Read more about the article #Autism Parenting: Some days are worse than others
Autism Parenting Insight / Clothes / Emmett John / My thoughts / Sensory

#Autism Parenting: Some days are worse than others

We had a really challenging day. Rather, Emmett had a very challenging day, and subsequently, so did the rest of us.  Any parent would gladly take away their child's burden and shoulder it themselves, but when it comes to Autism, there's no possibility of that. No matter what we do, sometimes we just can't help him.  For me personally, this was an emotionally draining day because Emmett was completely out of sorts for most of it.  The main issue for the first part of the day was clothing related. He couldn't wear any shirt. There's one shirt that he can wear, and we can't find it. It's got a picture of a pug wearing sunglasses and headphones. It's nowhere to be found.  His other shirts are bothering his shoulders. He…

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July 10, 2017
Read more about the article Gavin had a bad reaction to his #IVIG infusion
Bad Reaction / Gavin / IVIG Infusion

Gavin had a bad reaction to his #IVIG infusion

Gavin gets his IVIG infusion this morning, but I'm a tiny bit concerned. When he had his last infusion on Friday or Saturday, he got sick afterwards. He began not feeling well about an hour after it was done.  He soon became sick to his stomach and needed his anti-nausea medication, in order to make it through the night.  Thankfully, he's feeling better today but he had a rough go of it.  I don't know why he sometimes has bad side effects but not all the time. I'm grateful it doesn't always happen but I wish I could nail this down because if I knew why, I could try to fix it.  Unfortunately, it may just be a Gavin thing and there's no rhyme or reason to it. Hopefully, today's…

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July 9, 2017
Read more about the article This sets a terrible tone for the day
Emmett John / My thoughts / Sleep Issues

This sets a terrible tone for the day

It was a rough night. Emmett woke up after a really bad nightmare and never went back to bed. He woke up shortly after midnight, just as Lizze and I were going to bed.  There was zero chance of getting him back to sleep and in order to prevent him from waking anyone else up, further complicating things.  As per the usual in situations like this, we moved to the living room in an effort to salvage whatever sleep I could.  My efforts were fruitless because he never went back to sleep. This of course, sets a terrible tone for the day, that I'll have to attempt to overcome. 

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July 9, 2017
Read more about the article Happy Sunday
A little sunshine......
Photography

Happy Sunday

A little sunshine...... I took this picture a few days ago. I manually edited it to remove the background color, or restore the color of the main flower. It depends in how you look at it. Anyway, this took a little while but I'm really pleased with the way it turned out.

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July 8, 2017
Read more about the article Do you agree with this statement? 
My thoughts

Do you agree with this statement? 

The boys are in their way home and I'm feeling slightly recharged. That's about as good as it gets when you're an Autism parent. If you ever get a break, it's never enough to fully recharge.  What you end up getting is just enough of a recharge to keep puttering along. Autism parents expend so much energy on an hourly basis, I'm not sure it's even possible to ever fully recharge.  Do you agree with that statement? Please explain. 

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July 8, 2017
Read more about the article Thank God his supplies showed up
My thoughts

Thank God his supplies showed up

I mentioned yesterday that Gavin's IVIG infusion supplies hadn't showed up. Thankfully, they arrived yesterday, right before the boys left for their Grandparents house.  I showed Gavin how to make sure that he received everything he was supposed to by going over the supply list, and checking things off.  Gavin did an awesome job accounting for everything.  Unfortunately, by the time the supplies did arrive, we had run out of time to do his infusion before he left. We'll be taking care of this as soon as he gets home from his grandparents house.. 

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July 8, 2017
Read more about the article Feeding our marriage
Autism Parenting Advice / Lost a Tooth / Marriage Maintenance

Feeding our marriage

Lizze and I had a nice night. We went and saw the new Spider-Man Homecoming movie, and it was awesome.  I can't remember the last time we spontaneously went to a movie, let alone a super late showing like tonight. It felt good to be able to do that. It's important that Lizze and I get time to feel like a couple.  Things like this help to keep our relationship strong, and our sanity intact. Being Autism parents is really stressful, especially when it comes to maintaining a marriage. It's really important to focus on our relationship, because that helps us to be better parents. 

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July 8, 2017