childhood disintegrative disorder Archives - Page 233 of 276

Elliott isn’t able to fall asleep tonight

Elliott is having one of those nights where he's unable to fall asleep. Melatonin isn't even helping tonight. He's not bouncing off the walls or anything like that. He's simply laying in bed, unable to sleep. At this point, I told him he could watch Netflix on his tablet for a little bit. I'm hoping that's enough of a change to help him fall asleep. I'm going to try and stay awake until he dozes off but I'm really tired. He's not going to leave his room without waking me up, should I fall asleep. I'm not sure if this is an ADHD thing or not. Be will complain about too many thoughts in his head, but like I said, he's very calm. Do any of your kids with Autism…

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September 18, 2017

Emmett drew himself as a superhero and it’s adorbs

For an art project at school, the kids were asked to draw themselves as a superhero. In my book, these kids are all superheros on their own, but this was much more fun. ☺ Emmett drew himself as Harry Potter. Lizze has been reading Harry Potter to the boys each night and Emmett's a big fan. I love the way he sees his superhero character. He drew the infamous scar and also included his old mohawk haircut from a few years back. I think this is such a cool piece of art and this picture was actually taken by Emmett after school, using my phone. He grabbed my phone, ran back into the school and snapped a few pictures of his masterpiece. ♥ I'm happy to share this with you…

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September 17, 2017

My thoughts

I’m feeling exhausted

The boys are having a really good morning. They're each doing their own thing, and perhaps that's why there's no fighting. Either way, I'll take it. ☺ I'm feeling exhausted this morning, even after getting a decent night's sleep. There are no plans for today except the continued planning of our trip at the end of the month.

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September 17, 2017

Lizze / My thoughts

Lizze isn’t doing so well right now

Lizze is having a really rough time right now. If you follow our story, you might recall that Lizze has migraines almost every single day. They range from I can breathe through this to someone fucking kill me. The last day or so, it's been really bad and while she's pushed though most of the day, it's heartbreaking to see her in so much pain. She's never really responded to any conventional treatment and even underwent botox, in a desperate attempt to find some relief. Unfortunately, she's in the minority who react badly to botox. By badly, I'm referring to the side effect that can make her migraines significantly worse. While we were with Gavin's neurologist last week, he could see how much pain Lizze was in and was asking…

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September 17, 2017

My thoughts / Wishes Can Happen

One small but important hiccup with our trip

We received a phone call from Give Kids the World this morning. They were calling to make sure we didn't have any questions and to help calm any nervousness we may be feeling about the trip. I learned a bit more about how everything works and gained some further insight in how to prepare for our trip. We have to go through and pick the parks we want to visit. Three days in Disney, two days in Universal and one day at SeaWorld, is already included. Legoland is our priority and we will build our week around that. I figured any off time can be spent relaxing in the Give Kids the World Village. Apparently, there's a lot to see. There's one small hiccup that needs to be corrected. When…

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September 16, 2017

My thoughts / Wishes Can Happen

Attacking the huge pile of unsorted laundry

We are going through the monumental task of figuring out what clothes we need to try and get before we leave for Florida. Laundry is something that is almost always a back burner type chore for us because there's usually more pressing issues. Washing the laundry isn't usually a problem but folding, sorting and putting said laundry away proves to be more challenging for us. At the moment, we're catching up on all the laundry backlog and making some progress. Gavin and I matched a shit-ton of socks, while the boys went through their room and pulled out every last piece of dirty clothing. I'd be happy if we get through all the laundry today, even if we don't do anything else. This is a big step towards being ready…

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September 16, 2017

Gavin / My thoughts

Is Gavin experiencing paranoid?

Gavin just informed me that he had a hard time falling asleep last night. He never came to us for help, or even brought it to our attention until now. That's a bit surprising because he typically gets me when he can't sleep for some reason. More concerning than the problems falling asleep, are the reasons he couldn't fall asleep. Actually it's reason not reasons. Apparently, Gavin couldn't sleep because he was terrified that someone was going to set our house in fire, with us inside. There are two possibilities that come to mind in regards to this. The first and most likely being that two houses in our neighborhood were recently burnt down by an arsonist. One of the houses was across the street from us. Gavin's never expressed…

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September 16, 2017

Clozapine / Gavin / My thoughts

Heartbreaking: We’re seeing changes in Gavin’s behavior

I wanted to give a general update on how Gavin's doing with the changes to his antipsychotic medication, Clozapine. It's been a couple weeks since the dosage was reduced and I think it's a fair time to evaluate how he's doing since those changes. One of the biggest changes I think we're seeing, was very subtle at first and hard to notice. It's been a couple of weeks now and it's become much more obvious that there are changes taking place. The biggest at this point is that Gavin's spending much more time in his room. What this tells us is that he's spending more time in fantasy, then he is in reality. By fantasy, I'm referring to the Schizophrenic hallucinations he interacts with. Gavin's spending much, much more time…

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September 16, 2017