles / Emmett John / My thoughts

I almost had to kick in my son’s bedroom door tonight

We had an incident tonight that sorta derailed our evening. I had assigned everyone a chore to do after we got home from dinner. They were all simple things like feeding the dog and changing the trash. I asked Emmett to split up the new bottle of hand sanitizer between the bathroom and the kitchen. We buy a large bottle and use that to refill the two smaller bottles we have in the house. Anyway, Emmett ended having a rough time for some reason. He had spilled some on the front of the new bottle, and because there's alcohol in it, the ink on the label bled. He was doing this in the bathtub for some reason, and the ink left blue marks all over the bottom of the tub.…

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April 30, 2019

Akron Children's Hospital / My thoughts / Pediatrics / Psychiatry

So far so good

We've made it halfway through the day, and things have actually gone smoothly. Emmett's back at school, and we're in the waiting room at Akron Children's Hospital for Elliott's appointment. A huge thank you goes out to Lizze's Mom because she was willing to hang out with Gavin after he was done with his blood work. This way we didn't have to drag him around with us all day. It wouldn't have been fun for him, and I needed a break from his constant updates about his new Keyblade. We'll get Elliott some lunch and then head back to pick up the kids when we're done here. We have family therapy at 5 PM, and then we're going to meet my family for dinner. That's a last minute thing, but…

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April 30, 2019

My thoughts

The incessant talking is slowly eroding my sanity

It's going to be a hectic day. We have four appointments to get to, and the logistics are a bit challenging. Emmett has an appointment for his legs this morning. We will drop Elliott off at school and head straight to Akron Children's. Lizze and I will need to divide and conquer because, on the way to Emmett's appointment, we have to drop Gavin at the lab to get his blood drawn for the week. After we're done, we'll drop Emmett off at school and likely head home for a short time before returning to the school for Elliott. From there we head to Akron for a few hours. Lizze's Mom is going to pick up Emmett at school, and we'll probably pick him up on the way home. We…

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April 30, 2019

Akron Children's Hospital / Emmett John / My thoughts / Pediatrics

Just added a 3rd doctors appointment this week

We already have two out of town doctors appointments this week. The first is for Elliott, and it's in Akron, and the second is in Cleveland for Mr. Gavin. This translates to a shitload of driving that will far exceed the actual time spent in each appointment. Now we're adding a third appointment. This one is for Emmett and is in regards to his leg pain. It sounds like it could be growing pains, but with all the crazy things we have going on, we'd feel better having him checked out. I'm a little concerned because he says it's his bones that hurt and that it's not muscle pain. Either way, he's struggling, and if there's something we can do to help him, we want to know what that something…

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April 29, 2019

Contributed

What Are You So Scared Of?

It sad to say but the harsh truth of living in the modern world is that most of us live our lives in fear. That might sound kind of dramatic but you can see it all of the time. You see people who get trapped in the kind of life that they never wanted and doesn't make them happy but they put up with it because the idea of something else brings with it the fear of things going wrong and a lot of people really would rather put up with an unhappy life than take that risk.

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April 29, 2019