childhood disintegrative disorder Archives - Page 199 of 276

Tons of awesome pics from this week’s snowday

The boys got a relatively rare chance to play outside in the snow. Normally we avoid being outside in the yard due to safety concerns associated with our neighborhood. It's been pretty quiet lately and Lizze and I were right there with them the whole time. It was really awesome to see them playing and having fun. Everyone had a good time and they spent about 20 minutes throwing snow balls, making snow angels and being kids. 💜 [foogallery id="68176"]

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December 15, 2017

Gallery / My thoughts / Reviews

Review: The Guardian Helmet for #Seizures, #Autism and #Epilepsy

This review is sponsored by Guardian Helmets. They were kind enough to send over a Guardian Helmet for me to check out, write about, and hopefully raise some awareness. ☺ The purpose of this post is to bring a product to your attention that may be of benefit to some of my readers. This was a bit more difficult to review because this isn't something that my kids require. As a result, I've decided to simply present you with the information, give my thoughts on the build quality, discuss the potential use scenarios and leave it up to you, as to whether or not it's something that will benefit your family. Guardian Helmets produces a protective helmet for kids and adults that helps protect them from traumatic brain injury. There…

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December 14, 2017

Emmett John / My thoughts / Photography

My little snow angel

Just as the school predicted and prepared us for, it's a snowday. Mr. Emmett decided that he wanted to head outside and sweep the snow off the porch. We have to use a push broom at the moment cause our snow shovel was stolen again.. Anyway, I only let him out for a few minutes because I don't want him in the snow wearing crocs and no socks. He did a really good job and wants to do more later on today. We'll have to see about that. Once I brought him in the house, I made him some hot chocolate with marshmallows and we snuggled on the couch, watching the new season of All Hail King Julian.... ☺

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December 14, 2017

Emmett John / My thoughts / Sensory / Shoes and Socks

Holy Shit!! He’s kinda wearing shoes

When it comes to being an Autism parent, it's all about the little victories. Don't get me wrong, we get some big victories as well and this is a prime example of one. ☺ If you know our story, you probably know that Emmett seriously struggles with shoes and socks. In fact, it's so bad he hasn't worn shoes in almost two years now. He will however, wear crocs but only certain ones and it's really hard to find those. Anyway, he's been wearing the second pair for quite awhile now and they were too small for him. He refused to wear anything else and it was a battle we decided not to pick because it would have only made things worse. Lizze's Mom bought him a new pair of…

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December 14, 2017

Daily Discussions / My thoughts

#Discussion: Do your loved ones with #Autism struggle during the holiday’s?

We've all been there. The hussle and bussle of the holidays can often take a heavy toll on our loved ones with Autism, especially our kiddos on the Spectrum. Frankly, as parents or caregivers, it can take a toll on us as well. If your child or loved one with Autism struggles with the holiday's, what seems to be the source of their struggles? Things like noise, large crowds, anticipation, anxiety, excitement, frequent travel, changes to routine, lights, smells and sounds can be extremely overwhelming for those on the Autism Spectrum. What if anything, have you found, tried or done, that seems to make the holiday's easier for your kids or loved ones on the Spectrum? Have you had to make changes to your holiday plans? I'd love to hear…

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December 14, 2017

Depression Confessions / My thoughts

#Depression Confession: I spoke with my doctor today

I've had a pretty awesome day so far. The boys got off to school without an issue and back is healing up pretty well. Most of the pain is gone and I have to thank Lizze for taking such good care of me. ☺ I didn't sleep well last night because I was really stuffy and I ended up only getting a few hours of sleep. I took a nap this morning and feel good. There were a few errands I needed to get done before getting to the school. One of them was a biggie for me. I talked to the nurse at my doctor's office about my plan to come off my antidepressants. I explained why I want to do this and while I want to get started…

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December 13, 2017

Depression Confessions / My thoughts

Depression Confessions: A very personal post about managing #Depression

Today was one of those days where I seriously need a break. The holidays alone are a tremendous amount of pressure. There's parties and family get togethers that really add pressure to the cooker. If we go, the kids are going to be even more difficult to manage but if we don't go, not everyone understands. Lizze and I haven't had a night to ourselves in I don't even remember. I think we had one night off since September-ish. It's not anyone's fault and we're absolutely grateful for the times we do get away from the kids. Sometimes life happens and circumstances change. It's outside of anyone's control. At the same time, it sucks. I'm so physically exhausted and I was talking to our therapist tonight about it. I'm concerned…

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December 13, 2017

Gavin / IVIG Infusion / My thoughts

Hasn’t he already been through enough?

For the third night in a row, Gavin has struggled to go to sleep because he isn't feeling well. Last night it was a stomachache and headache. Tonight is was a stomachache again. I think we need to get him into his gastro again and this time look at gastroparesis. Lizze has this, it's genetic and it's a large part of what makes her so miserable everyday. We do have a mark in the win column tonight. Gavin did his infusion on his own once again and did a great job. I don't think his condition at bedtime was related to his infusion, but who knows. There weren't any obvious side effects and he didn't have any complaints about how it went. We do however, need to order a new…

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December 11, 2017