Read more about the article Once upon a time when he could remember
Gavin / My thoughts

Once upon a time when he could remember

As time goes by, it becomes more and more apparent that Gavin's entire state of being is in decline. One of the most impactful for him, at least from my perspective, is his memory loss. Memory loss is probably not the right word choice because it's more like unable to remember than it is losing memories he already has. The latest example of this is from a few minutes ago. Gavin is continuing to lose weight and his gastro put him on Ensure. He's supposed to drink one with every meal, totalling three a day. We've talked about it many times and he's specifically asked about when he was going to get the Ensure, so he can have one with each meal. There was a delay with his shipment of…

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September 12, 2018
Read more about the article What’s more challenging than a child with #Autism?
Autism Parenting Struggles / My thoughts

What’s more challenging than a child with #Autism?

One of the few things more challenging than raising kids with Autism is raising kids with Autism while they're sick. Last night Elliott spiked a fever of almost 104 °F and Emmett began coughing and hacking. Elliott's home from school for the second day and Emmett's now home as well. Both are quite miserable. Miserable kids can be challenging enough but add in Autism/sensory issues and things get way more challenging. Kids with Autism tend to feel and experience things so much more intensely, especially when sensory issues are involved. Things like runny noses, stuffy heads, sneezing, coughing and headaches can be tough for anyone but forany kids with Autism, these are absolute nightmares. I'm still sick as well and life in general pretty much sucks right now. I've got…

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September 12, 2018
Read more about the article This is just 1 example of why being an #Autism parent is so exhausting
Autism Parenting Insight / Emmett John / My thoughts

This is just 1 example of why being an #Autism parent is so exhausting

Today's been a nightmare. I didn't sleep last night and that certainly doesn't help things at all. Gavin had a doctor's appointment this morning, right after the kids needed to be at school. Unfortunately, Emmett woke up with a tummy ache, which usually is the result of some underlying stress. It's nearly impossible to weed through everything with him and figure out what's going on beneath the surface because he struggles with self-awareness. What I mean by that and perhaps I used the wrong term, is that he's not able to tell you what's upsetting him, how he's feeling or what he needs, especially when he's upset. It's very challenging because Emmett is can be very insightful when it comes to other people and their feelings but he's often unable…

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September 10, 2018
Read more about the article One less thing to worry about
Clozapine / Gavin / My thoughts

One less thing to worry about

Right after getting the boys to school this morning, Lizze and I will be taking Gavin to his psychiatrist. This should be just a follow up and the fact it's so close to his hematology appointment is purely coincidence. On the plus side, we'll be able to talk about what we learned while it's still fresh on my mind. This should put to rest our current concerns over the Clozapine, at least for now. With a medication like Clozapine, you can't let your guard down and you must remain vigilant with things like bloodwork. We basically learned that the side effects of Clozapine, specifically in regards his ANC dropping, isn't as big of concern as we originally thought. This takes a little pressure off because at this point in time,…

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September 10, 2018
Read more about the article I made more weight loss progress today
Autism Parenting Advice / Fit4Autism / My thoughts

I made more weight loss progress today

For the past few days, it's been raining here in Northeast Ohio. The old me would have used that as an excuse to stay home and not go walking. The new me still wasn't excited about the idea of walking in the rain but I did anyway. This morning it was in the 50's (°F) and the rain made a chilly walk but I went. I keep seeing progress and that helps to keep me going. When I stood on the scale this morning, I saw the number 305 staring up at me. I'm officially down 35 lbs over the last six months or so. Slow and steady but sustainable. ☺ I'll probably be walking in the rain again today, depending on how hard it's raining. Anyway, I hope all…

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September 10, 2018
Read more about the article Making the best out of what we got even when it isn’t much
My thoughts

Making the best out of what we got even when it isn’t much

Interesting morning so far today. Lizze didn't sleep at all last night because she battles with insomnia when the weather rolls in like it has. Her pain greatly increases when we have things like barometric changes. As you can see below, the weather hasn't been fibro friendly. Emmett isn't feeling too well either and he's curled up on the couch next to Lizze, sipping Ginger ale, trying not to puke. Elliott's been a bit anti-social this morning and has been in his room working on Minecraft. I joke about the anti-social thing but he's at the age, even with Autism, that he spends time away from everyone else. Fun fact - being Autistic doesn't preclude you from going through normal teenage stages. They simy tend to be more extreme and…

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September 9, 2018
Read more about the article I’m a freshwater fish in a saltwater tank
Autism Parenting Insight / Inspirational Posts / My thoughts

I’m a freshwater fish in a saltwater tank

I found myself really frustrated today and I'm not entirely sure why. Most of the time, I'm the odd man out in our house filled with Autism and truthfully, that can be difficult for me at times. It's like everyone around me is operating on the same operating system and I'm simply incompatible. That probably sounds harsher than I intend it to but this does create problems for me on an almost daily basis. Everyone else in the house struggles with sensory issues. Things like smells, sounds, lights, textures, tastes and even temperature are things that constantly influence behaviors. No one in my family aside from me, does well with any type of change. It doesn't matter if it's a change for the better or for the worse, because it…

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September 9, 2018