Read more about the article A couple reasons I’m feeling blessed
Blessings / My thoughts

A couple reasons I’m feeling blessed

We have a lot going on right now. At the time of publication, we still haven't received the results from Gavin's labs drawn a few hours ago. I'm on edge and feeling like I'm losing my mind.  Inside all the chaos, fear, worry, and heartbreak, I'm managing to focus on the blessings.  Right now I just want to share how blessed we are to have such supportive families. I'll only speak to our parents because they are the most actively involved and deserve to be singled out.  Both Lizze and I have very, very supportive parents. There's rarely a time that we've not been able to call them at the last minute to watch the boys when something comes up. Between our parents, we are able to get breaks from…

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August 2, 2017
Read more about the article My little shelf straightener
Emmett John / My thoughts

My little shelf straightener

Emmett and I made a quick trip to the grocery store. Ever since he was little, he would stop as he was going down the aisle, and straighten up the shelves. He's even put things back where they belonged.  At that point in time, Monk was still on TV.  Emmett reminded me so much of Adrian Monk, and that's a compliment because I loved that show.  I took this picture yesterday. My little Monk still has it. ☺ 

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August 2, 2017
Read more about the article Hurry up and wait 
My thoughts

Hurry up and wait 

We just got back from having Gavin's bloodwork redone. It's gonna take a few hours before we hear anything back. I can't explain how long the next few hours are going to be.  One of the things we've had to learn over the years, is how to hurry up and wait. I'm so nervous and I just want to know what's going on. 

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August 2, 2017
Read more about the article Could this be a medical crisis? 
Gavin / General Update / My thoughts

Could this be a medical crisis? 

I wanted to update you on what I learned from Gavin's prescribing psychiatrist. They are going to get the refill pushed through to address the immediate issues of Gavin falling off the Clozapine and never again being able to use it again.  They want his labs redrawn and rerun first thing in the morning.  Before we know what to do next, we need to rule out a lab error. This is why we're continuing with the Clozapine at this point. If we stop the Clozapine and it turns out to be a lab error, Gavin will likely love life as an unmedicated schizophrenic. There aren't any other antipsychotics that would be considered safe for him, at least as of right now.  If the numbers prove to be correct and his…

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August 2, 2017
Read more about the article We need your thoughts and prayers
Gavin / Thoughts and Prayers

We need your thoughts and prayers

I received a call from the pharmacy this afternoon, in regards to Gavin's Clozapine refill. Apparently, there are problems with his lab work from this morning, and he may not be able get his meds refilled. The reason Gavin gets blood work so frequently, is because we must ensure his white blood cells count before they will release another refill of his Clozapine. One of the big concerns with Clozapine is its impact on white blood cells. For the first time in close to five years, his white blood cells count has taken a significant hit. Neutrophil count is what they are looking for, and they range from 1.5 - 8.0, at least from what I can find. Gavin's Neutrophil has dropped down to 2.0. This is alarming and we…

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August 1, 2017
Read more about the article We have a new diagnosis and you won’t believe what it is
Blessings / Cat / Cats / Cleo / Family Pets

We have a new diagnosis and you won’t believe what it is

It's been a stressful morning for all of us. We had two appointments this morning before having to get our cat Cleo to the vet again. We were worried that she may need to be put down and that wasn't something we were prepared for.  We spoke with the kids and explained that she's most likely going to be fine, but there's a chance that she won't be. That went about as well as you'd expect, but it was necessary.  I was able to get ahold of my Mom, and she took the boys at the last minute, so they wouldn't have to go with us.  Long story short, Cleo has lost one pound since her last appointment aboht two months ago. When the vet was checking her out, he…

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August 1, 2017
Read more about the article I’m not coping so well this morning
Autism Parenting Woes / My thoughts

I’m not coping so well this morning

The boys are obsessed with Pokémon Go. I normally don't mind because it gets them outside and moving around. This morning however, I'm not coping with life as well as I could be, and Pokémon Go is driving me crazy. It's all the boys are talking about and I can't escape it. We're currently waiting for Gavin to get his bloodwork done, so we're all locked in the car together. I wish I could just tune it out like I normally do, but I'm unable to this morning. The boys aren't doing anything wrong, they're just being themselves. Don't get me wrong, I love who they are, but I don't have to love Pokémon Go. Does you child with Autism obsessively talk about one subject? Does it drive you crazy?…

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August 1, 2017