Common Variable Immunodeficiency Archives - Page 6 of 260

I’m so frustrated with society right now

Today has truly been a mixed bag but at the end of the day, we're still here. I recorded my second interview today, since going on hiatus. I've put together a new setup that works so much better and it didn't cost me a penny. I was able to adjust the way I used existing equipment to dramatically improve the way I do things. It's going to makes things so much easier for me. I had the most fascinating conversation about summer learning with Matthew Boulay, PhD, and I'm hoping to have the episode ready in the next few weeks. The kids were so cooperative for the time I need to record and I'm so grateful for that. We spent some time playing video games together and while we tried…

2 Comments

June 20, 2020

Artwork / Gavin / My thoughts

My #autistic kids can say and do the most random things

I promised Gavin I would get this out there tonight and it's currently 1:34 am EST and as my eyes are rolling into the back of my head, I'm determined not to let him down. This will however, be brief. ☺ Gavin absolutely kills me sometimes. Yes, he has his challenges and yes, I can become frustrated with certain behaviors. That pretty much makes me human and try not to beat myself up too much for that. At 20 years old, I've been raising Gavin as my own for 19 years now. He never ceases to amaze me. Gavin is hands down one of the kindest, most thoughtful, most gentle human beings I've ever had the pleasure of knowing. He just is. At the same time, he can say and…

2 Comments

June 19, 2020

Parents of Autistic Kids Need to Understand the Law

Any parent will tell you that no two children are alike, and this even more so for the parents and guardians of kids with autism. Indeed, all kids are a gift, and it takes a lot of nurturing and care to see them fully blossom and meet their full potential. The challenges that the parents of autistic children face are unique, but definitely not insurmountable. Once you learn about how to structure your child's life so that they can have routines and know what triggers to avoid, you have to address how your family is going to navigate the outside world. This also includes becoming somewhat of an expert in the areas of law that will impact and best protect your child. Your Children's Rights within the Education System Children…

0 Comments

June 18, 2020

Link / Sponsored Post

5 Ways to Give Your Senior Loved One a Happy Life

Dealing with aging parents can be tough on both ends. Your senior parents are grappling with extreme life changes that might change their behavior and affect their moods. If you want to help your senior parents live out the rest of their days as happy, healthy adults, there are a few things you need to do to make sure that happens. Here are five ways to give your senior loved one a happy life. 1. Help Them Accept That Things Have Changed Change isn't easy for any of us, but seniors dealing with transitioning into the later stages of life might find it especially difficult. They might no longer be able to be as independent as they once were and take care of simple tasks like going grocery shopping or…

0 Comments

June 18, 2020

My thoughts

My terrible parenting moments

This is one of weaker parenting moments of late.

2 Comments

June 18, 2020

My thoughts

A quick update

I've slowly been getting myself back into gear with the podcast. I've taken the last month off and it's been so much less stressful but at the same time, I miss doing it and really want to get things moving again. I've begun scheduling recordings this week and while I'm a little nervous, I'm also excited because I'm going to be adjust my setup in a way that will make this process much smoother. I'm not gonna lie. The downtime was really nice and there's a part of me that doesn't want to get this going again but I'll regret it if I don't. Anyway, I wanted to drop a super quick update on this cause it's been a little while. In other news, there's been a hiccup in the…

0 Comments

June 17, 2020

My thoughts

The #meltdowns were awful today

Today's been a bit of a struggle for a number of reasons. The most obvious is the COVID19 stuff but today is also the one year anniversary of my grandmother's passing. I've been a bit distracted today so it didn't really hit me until bedtime. The kids found me crying in my room tonight and I had to remind them of what day it was, which created distress for them. It sucks losing family and she was the end of an entire generation. I really miss her. Gavin had a few blow outs today and I'm not sure what is going on with him. He doesn't remember about my grandma, or at least that today was a significant day. He's been decompensating due to everything happening around him, mainly the…

1 Comment

June 16, 2020

COVID19 / Lockdown / My thoughts

We’ve been on #COVID-19 Lockdown for 100 Days

We hit a milestone today that was not on my 2020 bingo card. The kids and I have been on COVID-19 lockdown for 100 days now. When I say lockdown, I mean zero contact with anyone in 100 days. The only exception was the kids seeing their mom for two or three days after her household went on quarantine for two weeks. This has been a pretty strick lockdown due to the fact Gavin is immunocompromised. While I don't think he's necessarily more likely to catch it, he's more likely to have a negative outcome, therefore he's considered very high risk. I have to take this very, very seriously and so we've spent the last 100 days making sure that we are quarantined, so there is as little risk as…

3 Comments

June 13, 2020