You Might Be An #Autism Parent If: Holy Shit
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October 29, 2017
Gavin’s not doing well tonight
I'm going to make this quit because I'm exhausted. Let me start by saying that I haven't written much today because life has just taken over and I'm struggling a bit with my depression. It was a really long day that included 60+ miles worth of driving to find Harry Potter costumes for the boys. I had ordered what I thought were Harry Potter robes on Amazon, only to discover that it was just a wand and glasses when they arrived today. Emmett was freaking out because he's been waiting since Lizze first began reading the books to them at bedtime. For now, everyone seems to be happy and that makes me happy. I would like to say Fuck You Amazon Seller for your deceptive listing. The evening brought with…
October 29, 2017
I’m so incredibly worried, overwhelmed and stressed out
We had a pretty nice evening, especially considering how stressful of a day it was. Lizze is sick and not doing well. Her cough is bad and she's in a lot of overall pain. She's only been on antibiotics for a couple days, so she should be feeling better in the coming days. Gavin is a hot mess. He's all over the place and absolutely struggling with nearly all areas of his life. I'm extremely worried about this new-ish unknown blood disorder and we are waiting for the referral to Hematology. Poor Gavin's Schizophrenia is definitely worsening since the reduction of his meds but there's no choices at this point. Let's not forget Elliott. Most of my morning was spent focusing on Elliott. He was at the pediatrician because he…
October 28, 2017
Elliott needed a chest x-ray this morning
Elliott's appointment took about two hours and he did about as well as he does at any doctors appointment. Elliott has never been comfortable at the doctors, any doctor for that matter. He gets extremely anxious and that using leads to a meltdown, or at the very least, tears. In a nutshell, his appointment when well. We're waiting for the results of the chest x-ray that is ruling out walking pneumonia and that's about it. He doesn't have strep and shows zero signs of being sick other than running the fever. The only reason they did the chest x-ray is because he's had walking pneumonia on a few occasions in the past. It's looking like we are moving in the direction of what Emmett's dealing with, a rare fever disorder.…
October 27, 2017
Colgate and MagnusCards helping Special Needs kids with oral hygiene #ColgatePartner
This post is sponsored by #ColgatePartner and is intended to share my family’s experiences using their oral hygiene social stories to help our kids with Autism maintain good oral hygiene. Being an Autism parent is full of many challenges. We all face a unique set of circumstances, but there are usually a few common threads that tie us all together. One of the challenges my family faces is regarding helping our kids with Autism learn personal hygiene. In my experience, with my kids, personal hygiene is something that doesn't seem to come naturally, especially with my oldest. One of the most essential elements of personal hygiene is maintaining good oral health. This has always been problematic because my oldest struggles with a lack of self-awareness and reduced memory function. He…
October 27, 2017
We have to make sure everything is okay
Emmett had a great morning and it currently at school. Elliott is still home sick and is currently sitting next to me at the pediatrician's office, waiting to be scene. I don't know what's going on with him but we just want to make sure everything is okay. I'm absolutely exhausted and ready to crash.
October 27, 2017
Clozapine Crisis: Here’s what happened today
We have a plan of attack for how to deal with Gavin's current mental and physical health problems, at least temporarily. The reason I say temporarily is because the particular plan of attack is only until we can finally get into Hematology at Akron Children's Hospital. Let me start with how the appointment with Dr. Reynolds went. It's clear that Gavin's having serious problems and it's at least partially related to the Clozapine. Let me be more specific. The issues with Gavin's blood are at the very leastade worse by the Clozapine, if not completely caused by the Clozapine. At the same time, the overall cognitive and neuro-muscular decline are most likely a result of Childhood Disintegrative Disorder. In other words, it's not related to the Clozapine. I mentioned we…
October 27, 2017
I told Emmett how proud of him I was
Update: This was supposed to publish a couple days ago. Not sure what happened but better late than never. ☺ It's no secret that I'm always proud of my kids, because I don't hide it very well, and I make it a point to tell them. It's important to me they know that no matter what, I love, support and am proud of them. Today was one of those days where I wanted to make sure That Emmett knew how proud of him I was. This morning was a nightmare, I'm not going to sugar coat it. Emmett had an hour long, massive meltdown over his crocs feeling funny. It's true he was late to school and that our day got off on the wrong foot as a result. Having…
October 26, 2017
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