childhood disintegrative disorder Archives - Page 219 of 276

Please God, help Emmett survive the day

I didn't sleep worth a damn last night. I managed to fall asleep shortly before the alarm went off. Lizze sent me back to bed because she's amazing. Next thing I know, I'm being drafted into a massive battle with Emmett, who's refusing to go to school again. This was the worst morning he's had in a very long time. It was his crocs that were the problem today. He simply couldn't get comfortable and longer this went on, the worse it got. Between several calls to the school and the principal getting on the phone to try and talk Emmett through this, we finally got him in the car. Unfortunately, by that time, we were almost an hour late. I'm more exhausted now than I was before, only I…

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October 24, 2017

Autism Parenting Struggles / Gavin / Meltdowns / My thoughts

Gavin had a massive meltdown and it sucked

Lizze and I have been keeping a close eye on Gavin. We always keep a close eye on Gavin but more so now because of his medication changes. Gavin had another meltdown yesterday evening over something that wasn't a big deal, at least not to us. Gavin is always asking for ways he can help and typically won't stop until we give him something to do. If we don't, he gets this sad expression on his face and will repeatedly return, asking the same question. Some of the things Gavin has been doing are the laundry (putting into the washer and switching to the dryer), dishes, managing the recycling and helping with the pets. All these things are important life skills he needs to know anyway, and the more practice…

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October 24, 2017

Elliott / My thoughts / School Related Issues

Looks like we’re tempting fate once again

Unfortunately, Elliott is still running a fever tonight and that means he won't be in school again. He doesn't appear sick in any way, shape or form, but a fever is a fever. I am contemplating getting him into the pediatrician, just to make sure all is well. Elliott's not going to like that because he's absolutely terrified of all doctors, but at the end of the day, we need to make sure he's okay and that we have a doctors note. I'm not sure that's going to matter but it's not going to hurt to ensure we have as much documentation as possible. I'm hoping that Elliott's fever runs its course and he can return to school. I put the wellbeing of my kids before any ridiculously blanketed, State…

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October 23, 2017

Elliott / My thoughts / Sleep Issues

Here’s to hoping Elliott actually sleeps

We cut TV and tablet time off a bit eariler tonight. Elliott hasn't slept in almost two days and we wanted to make sure that the evening was as calm/quiet as possible. For part of the evening, we broke out Candy Land and Uno. It made for a nice, quiet evening. At this point in time, everyone is in bed and I'm praying it stays that way until at least 6:30 AM. Elliott's still running a fever and it doesn't look like he will be going to school in the morning. Frankly, if he sleeps tonight, I'll be happy and feel a sense of relief. ☺

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October 23, 2017

Autism Parenting Struggles / Emmett John / Meltdowns / My thoughts

Emmett’s Day: From Meltdowns to More Meltdowns

I mentioned previously that Emmett had a rough morning. His morning was actually going quite well until he realized that Elliott was going to be home sick. In case you're new here, it's important to understand that Emmett does not like change. It would be more accurate to say that Emmett hates change with every fiber of his being. Not doing well with change is a trait that many on the Autism Spectrum share, both children and adults. Emmett was fine this morning until he found out that he would be going to school by himself, meaning that Elliott wouldn't be in the school building because he was sick. This is a change to Emmett's routine and it totally threw him off. He was so freaked out over this that…

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October 23, 2017

Elliott / Gavin / General Update / My thoughts

No sleep for this #Autism Dad and other updates

Last night was rough. Elliott never fell asleep and is going on something like 36 hours right now. Thankfully, Lizze took Emmett to school and then took Gavin for his bloodwork. That being said, we had some major problems with Emmett this morning. I was able to go back to bed a bit later this morning and feel fully recharged. Elliott is still plugging along as though nothing is wrong, other than running a fever. I don't know what's going on with him but I wish I did. As for Gavin, he's doing pretty good today. We have to do his IVIG infusion this afternoon but that's not a huge deal. Aside from talking endlessly about his one tablet game, he's not complaining of any problems and hasn't talked about…

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October 23, 2017

Elliott / My thoughts / School Related Issues

We’re risking the wrath of the school attendance God’s

Unfortunately, Elliott never fell asleep last night and when we checked his temperature, he was back up to 100.7°F. He's not complaining of anything but his cheeks are red and he's well above the school's 99.5°F, fever policy. I took a screenshot of his temperature records from this morning, and sent it to the school office. It's nothing official but it does corroborate the fact that Elliott's running a fever. I also expressed my frustration with this new policy and they quickly replied that they absolutely understand/share my frustration. I've no solid understanding of how this is going to impact Elliott's attendance plight, but I'm sure we'll find out soon. Frankly, I'm trying not to give two shits about what the new policy says and simply do what's best for…

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October 23, 2017

Elliott / My thoughts / Sleep Issues

Poor Elliott is unable to sleep tonight

It's about 1:30 AM and believe it or not, Lizze and I were in bed shortly after 10:00 PM. Elliott is unable to sleep and shows no signs of being tired. He's still in his bed and I'm trying to sleep in mine but it's hard for me to feel comfortable sleeping if I know one of the boys are still awake. I feel like he's more likely to fall asleep if I keep on him until he does. If left to his own devices, he be on his tablet, trying to entertain himself quietly, until he's tired. The poor kids been in bed since 9:00 PM, with 10mg of Melatonin on board. He's been laying there listening to music, which normally helps him sleep. I hate the idea of…

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October 23, 2017