Common Variable Immunodeficiency Archives - Page 22 of 260

Did you know caffeine hits kids with #ADHD differently?

We all know that kids with ADHD respond differently to stimulants. That's why medications like Adderall help to calm them down and help them focus. That's pretty common knowledge. Did you know that this applies to caffine as well? Emmett is very much living the ADHD life style and it can be frustratingly difficult to manage. I have found that in a pinch, or the absence of medication, coffee works amazingly well. I asked his doctor about it cause I wanted to learn more and while they don't necessarily endorse giving a child coffee, it does work. It's not like he drinks alot of coffee but on occasion I'll let him order some and it really helps to calm him down. His mom is the poster child for Adult ADHD…

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February 11, 2020

My thoughts

I’m afraid it’s a Man Cold

It's been a long day and I keep thinking it's Sunday. At the time of writing, it's still Saturday but all the days are slurring together. It's becoming more and more apparent that I'm getting sick. I'm hoping it's just a regular cold and not the dreaded Man Cold. Unfortunately, I'm prone to Man Colds and they usually knock me on my ass. I picked up some cold medicine today and I'm hoping that takes the edge off. The kids are getting worried that this is going to interfere with our trip and depending on how sick I get, it could. One of my least favorite parts of being a single parent is when I get sick. My parents are out of town and that means I'm pretty much on…

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February 10, 2020

I really miss my morning walks

I cannot wait to get back to walking every day. Since Emmett has been struggling with school, getting out to the park has proven challening. I miss the sense of peace I find while out in nature and it's a big part of how I manage my stress and depression. I'm really hoping that this trip hits the reset button for us and we come home in a better place. I don't expect it to be perfect but the change of environment should be good for all of us. Giving back is always a positive thing and I want the kids to gain a little perspective. No matter how bad we may feel or how difficult our lives can get, there are always people out there struggling with more. Anyway,…

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February 10, 2020

Emmett John / My thoughts

This is a really big day for my youngest

This is a big week for us. Emmett is slated to return to school for 3 hours a day. He's nervous but he's also excited at the same time. We've been talking about it this weekend and he seems resolved to make this happen. I'm praying it goes well with because he has needs to get back to school full time ASAP. Unfortunately, I need to be in 2 places at once on Monday monring. I have to have Gavin in Cleveland to see his immunologist first thing in the morning and I won't be here to pick Emmett from school at 11 AM. My parents are unavailable this week and so I had to make arrangements for Emmett's mom and grandmother to pick him up. I'm really grateful for…

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February 9, 2020

My thoughts

OMG… I Can’t Be Getting Sick

The boys spent the night at their mom and grandparents house last night. They don't get very much time with her and I have no control over that. They just got home early for some reason but it seems to have been a good visit and I'm always grateful for that. I want more than anything for the kids to find a way to rebuild their relationship with their mom and move forward. That's very important to to me. It's proving to be a challenge but it's well worth the effort. I'm not in a good mood because I woke up not feeling well and the kids are bouncing off the walls. I'm not sure if it's just a cold or what but I feel it coming on. We have…

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February 8, 2020

An update on my #Depression management

I wanted to make a quick update on my current methods of managing my depression. It occurred to me that I haven't updated in awhile and since I have therapy is a few hours, I thought it would be a good time. At the end of the day, I'm doing okay. Things could always be better but they could absolutely be worse. I'm holding my own. Currently, I'm in therapy, taking meds and focusing on selfcare. One of the the things that I'm contemplating looking into CBD again. I've used it in the past and they did help, especially with my anxiety. I checked with my doctor first and it worked out well for me. There is a lot of science behind it but everyone is different. There are a…

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February 7, 2020

Akron Children's Hospital / Emmett John / My thoughts / Optometry

One of the challenges I face as an #Autism Dad

I'm so fucking tired and I'm going to make this quick. Emmett's eye appointment went well. He needs new glasses, which have already been ordered. The spots in his vision don't seem to have a physical cause and at this point, are not something to worry about. We do need to keep an eye on them going forward. One of the difficult parts of raising a child with Autism is communication, at least in my family. My kids are brilliant and most have extraordinary language skills. The problem is that they struggle to express anything related to themselves. Introspection is not an area of their life in which they are gifted. This is also on if the biggest obstacles that impede progress in helping them deal with their mom leaving.…

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February 7, 2020

Akron Children's Hospital / Emmett John / My thoughts / Optometry

Back at @AkronChildrens Hospital again today

It's been a crazy busy morning. Elliott never fell asleep and Emmett was up on and off throughout the night as well. Both boys made it to school today but Elliott was in an awful mood. Emmett was only there for a short time cause as soon as I was done walking, I needed to get him to Akron Children's Hospital for his eye exam. Emmett's been complaining about seeing spots that actually block his vision. He thought it was normal, so he never said anything about it until recently. We're currently in the dilation room waiting for the second part of his exam. He's doing pretty good, even though he hates the eye drops. I'll let you know how it goes.

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February 6, 2020