Something has changed recently and it's already having a significant impact on things with my family. I haven't talked about this yet because I've been preoccupied with other things but it's already creating some challenging situations for us. When I partner with a company or organization, I almost always announce it, especially if I'm endorsing something. Likewise, when a partnership ends, depending on why it ended, I usually announce it because it keeps everyone on the same page. Guardian Locate comes to mind. I worked with that project for many years and it was a decent chunk of my income. When I chose to leave, I explained that I didn't agree with the direction it was going in. It was important to me that I announce the separation because I…

My experience with Wishes Can Happen this morning was quite profound. I'm completely emotionally drained and physically exhausted. At the same time, it was for a very worthwhile and and well worth the fallout. I'm not sure if people understand how difficult it can be to talk about one of the most horrible thing any parent can imagine, a child with a life-threatening or terminal illness. There are times that I'm able to live in a bubble and pretend that we are a normal family. I hate the word normal but in this case, I mean a family who's child isn't facing a life or death illness, with no hope for a cure. This bubble I sometimes retreat to is born out of necessity. It's purpose is to help me…

As far as days go, it's been a rough one. I'll talk more about it in the morning, after I do my interview thing for Wishes Can Happen. I really need some things to start going our way. It's pretty easy to feel defeated right now and I'm trying not to let everything weigh on me but it's so much easier said than done. Ive been battling with Spectrum all day, Gavin's IVIG infusion supplies didn't show up yet and we're out of supplies. That means we have nothing with which to perform Gavin's infusion today. Anyway, I need this day to end so I can wipe the slate and hopefully start off on a better foot. I'm overwhelmed, exhausted and need to sleep cause I have to get up…

Plans have changes a for the rest of the week. Nothing significant but it's still a change nonetheless and guess who doesn't like change in this house? That's right, everyone but me. I had prepared the kids for a certain schedule and while it's better that things got pushed up, it was still a variation from what they thought was happening. That said, Spectrum has already come and gone this morning. They were here before 8AM and the guy was really cool. Vivint is going to be here anytime in the next few hours and that's the big thing for today. We may need to get a whole new panel but we'll see what happens. The other thing that's changed is our participation in the Wishes Can Happen Wish-A-Thon. We…