Why Gavin’s important treatment was withheld

With everything that went on Monday, we weren't able to get to Gavin's IVIG infusion. He's supposed to receive these infusions on Monday and Friday, but sometimes it doesn't always work out.  Getting this done a day later isn't a huge problem. There is some overlap in this schedule, and that's by design. We never make it a habit of putting these infusions off, because they are a very serious thing. Without receiving these donor antibodies, Gavin's body wouldn't be able to fight off illness. It's a pretty big deal.  The main reason we pushed his IVIG infusion back a day this week, is because he was complaining of reflux.  These infusions provide him with the immune system his body naturally lacks however, it takes a lot out of him. If he's not feeling well, we try…

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You won’t believe what he looked like

I think Emmett had a pretty good birthday. He had received his birthday gift early from us, but we had a special dinner tonight. We're actually going to officially celebrate on Friday or Saturday.  We were going to go to Chuck E Cheeses, and use the guest passes we received after our horrible visit a few weeks ago.  Unfortunately, they were crazy busy and we decided to put that off for another day.  We've sorta started a new tradition with the kids. Lizze and I will take the birthday boy out for some special time as Emmett calls it. Right now, Emmett is debating between Chuck E Cheeses, and going to see the new Transformers movie.  My vote is for the movie, but whatever makes him happy. ☺  I did…

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He’s happy so that all that matters. Right? 

My babies have arrived home from their grandparent's house. It's really nice to have them home again.  Emmett and Elliott are getting along pretty well, making the reunion even more awesome than it otherwise would have been. Gavin is pretty much Gavin.  He's feeling pretty good, but is hold up in his bedroom, with his hallucinated friends. He's happy, and that's what matters the most. Having said that, it does suck horribly as a parent to see this happen. 

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Tough time sleeping

I had a really hard time sleeping last night. I think it was mostly allergies because I was really stuffy. Anyway, Lizze and I both slept in because we could. She's off to class, and the boys should be home from their grandparent's house any minute. As much as I need a break from the stress and chaos, I really miss them when they're gone. Actually, they just got home, so I'm going to cut this short for now. :-)  

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Why we spent our down time feeling down 

We've had a really long day. It was a mixed bag of good and bad, but it was a day we survived. In fact, there were even some times we thrived. ☺  I mentioned in a previous post that Elliott and Emmett had me up for most of the night. As a result, I got off to a rough start this morning.  Lizze was struggling as well because of one of her health issues.  We had a relatively lazy afternoon because we both felt like shit. It sucks that we had to spend our down time feeling down, but if the kids were here it would have been so much more difficult.  Thankfully, we both felt better as the afternoon wore on. After dinner, we went for a nice long…

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All that matters is that they get to go

The boys are gone, and on their way to the Akron Zoo with their Grandparents. That's a bit of mixed emotion for us, because we wanted to take the boys, but all that matters is that they get to go. We'll just take them to the Cleveland Zoo in a few weeks.  As far as how Lizze and I are going to make use of the time, that's changed a bit.  I was able to get some sleep after a sleepless night with the boys. As a result, I feel much better. Unfortunately, the same can't be said for Lizze.  After eating lunch this afternoon, she's now sick to her stomach. This time is particularly bad and she's down for the count. It's a Gastroparesis thing, and will eventually pass…

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This can really take it out of an #Autism parent

Lizze and I will be getting a break this fine Sunday. The boys will be spending the day, and subsequent night with their Grandparents.  It feels like we haven't had a night off in forever, but it's only been about two weeks. It's amazing how two weeks of raising three kids with Autism can take it out of a parent.  I'm not sure what we're going to do with our time. Perhaps we'll catch up on some sleep. Maybe we'll go for a walk, or catch a dollar movie. The whole point is to have some time away from the boys and devoted to ourselves.  We're so grateful for the time, regardless of how we end up using it. ☺ 

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Gavin’s having health issues tonight

You may recall that Gavin sorta refused his IVIG infusion this morning, because he had a mission to go on first (see Why I'm worried about Gavin today). We were simply going to do his infusion tonight, because it wasn't a huge deal. It was the fact he wanted to put it off, and the reasons why he wanted to put it off, that concerned me.  After dinner, he was getting ready to get his supplies together, and he got hit with some major reflux. It put him down for an hour or so because he wasn't feeling well.  I decided that we would put his infusion off until the morning, because he's already struggling and the infusion is pretty rough on his body.  Once the reflux subsided, he was hit…

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