Common Variable Immunodeficiency Archives - Page 40 of 260

I’m not f*cking perfect and never claimed to be

This started out as a reply to a supportive comment left on the previous post: A Massive, Overdue and Heartbreaking Update but took on a life of its own and is better suited as a dedicated post. This is basically in response to comments about my parenting and how I'm not doing enough for my kids. It's so easy to stand on the outside looking in and judge my parenting or assign blame but the reality is that there are very real limits as to what I can actually do because the system is broken. Gavin could potentially get into a day program and that's something on my to do list. The big problem is that funding is so limited. Where I live, DD has to be able to match…

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November 8, 2019

General Update / My thoughts

A massive overdue and heartbreaking update

It's been a few days since I've written much and there's a few reasons for that. Firstly, the podcast is gaining traction and it's requiring a good bit of my time. Secondly, I'm having a hard time focusing on writing. Thirdly, and this ties in with difficulties in focusing, I'm struggling in general. With the holidays approaching, I'm beginning to face the reality that my family has been torn apart. It's not like I didn't already know that but the holidays are really important to me. It's like, no matter what else is going on around me, I had my wife and kids. At the end of the day, that's all that mattered. The holidays are all about family and now mine is broken. It's going to be hard for…

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November 8, 2019

My thoughts / Podcast / Season 2

Melissa Hruza on adoptaclassroom.org and funding teachers? (S2E5)

This week Melissa Hruza, Director of Marketing and Corporate Sponsorships at adoptaclassroom.org stopped by to discuss how they are helping teachers and students all over the country, find the funding they need. So many teachers have to pay for classroom necessities out of their own pocket and that's simply unacceptable. Adoptaclassroom.org is a national, award-winning nonprofit that provides the most flexible and accountable funding for K-12 teachers and schools throughout the U.S. Their proprietary, easy-to-use education fundraising platform helps teachers, principals, and administrators give every child the tools they deserve to succeed in school. Since 1998, they have raised more than $36 million and supported 4.5 million students. As a 501(c)(3) organization, they hold a 4-star rating from Charity Navigator. In other words, they are doing amazing things for our…

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November 7, 2019

Sleepless children is a major issue in many households

Not only does a sleepless child struggle with behavior, mood, and focus the next day, they often end up keeping the rest of the family up during the night as well. Most children, when it comes to struggling to sleep take a long time to relax and fall asleep, wake up often during the night, and don’t get enough hours of total sleep. If your child is not getting the recommended amount of sleep, the effects can compound and sleep deprivation can result. The National Sleep Foundation recommends that preschool children receive 11-13 hours of sleep each night, school-age children, 10 -11 hours, and teenagers, 8 - 10 hours. Because the recommended sleep time decreases with age, the recommendation for adults is 7-9 hours of sleep per night. Side effects…

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November 6, 2019

My thoughts / Sponsored Post

How to Save Big by Parking at LAX Airport Hotels

When planning a trip, you have a lot of decisions to make. Not only do you need to find the appropriate accommodation, book a flight, and organize a transfer from the airport, but you must also organize your trip to the airport. If you’re driving to Los Angeles Airport, we suggest that you reserve a suitable parking facility in advance; and finding the perfect parking spot can be complicated and overwhelming.You should factor in the location of the parking lot, the cost, and the length of your trip. Therefore, there are a lot of choices to make - whether to choose on-site, off-site, cheap and uncovered, covered parking, expensive valet service, and so on. Of course, one of the most important factors is usually the price. All things considered, the…

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November 5, 2019

My thoughts

I’m not ready for this but I have no choice

The boys got to school on time but I didn't go walking because we were rained out. As a result, I spent the morning editing audio for Friday's podcast release. You can get caught up here. I'm really excited about the next two episodes because they are with incredible organizations that do amazing work in the community. I was able to get most of the audio done while Gavin was sleeping this morning. At the moment, we're currently waiting for the kids to walk out of the school. They've been having a much easier time going recently and that's always positive. As I mentioned before, it's going to be a short week. Thursday we have parent teacher conferences and to be completely honest, it's going to be a very uncomfortable…

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November 5, 2019

My thoughts

I feel like I’m finally beginning to catch my breath

I'm exhausted. I'm so tired I forgot to bake pepperoni rolls before going to bed tonight. I suddenly remembered and dragged myself downstairs to get that done. It only took about an hour, so not a huge deal. There wouldn't be time in the morning. It's been a really positive day. At least, that's how I feel anyway. I recorded an interview this morning with an absolutely amazing organization out of New Jersey, that is devoted to the special needs community. I was speechless at times during the interview because I'm so amazed by what they're doing. That will air next Friday. After the kids got home from school today, I had a second interview. The kids did amazingly well in the let Daddy work department today. I'm both grateful…

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November 4, 2019

Everyday Life Lessons / My thoughts

I’m so insanely f*cking proud of my kids this weekend

I wanted to share something cool that happened while at the grocery store this weekend. I'm always working with my kids on life skills and putting them in real-world situations, so they can learn to navigate life. Grocery shopping presents many such opportunities and I took advantage of one yesterday. As I've mentioned several times, I'm making the boys homemade pepperoni rolls for their school lunches. I buy pizza dough and sliced sandwich pepperoni every week and bake them fresh every other day. While at the store, I asked Gavin if he thought he could go to the deli and order 1lb of thin sliced, sandwich pepperoni. He said he'd try. I stood back as a reasonable distance and watched him. I was close enough that I could help him…

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November 3, 2019