Common Variable Immunodeficiency Archives - Page 177 of 260

This is what we learned at The Cole Eye Institute today

It's been an exhausting day full of walking, waiting and driving. Gavin's final appointment of the day was at The Cole Eye Institute this afternoon. The appointment went well but it took forever. I honestly felt like we had been forgotten. The good news is that Gavin's eye checked out and they are basically perfect. The bad news is that we still don't know for sure why he's having visual blackouts. The current theory is that these blackouts are caused by migraines. Everything else has been looked at and aside from the pending EEG results, we've eliminated every other possibility. Until we find anything else, we're going with migraines for now. Appointments like these are maddening because all we want are answers and all we end up getting are more…

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January 3, 2018

Adult Epilepsy Center / Cleveland Clinic / Epilepsy / Gallery / Gavin / My thoughts

His EEG is done and Gavin is in good spirits

Gavin's appointment with the Adult Epilepsy Central at the Cleveland Clinic went as well as could be expected. His EEG went fine physically but we won't have any results back until later this week. They did seem to take note of abnormalities but there was nothing I could pick up on for sure. If this has been an EKG, I'd be all over it but I can't read EEG's. Gavin was really cooperative and made lots of awkward attempts to engage the techs in conversation. 😁 I think they really enjoyed working with him because Gavin was so polite and courteous the entire time. EEG's are not comfortable, especially for someone on the Autism Spectrum, dealing with several Sensory Processing Disorder. I was told to call back if I haven't…

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January 2, 2018

Adult Epilepsy Center / Cleveland Clinic / My thoughts

We made it to the Adult #Epilepsy Center at the @ClevelandClinic

We finally made it to the Adult Epilepsy Center at the Cleveland Clinic. Traffic sucked and the weather got worse the farther north we went. Gavin didn't have any problems on the way up, he just chilled in the back seat listening to music the whole way up. Not only did we make it but we made it a few minutes early. ☺ Gavin's feeling okay and that will make today that much easier. We have a lot of walking to do and if he wasn't doing well, the walk would be too much for him. We are currently waiting to go back for his EEG. Praying everything goes smoothly.

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January 2, 2018

Gavin / My thoughts

He’s the bravest kid I’ve ever met

It's super cold this morning and that adds some extra suckage to our early start to the day. On the plus side, I slept pretty well and feel perfectly capable of battling traffic on our way to Cleveland. ☺ At the moment, I'm sitting in the parking lot waiting for Gavin to emerge from having his blood drawn. This poor kid is going to feel like a guinea pig today because of all the testing he having done today. The blood work this morning should be the only needles he has to experience today and there's comfort in that. I can't explain how much admiration I have for Gavin. He never, ever complains about having to go through any of these things. He's easily the bravest kid I've ever met.

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January 2, 2018

Cleveland Clinic / Gavin / My thoughts / Optometry / Pediatric Neurology

Is Gavin losing his vision or is something else wrong?

We have a super long day ahead of us. It begins with early morning bloodwork and getting the kids ready to spend the day at my parents house. While the boys are at my parents house, the rest of us will spending the day at the Cleveland Clinic. Gavin has a long day of testing at the afore mentioned Cleveland Clinic. The purpose of this testing is to rule out and or discover the cause of Gavin's vision problems. For awhile now, Gavin's been experiencing periods of time where his vision goes completely black, like someone turned out the lights. We have been unable to determine the cause of these episodes and our goal for today is to at least rule a few things out. There are two areas of…

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January 2, 2018

My thoughts / Sponsored Post

Spice Up Your Life With These 3 Easy Tips

This is a contributed post. Treat yourself There’s never a bad time to treat yourself, even though it’s good to make sure you’re saving money for emergencies. While doing so, don’t forget to live in the moment and give your current self the satisfaction you deserve. It can be pretty hard to continue with your daily plans when you don’t feel as if you’re getting anything from them, so you need to make sure you constantly feel refreshed and rewarded, as it helps to give you a sense of purpose. Plan a holiday Every now and then, it’s good for you to get away from the same day to day routine, as it can help to relieve stress. It’s bad for your mental health to let everything just build up,…

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January 2, 2018

Autism Parenting Insight / Gallery / My thoughts

What it’s like to take 3 kids with #Autism grocery shopping

You may or may not be aware of this little tidbit of information but taking three kids with Autism to the grocery store is one hell of a challenging task. I try to avoid taking all three kids with me whenever it's possible because I'm trying to preserve what little sanity I have left. LOL As far as this challenge goes, it could be much more difficult and I'm lucky in that department. For the most part, my kids are pretty well behaved in public. There are of course, situations that are outside of their control and the dreaded meltdown will make a very public appearance. The boys all have their quirks and things that can present challenges but it's just part of who they are. Here are a few…

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January 2, 2018

Common Variable Immunodeficiency / Gavin / Immunology / Medication Management / My thoughts

A major milestone and why it’s so important

We began the new year with yet another IVIG Infusion for Gavin. He needs these twice a week because his immune system is severely compromised. These infusions literally keep him from succumbing to things that most people's bodies will fighting off without them even knowing. This is a very serious, life threatening condition and there is no cure. In all the years we have been doing these infusions for Gavin, this is the first time that we're going into a new year with Gavin performing this procedure completely independently. This is such a major milestone for a kid who's terrified of needles because this process requires him to stick two needles directly into his belly. He's come such a long way and I'm so proud of him for learning to…

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January 1, 2018