Common Variable Immunodeficiency Archives - Page 62 of 260

I’m feeling a little better about today

I know we had a rough morning because I was there. That said, I'm feeling a little better about things because I'm seeing some positives. First of all, Gavin's IVIG infusion went very well. He's struggling to do it himself, and for right now, I'm not going to push him. It's easier if I do it for him, at least for the time being. There was no leaking today and I believe it took less than an hour to complete. By comparison, last Friday's infusion took over four hours. This is definitely a positive thing. Second, I called the school to check on the boys, and they seem to be doing okay. Both boys have been in their respective classrooms, and there's been no contact with the office, meaning the…

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August 26, 2019

Elliott / Emmett John / My thoughts / New Beginnings

We’ve had an absolutely heartbreaking morning

I've mentioned many times in regards to my wife leaving that the kids and I are going to have good days and we're going to have bad days. Over the last couple of weeks, we've been lucky enough to have more good days than bad. Unfortunately, today is a bad one. Our morning started out well, and then it very quickly fell apart. While getting ready for school, Emmett had a very emotional breakdown and became inconsolable. He screamed things about how we're a broken family and how other families are happy and having fun, while we're traumatized. Those are his words. He said a few other things but you get the point. He's demanding answers to things that only his mom can answer, but probably won't and rightfully so.…

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August 26, 2019

My thoughts / New Beginnings

I wasn’t sure how this would turn out

We had a pretty good weekend, and I'm grateful for that. I survived my first birthday as a single Dad, and the boys had a pleasant visit with their mom. Those are all very positive things. While the boys we're gone, I worked on the house and made some decent progress. I also made it to the grocery store and picked up what I needed to make school lunches for the week. I've been making homemade pepperoni rolls out of pretzel rolls, and the kids love them. It's a nice change from pizza every day. When the boys got home from their visit, we put the pepperoni rolls together, and I baked them. It's nice letting them be a part of the process because they're more excited about it and…

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August 25, 2019

My thoughts / New Beginnings

It’s been a positive day

I made some serious progress on the house today while the kids were gone. There's still a lot of work to be done but progress is progress. As far as I can tell, the boys had a great visit with their mom, and that's awesome. I want them to have a good relationship, and I'm glad they had a good time. We haven't worked out a visitation schedule yet because her situation is complicated and a standard plan will not work. Anyway, the boys had fun, and now we need to gut the ferret cage and make it smell better.

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August 25, 2019

My thoughts / New Beginnings

The kids have their 2nd visit with their mom today

It's going to be a quiet day for me. The kids are going to visit their Mom for the afternoon. They're leaving a little before lunch and will be home in time for dinner. That gives me the day to myself. I'm not super thrilled about having the day to myself cause I'll miss the kids, but it will give me a chance to watch John Wick 3. I'm stoked about that for sure. I need to focus on putting the house back together, and I have to get stuff for lunches. I'd like to have all that done before they get home. I don't know what kind of mood they're going to be in when they get back, so I want to let them come home and chill. Maybe…

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August 25, 2019

My thoughts / New Beginnings

You will not believe the day I’ve had

I'm going to be honest with you all and say that I really thought I was going to have a terrible day. I had assumed that because of everything going on that I would be an emotional mess today but as it turns out, I was wrong. I've been getting messages and phone calls all day from people who wanted to make sure I was alright. They were concerned that I was going to be having a difficult day. For those new to the party, the reason people were concerned is that about two weeks ago, my wife of damn near sixteen years left. It was right before my birthday and our anniversary, which is September 3rd. I was devastated when she left, as were/are the kids. I hadn't seen…

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August 24, 2019

Cats / Family Pets / Harley / My thoughts

So this normal for a cat?

So we got this kitten about six weeks ago. I'm not a cat person by this cat is pretty amazing. There's a million interesting things about Harley but the most interesting for me is her attachment to Elliott and Emmett. Every single night, she sleeps face to face with one of them. She often literally sleeps with her paws on their face. Maybe this is normal cat behavior but I've never seen it before. She usually starts out with Emmett and then at some point, moves to Elliott. It's like shes protecting or looking over them while they sleep. The kids find comfort in this and that makes me happy. Does anyone else have a cat that behaves like this? Also, the kids are considering changing her name. Lizze had…

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August 24, 2019

My thoughts / New Beginnings

I’m feeling optimistic about my new life

Mr. Gavin is currently doing his IVIG infusion, and I'm just hanging out in my room, trying to think. The boys are watching a movie and getting along, so I plan on letting that play out. They're stressed out and tend to take it out on each other. I'm thrilled they're getting along. Over the last few weeks, our lives have been turned upside down and we've been shaken to the core. At the same time, it's also a chance at a clean start and a new beginning for my kids and me. One of the immediate things I'm focusing on is getting the house in order. Organized chaos will not reign supreme in this house much longer. I want the boys and I to make this our home, until…

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August 24, 2019