Caregiver Burnout Archives - Page 313 of 319

Making the best out of the cards we’ve been dealt

We got off to a rough start today. Between oversleeping and a decent meltdown, I'm spent. My back is still a major issue at the moment and that makes things worse for me. Thank God for Elliott's level of cooperation this morning. He did really amazing and I couldn't be prouder. Emmett is definitely struggling today and is home from school once again. Gavin is very tunnel visioned and all he can focus on is taking a bath. That's not a bad thing per say, because he's doing this unprotected. The annoying part is when we tell him he has to wait a bit because the bathroom won't be available right away, and yet he continues to ask as though we never had that conversation a dozen times already today.…

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April 11, 2017

Gavin / My thoughts

My son with #Autism is driving me crazy today – Here’s why

Gavin is having one of those days where he drives me absolutely crazy. The level to which he's driving me crazy today would be impressive, if it wasn't for the fact that he's driving me crazy. The latest mile down the road to crazy he's taken me on, has to do with his IVIG Infusion. We got his infusion started over an hour ago. I had to work with him because he was paranoid the infusions sites were leaking. I assumed him that they weren't and I explained that it's good to check things out if he thinks something is wrong but worrying too much isn't a good thing. Between his excessive fear of the infusion site leaking and his desire to get his game started on the Playstation, he…

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April 10, 2017

10 Things / Inspirational Posts / My thoughts

10 Things all new #Autism parents need to know

It's not very often that I outright give anyone advice. I may stress the importance of certain things, but I dislike telling anyone what to do because everyone's situation is so different and I'm not walking in your shoes. Having said that, and in the spirit of Autism Awareness month, I thought I would break from tradition and offer some advice for those of you out there, just beginning your Autism Parenting journey. One of the things I remember the most upon hearing that my son had Autism, was a profound sense of my world crashing down around me. I felt like I was unprepared for this new journey and frankly, I was. I was heartbroken, angry, scared, confused and overwhelmed. I didn't know what Autism was, let alone anyone…

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April 10, 2017

General Update / My thoughts

Everyone in the house was exhausted today

It's been a blah day here in The Autism Dad household. Everyone left home today was really, really tired. Gavin slept a good part of the morning, as did Lizze and I. Emmett just layer in bed and watched a movie. After waking up, I feel much more capable of taking on the day, at least what's left of it. I still have Gavin's IVIG infusion to do this afternoon but at the moment, I'm waiting to pick up Elliott from school. I'll write something a bit more coherent in a little bit. My brain is in quite a few different places right now.

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April 10, 2017

Emmett John / My thoughts / PFAPA

Emmett didn’t go to school today and it’s thrown our day off

Unfortunately, Emmett didn't go to school this morning. He's having an okay morning but it's obvious that something's isn't right. Elliott did really awesome this morning and we got off to school on time, even besting bus 38... ☺ Emmett being home has thrown our day off, but we've adjusted and have been able to move forward regardless. We also have a sick cat that had to get into the vet this morning. She's had explosive diarrhea and it wasn't getting better. The first appointment they had available was 9:30 AM this morning. Thankfully, she's going to be okay but we have quite a bit of medicine to force feed her for the next few days. Fun.....

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April 10, 2017

Emmett John / My thoughts / PFAPA

Emmett’s running another fever tonight because what’s 1 more missed day of school

Emmett spent the evening in the worst mood imaginable. He had a zero tolerance for everything. Several meltdowns were had in a relatively short period of time, with each one being as unpleasant as the next. I decided to check Emmett's temperature and son of a bitch, he's running a fever. It's low grade and just under 101°F, but it's another piece of the puzzle. Unfortunately, the school has a fever policy and anyone with a temperature of 99.5°F is sent home. They've bumped that up a little bit for Emmett but at the moment, he's still over the limit. We've been suspecting for a few days now that he was hitting a fever flare, but the demeanor and fever pretty much confirm it now. He has state testing tomorrow…

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April 10, 2017

My thoughts

Too much of anything can be a bad tbing

The boys arrived home and seemed to have had a good time, which isn't surprising. They didn't even make it in the door before they immediately began asking to play the Xbox. Lizze and I told them no because they literally just walked in the door. That didn't make them very happy... I love video games and always have. It's a great way to decompress or escape for a little while but all in moderation. Too much of anything can be a bad thing. We're gonna have to keep working on this.

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April 9, 2017

My thoughts

This is why I’m not doing so well today

The boys are spending the day with their Grandparents and I just woke up from my nap. I've been in pretty rough shape the last few days because my back has gone out. I suffered a major back injury back in 2001 and it took the better part of twelve years to finally manage the pain. I've been doing really well that past few years, mostly because I discovered that fitness walking helped tremendously. I'm not sure what has happened but the pain is so bad, it takes my breath away. Walking isn't the fix all at the moment because when I try, my legs physically give out. It's one of those things where I step funny, and literally lose control of my lower body. While this sucks, I'm not…

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April 9, 2017