For only getting about three hours of sleep last night, I'm feeling pretty good. I think that at least knowing what Gavin's lab results were, gave me enough peace to fall asleep. Sometimes knowing what you're dealing with can help you find the strength you didn't think you had left. Hope your day gets off to a good start. ☺
I was able to get a hold of Gavin's psychiatrist's office this afternoon and got the lab results from his blood draw on Monday morning. I actually only got his Absolute Neutrophil count but that's a good chunk of information. His Absolute Neutrophil count has climbed up a couple points from 2.0 to 2.4. This is positive but we don't know why the numbers are climbing back up. Something is wrong and not knowing what it is, makes this even more difficult. We don't know what makes it better or what makes it worse. We don't know what precautions to take or when we should worry. As a result, we worry all the time.
Update: I misread this woman's profile and it turns out she's not Autistic. My apologies for that. I misunderstood her profile and based on her attack, I incorrectly assumed she was an Autistic adult, attacking me in the way I've been attacked many times before. I shouldn't have assumed and I apologize for that. The principle of this post still stands. We all need to treat each the way we want to be treated. Parents and Adult Autistics should be on the same team. We all bring things to the table and can learn from each other. Being a parent isn't easy, especially when you're a neurotypical parent to a child with Autism. While I can't speak for everyone, I can say with the utmost confidence, that most Autism parents…
The stress of everything is getting to Lizze and I. We had a disagreement that got a little heated and it didn't have to be that way. Lizze and I are fine, but we never resolved anything and it wasn't going to happen until both cleared our heads. It's totally normal to have disagreements. Sometimes, as Autism parents, the stress of everything weighs so heavy that it influences our reactions to things. Something that Lizze is really good at is knowing when to end a conversation because it's not going anywhere. That's so hard for me to do because I need resolution. Knowing when to walk away is really important and that's something I need to work on. Thankfully, I have someone to help with that. ☺ 💙
I was in Best Buy the other day and stumbled across this little surprise. Vivint now has its own little section inside of Best Buy. This is pretty cool because this will make it easier for people to check them out before setting up an installation. I would assume at this point that in order to use the Vivint Gives Back program, you would want to go through Vivint Gives Back directly. Next time you're in a Best Buy, check their section out and see of they're a good fit for your situation. Remember, if you're a special needs parent, Vivint has an amazing program for you. Visit them at the link above and tell them you talked to me. ☺
The boys have had a good morning and they are off to school without much problem. Admittedly, I didn't check Elliott's temperature because he's feeling fine but if I check it, we'll end up having to keep him home. For the second day in a row, Emmett is wearing pants to school. I should probably clarify that he's wearing pants as apposed to shorts. That's something worth mentioning because it's a big step forward. ☺
It's not easy to explain how anxious I am tonight. I'm anxious because I haven't yet received Gavin's lab results from yesterday. This doesn't necessarily mean anything good or bad, they just haven't gotten them back yet. As a special needs parent, it seems like there's always something to worry about. Special needs kids can be so complex and their respective conditions can make life extremely complicated. There's always something to worry about because there's literally so many things that can go wrong at any given time. I'll be the first to admit that I'm guilty of waiting for the other shoe to drop but it's not because I'm negative. It's because there's always another shoe to worry about. I've spoken with countless special needs parents over the years and…
Lizze is still sick and currently sleeping for a little bit. I made dinner but only Gavin and I ended up eating. Elliott's even doing relatively well with working on his makeup homework in 20 minute increments. If a little bit, we're going to set the Ferrets free and I'm going to trim their nails. Letting the Ferrets loose is always a fun thing for everyone and we always look forward to it. Afterwards, Gavin will need his IVIG infusion started and that will hopefully be the end of my evening. Lizze will take over and put the kids to bed while I catchup on some work. I was going to say that things were looking positive tonight but before I could finish that sentence, Emmett and Elliott erupted into…