Caregiver Burnout Archives - Page 309 of 319

I’ve noticed something interesting about my kids with #Autism

My kids can say some crazy shit sometimes. That's got nothing to do with Autism, it's just their cheeky personalities. ☺ That being said, I have noticed something that seems to be a common phrase between my kids, in one particular situation and I don't think they're doing it on purpose. Whenever they are encouraged to try something new, maybe a new food, a different TV show, rather than just saying no, they say something else. My kids will almost always use the phrase I'm not used to this...... It could be I'm not used to these chicken nuggets or I'm not used to this show. What they mean is they don't want it or don't like it. Do your kids say anything like that?

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April 20, 2017

General Update / My thoughts

We doing pretty okay this morning

The boys are both going to school this morning. Elliott is doing a great job of getting ready and cooperating. Emmett is struggling a bit this morning. It would be fair to say he's moody and is sort of all over the place. After taking the boys to school, I'll be taking Lizze to her therapy appointment. I'm really tired but I'm hoping to push through everything today and avoid taking a nap. I've got a lot I need to catch up on and sleeping with definitely interfere. Hopefully your morning is going well... ☺

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April 20, 2017

General Update / My thoughts

I’m exhausted but feeling blessed

I apologize for not writing today. I've been doing a pretty good job of writing throughout the day recently. It feels good to be doing that again. Unfortunately, I've been spread pretty thin lately and today had me buried. I was up late with Emmett last night because he was sick. In fact, both boys missed school because they were running fevers. I just checked them before I crawled into bed and both are fever free at this moment in time, and God willing, returning to school in the AM. I've been run kinda ragged, but I've turned in two articles this week and I'm really excited about that. Both will help, but do so in different ways. I have one more left to do and I'll have that done…

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April 20, 2017

Bad News / Elliott / Emmett John / Gavin / Good News / My thoughts

I have good news and bad news tonight

Today has been one of those days were it's truly been a mix bag. We've been blessed with some really positive events today. At the same time, there's some bad news as well. I think that's how life sorta balances everything out. In fairness though, life has a pretty shitty track record for balancing things out for us, and a lot of other families. I want to begin with the good news because it's a pretty big deal. I had been talking about how things being tight this month and how we are adjusting to a significantly reduced grocery budget. This has had me really stressed out and scrambling to figure out our options. Last night, or rather very early this morning, my new advertising deal came through. I hadn't…

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April 19, 2017

Elliott / Homework / My thoughts / School Related Issues

More homework frustration for my son with #Autism

Both boys had a good day at school but Elliott's a bit frustrated over his homework for the week. Homework proves to be a struggle when he has four days in which to do it. I've written about this countless times. Elliott is frustrated because it's a short school week and yet they're given the same amount of homework to do. I can understand his frustration and I'm not quite sure of the logic that goes into the decision to do this. If homework is a problem on a full week, why not reduce the amount proportionally on a short week? That seems reasonable to me, because I know Elliott's far from the only one who struggles with homework in his class. We'll help Elliott to get as much done…

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April 18, 2017

Gavin / My thoughts

Gavin’s complaining of the weirdest thing today

Ever since Gavin was little, hes had a weird relationship with pain. It's been labeled a sensory issue but it's still weird. Back when Gavin was self-injuring in a major way, he would scratch his face open or punch his legs until he left giant bruises. He would never complain about these things hurting and they obviously should have hurt. At the same time, if he had a barely visible hang nail, he would freak out and react as though it was the end of the world. He's always been this way. This morning, he began complaining the webbing between his fingers was cramping up. It wasn't his fingers or hands either. He specifically pointed to the webbing and said it's cramping between each finger, and on both hands. WTF…

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April 18, 2017

My thoughts

Things got better after the massive meltdown

I was up with Elliott for most of the night. He was dealing with some congestion and doesn't cope well with that feeling. He woke up about 1am and we moved downstairs so he could more easily sit up. It took him a bit to get moving for school but once he did, he was feeling much better. Emmett on the other hand, was in a foul mood this morning and my ears are still ringing from all the screaming. After a relatively major meltdown, he seemed to feel better and we were able to move on with our morning. Both boys are currently in good moods and in school.. Unfortunately, it's Gavin's turn to not feel well. It's going to be a long day.....

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April 18, 2017

Heartbreak / My thoughts

Why my heart breaks for my oldest #SpecialNeeds son

With all Gavin has going on in his young life, he's blissfully ignorant to what it all means. In a way, that's a blessing. He's always so positive and looking forward to growing up. He's seventeen years old and he's looking forward to growing up. Gavin doesn't understand that there's a better than good chance, he will never be able to live on his own. He doesn't understand that he will never drive a car. As heartbreaking as it is for me to even say this, he will never get married or have kids of his own. 🙁 When Gavin says he can't wait until he's grown up, I don't know what to even say, except don't be in such a hurry to grow up.. Today he told me one…

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April 18, 2017