childhood disintegrative disorder Archives - Page 194 of 276

Family therapy just took a heartbreaking and unexpected turn

Family therapy has become a routine thing for my family. It's important that we stay ahead of anything that's going on and ensure that the kids are getting what they need. Parenting three kids with Autism and various other special needs, makes it damn near impossible to meet all their needs. Therapy helps us to make sure that we're at least meeting the most important ones. Anyway, last night was pretty routine, right up until the end of the session. I honestly don't even remember what triggered this but basically, out of nowhere, Gavin had a total breakdown. He starts sobbing and we finally get out of him what's causing him distress. Apparently, Gavin is having thoughts of punching people in the face. He isn't wanting to act on it,…

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December 29, 2017

Gallery / My thoughts / Reviews

Review: Is the Shark Ion Robot Vacuum worth the money? (@sharkcleaning)

This review is sponsored by Shark. They sent me the new Shark Ion Robot Vacuum to review. The review contains my own opinions and thoughts as to the Shark Ion Robot Vacuum. I was not influenced by anyone or anything. Please help me share this review. Shortly before the recent holidays, I received a large box from Shark. If you're not familiar with the company, they make some pretty amazing vacuums and steam mops among other things. Inside this box was the brand new Shark Ion Robot Vacuum. Having never used one of these things before and only ever seeing one in the store, I had no idea what to expect. Below are my thoughts, personal experience and whether or not I would recommend this product to anyone. [foogallery id="68376"]…

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December 28, 2017

Clozapine / Gavin / Medication Management / My thoughts

We had a really close call

Yesterday afternoon, we realized that there was a problem with Gavin's Clozapine prescription. The problem was that we never received it. Last month, for whatever reason, the pharmacy didn't include the Clozapine in his predosed packets. Instead, they sent it out separately. Not a big deal.. Unfortunately, there was a change made to his prescription that we were never made aware of and that created a problem. For some reason, Gavin's prescription was reverted back to a seven day only. He'd been on a thirty day script for at least a year now. Not knowing this in advance created a problem because we needed to have his labs done every single Monday. This left us without a refill and working with the pharmacy to figure out what happened. I'm waiting…

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December 28, 2017

My thoughts

I got to do what I got to do

For only being a couple days after Christmas, the boys are doing quite well, at least in my opinion. They have been playing quietly for most of the day and there hasn't been much in the way of fighting. ☺ Lizze and I were able to sleep in a little bit and that's always appreciated. I do have a few things this afternoon that need to get done. The boys have therapy tonight and I desperately need to find the grocery store. Lizze is in a shitload of pain today, so I think we'll just let her sleep and I'll take the boys with me to the store. Am I looking forward to that? No, I'm not but I got to do what I got to do... ☺

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December 27, 2017

Autonomic Disorder / Gavin / My thoughts

Gavin was absolutely miserable tonight

Tonight was not good to Gavin. Poor Gavin got sick after dinner and was absolutely miserable until he finally fell asleep. Shortly after eating dinner, he got what he describes as a really bad stomachache. Tums seem to have helped with that rather quickly but it was the headache that kept him up last night. I'm beginning to suspect that when he has these episodes, they are mini autonomic crises. The reason I say that is because they always happen after eating, when his blood rushes to his stomach. That can and does cause his blood pressure to destabilize, leading to a headache. That's actually how we first discovered there was a problem in the first place. When he lays down, he often feels better. This happens a few times…

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December 26, 2017

My thoughts / Vivint Gives Back

Did you know Santa can use the @vivinthome cameras to ensure not a creature is stirring?

I wanted to take a second and share something that might benefit some of my fellow Vivint Smart Home users. Frankly, this would apply to any smart camera system but I've only experienced that with Vivint Home and that's why I'm focused on that. When it comes time to ensure that the kids get to sleep on Christmas Eve, so Santa can arrive, I inform my kids that we let Santa login to our Vivint Smart Home system to make sure they're sleeping. Santa does this by logging into the Vivint app and taking a peak at the kids room, through the Ping Camera, making sure they are sleeping before he arrives. We've found that this helps to kids remain focused on going to sleep and at the very least,…

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December 26, 2017

Confessions / Depression Confessions / Depression Management / Medications / My thoughts

Depression Confession: Week 1 of Paxil withdrawal

It's officially the beginning of the second week of withdrawal from Paxil. What I've been doing is taking 40 mg/day on one day and then 20 mg/day on the next. I've completed the first week of this four week phase and it fucking sucked. You'd think I was withdrawaling from something hardcore and illegal but it's just an antidepressant called Paxil. I've received tons of messages from people who have gone through the same thing and understand how awful it is. I really appreciate all the feedback and support. Many people can withdrawl from Paxil without any issues whatsoever and there are others, like myself, who go through horrible withdrawal. It feels like the worst flu I've ever had. Having said all that, I seem to have come through the…

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December 26, 2017

Gavin / IVIG Infusion / My thoughts

His IVIG infusion had him in tears tonight

We officially put Christmas behind us this evening and began the sorted journey of getting back to our normal routines. In Gavin's case, that meant he had to do his IVIG infusion, which he does every Monday and Friday. Unfortunately for Gavin, his IVIG infusion didn't go so well. He started the process about 6 PM and immediately hit a few bumps in the road. The first infusion site needed to be replaced because it wasn't working and the second infusion site was leaking. Both of these scenarios are nightmare scenarios for Gavin because it involves more needles and more pain. To make things even worse for him, the procedure ended up taking almost 6 hours. This put Gavin several hours passed his self proclaimed bedtime and that had him…

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December 26, 2017